My name is Makenna Schwab and I’m 14 years old. Over the course of my life, I have been treated at Seattle Children’s Hospital where an amazing team of doctors have performed over 15 life-changing and life-saving surgeries for me.

I was born with a rare connective tissue disorder called Larsen syndrome, which causes dislocations in my joints, instability in my spine and trouble with my breathing. I’ve had to face a lot of challenges, but rather than let my disability hinder me from what I love to do, I decided to embrace it and try to use my experience to create something positive.

When I was 8 years old, I asked my mom if I could sell cookies and lemonade and donate all of the proceeds to Seattle Children’s as a way to give back. Since then, I’ve worked on a variety of projects — from bake sales and toy drives to making packs of food for inpatient families. The money I’ve raised has helped to provide uncompensated care to families at Seattle Children’s. It has also allowed me to provide red wagons for patients in the hospital and purchase new medical equipment to help treat kids like me.

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