Archive for January 2013

Monthly Archive

Craniofacial microsomia: A young boy transformed after surgery

Mavrick before surgery

Seven-year-old Mavrick Gabriel of Kenai, Alaska could be described as being “beyond his years.” He’s compassionate in a way that you don’t often see with young children, and he wants to educate others about his birth defect, craniofacial microsomia, and to help kids in the process.

Mavrick was born without a left ear and with a very small jaw that did not have a joint on one side.  He can’t eat solid foods, has to use a feeding tube and his speech is affected. In June 2012, Gabriel and his family invited television cameras to capture a surgery—one of dozens he’s endured—that helped move him closer to having a jaw.  But he doesn’t want you to feel sorry for him. “Most kids never have to go through this and I’d like to help other people with what I’m going through,” Mavrick said.

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8 activities to get kids outdoors in cold weather

Winter weather can make getting outdoors seem like an ordeal – cold temperatures, snow and ice and a lack of summer sunshine can make even the most outdoorsy family want to stay inside. Pooja Tandon, MD, a childhood health researcher with Seattle Children’s Research Institute and a pediatrician, encourages children and families to get out, no matter the weather.

Outdoor winter playA recent study led by Tandon found that nearly half of U.S. preschoolers did not have even one parent-supervised outdoor play opportunity per day. The study also found that girls are less likely to play outside than boys and that mothers took their children outside to play more often than fathers. Fifteen percent of mothers and 30 percent of fathers did not take their child outside to walk or play even a few times per week.

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Breaking the silence after stillbirth – One family’s story

Guest post by Amanda and Brent Spraker

This Thursday, Jan. 31, is our daughter Emily’s 10th birthday, a time that should be filled playfully gathering with friends and giddily unwrapping presents. But Emily will never experience any of those things – she was born still.

Stillbirth is an all-too-common tragedy. In the U.S., 26,000 babies are stillborn every year – that is one baby, one family, every 21 minutes.

We were so excited to be pregnant with our first child, we never considered the possibility of a stillbirth—it was the only chapter in our pregnancy book that we skipped.

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Christian Bale makes special call to young Batman fan battling leukemia

Jan. 30, 2013: Zach received a care package full of Batman goodies from Christian Bale this week, and his reaction was priceless:

Jan. 25, 2013: A young Seattle Children’s patient – and avid Batman fan – got a special surprise last week, when actor Christian Bale called him in his hospital room. 8-year-old Zach Guillot, of Dallas, Texas, is battling acute myeloid leukemia. He is currently a patient in the hospital’s Cancer and Blood Disorders Center, where he is recovering from chemotherapy in hopes of later receiving a bone marrow transplant. It will be his third transplant since he was first diagnosed in February 2010.

“Everyone knows Zach is a big Batman fan,” said Jeff, his father.  “One of our friends called Christian Bale’s agent, cold-called-him from what I understand, and told him Zach’s story.”

On Jan. 18, Bale called Zach to talk about costumes, little brothers who moonlight as trusty sidekick “Robin,”and Zach’s homemade Batmobile. Zach’s parents, Julie and Jeff caught the conversation on video and shared it on YouTube.

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Seattle Children’s Patients Star in the Children’s Film Festival Seattle

TheatreNorthwest Film Forum’s 8th annual Children’s Film Festival Seattle will be rolling out the red carpet to children and their families today through Feb. 3. It has become the largest film festival on the West Coast dedicated to this young audience, reaching more than 10,000 people during festival screenings in Seattle and a subsequent festival tour of 15 to 20 U.S. cities.

New this year, current and former patients at Seattle Children’s Hospital will have a few very special starring roles in the festival.

Lights, camera, action!

The festival will showcase more than 120 innovative, inspiring and fun films from 38 countries. Children’s is excited that five short films created by patients or featuring patients’ creative works have been selected to be shown at the festival.

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