Adolescent and Young Adult (AYA) Cancer

All Articles in the Category ‘Adolescent and Young Adult (AYA) Cancer’

Ciara Helps Pamper Patients at Seattle Children’s

Lynch posed for a photo with Ciara after getting a makeover. Photo credit: Corky Trewin

Today, patients at Seattle Children’s were pampered thanks to Ciara, who along with her glam squad, surprised children at the hospital with complimentary makeovers.

“Every time I visit Seattle Children’s, I see how strong these children are who are going through such difficult battles,” said Ciara. “I wanted to help make them feel as strong and beautiful as they are to me, and to let them know I’m thinking about them. I often hear that I inspire these kids, but they’re really the ones that inspire me. They are the real superheroes of today.”

Ciara, who often visits Seattle Children’s with her husband, Seahawk’s quarterback Russell Wilson, wanted to organize an event to help make kids at the hospital feel beautiful – both inside and out. And so, for the day, Seattle Children’s was transformed into a beauty salon for “Ciara’s Makeover Monday by Revlon.” Read full post »

Childhood Cancer “Awareness”

Dr. Abby Rosenberg, medical leader of Seattle Children's Adolescent and Young Adult Cancer Program

Dr. Abby Rosenberg, medical leader of Seattle Children’s Adolescent and Young Adult Cancer Program

Sometimes I hesitate to tell people what I do for a living. This isn’t because I don’t love what I do (I do), but because the idea of kids with cancer seems to make people uncomfortable. Perhaps this is because they think of their own children and feel that urgent need to protect them, coupled with sudden gratitude that their own kids are healthy. Perhaps they think of the heartstring-pulling commercials featuring cute, bald children. Or, maybe they think of melodramatic movies where the patients with cancer always die. Perhaps they relive their own experiences involving older adults, friends or family members who suffered from cancer.

Regardless of their reasoning, the expectation seems to be that pediatric cancer must be sad. And sometimes, it is. But there’s also a lot of hope. So, in honor of Childhood Cancer Awareness Month, I thought I would take this opportunity to share what I think of kids with cancer below. Read full post »

Preserving Hope for Young Cancer Patients to Have Families in the Future

Shannon Keating had to think about fertility preservation before she began treatment for Hodgkin lymphoma.

Family planning is not the first thing a young, newly diagnosed cancer patient might think about. But for adolescents and young adults facing cancer treatment that could leave them infertile, preserving the ability to have babies should be part of the conversation at the doctor’s office.

A new study published today in Cancer and led by Dr. Margarett Shnorhavorian, a pediatric urologist and researcher at the Seattle Children’s Research Institute Center for Clinical and Translational Research, found a need for increased awareness of fertility preservation for young cancer patients. The study was based on 459 adolescents and young adults who were diagnosed with cancer in 2007 or 2008. The patients were aged 15 to 39 years when diagnosed with germ cell tumor, non-Hodgkin lymphoma, Hodgkin lymphoma, acute lymphocytic leukemia, or sarcoma. Read full post »

Study Shows Insurance Status is Associated with Cancer Mortality in Teens and Young Adults

Health insuranceAbout 70,000 young people ages 15 to 39 are diagnosed with cancer each year in the U.S., and cancer is leading cause of death from disease in this age group. While cancer survival continues to improve for children and older adults, outcomes have greatly lagged for teens and young adults.

In recognizing this worrisome disparity, the medical community is working to identify the factors that may be contributing to this population’s inferior survival outcomes. In a study featured today on the cover of Cancer, “Insurance status and risk of cancer mortality among adolescents and young adults,” researchers have identified one of those factors: lack of health insurance and limited access to medical care. Read full post »

Electricity, Dishwashers and What Really Matters

Dr. Abby Rosenberg, medical leader of Seattle Children's Adolescent and Young Adult (AYA) Cancer Program

Dr. Abby Rosenberg, medical leader of Seattle Children’s Adolescent and Young Adult (AYA) Cancer Program

This past week, my 10-year-old son was assigned a science experiment to conduct at home: exist for a full hour without electricity. During our family’s allotted hour, some things became incredibly difficult (imagine hand-washing dinner dishes in darkness). But the rest became wonderfully easy. With no way to do routine activities involving smartphones, TVs, computers, or other electronics, we just sat, talked and played board games by candlelight.

My son’s conclusion from this assignment? Without electricity, life is richer. He commented that he appreciated this opportunity to just be present and be together. “It’s different,” he explained. “In a weird way, electricity takes us away from each other. When you remove the electricity, you spend more time doing what’s important to you – what matters. You realize how lucky you are to have each other…and to have electricity the rest of the time.”

This was when my son’s simple assignment suddenly reminded me of what I see in and strive to teach our patients and families everyday. Read full post »

Seattle Children’s Research Institute’s Top Accomplishments of 2014

Hendricks Headshot 2

Now that the halls have been decked and the most wonderful time of the year is over, Dr. Jim Hendricks, president of Seattle Children’s Research Institute, took down the holiday tinsel from his work station and spent a moment reflecting on the research institute’s greatest accomplishments of 2014.

There were so many exciting developments over the past year that it’s impossible to fit them all in one short list, but here are some outstanding achievements that come to mind.

  • Our investigators had an incredibly successful year when it comes to funding, including government, nonprofit and industry sources. Our total funding increased from $76 million in fiscal year 2013 to nearly $92 million in fiscal year 2014, which represents a 21% increase. This success is a testament to the talent of our investigators considering that the competition for federal grants has increased steadily as the available federal funding has decreased. This funding will help us get closer to finding more treatments and cures for pediatric diseases.
  • We continued our first T cell cancer immunotherapy clinical trial this year and opened enrollment for two additional trials. This ground-breaking therapy reprograms the body’s infection-fighting T cells to find and destroy cancer cells with minimal side effects. While our first trial, PLAT-01, continues treating patients with relapsed leukemia, a second trial treating leukemia patients with T cell immunotherapy has had great success thus far. Additionally, a new trial opened in November to treat neuroblastoma using immunotherapy.

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A Year in Review, Looking Back at the Top Posts of 2014

New YearIn honor of the New Year, we’re taking a look back at some of our most popular and memorable blog posts from 2014. Below is a list of our top 10 posts. Here’s to another great year of health news to come. Happy New Year!

Lung Liquid Similar to One Used in Movie “The Abyss” Saves Infant’s Life, Doctors Encourage FDA Approval of Clinical Trials

Two doctors at Seattle Children’s went the extra mile to save Tatiana, one of the sickest babies they’ve ever seen. They got ‪FDA‬ approval to use a long-forgotten drug and are now inspired to help make this drug available to save more lives.

Visit with Macklemore Helps 6-Year-Old Heart Patient Recover

AJ Hwangbo was a happy-go-lucky 6-year-old without a worry in the world until mid-November when he developed a life-threatening heart condition. While specialists at Seattle Children’s Hospital helped AJ heal physically, the young boy struggled to bounce back emotionally. But, AJ’s joyful spirit returned after hospital staff arranged for him to meet his hero – local artist Macklemore. Read full post »

Is Thank You Enough?

You may remember Kat Tiscornia from September of last year when she shared her experience of battling Ewing sarcoma and becoming “Titanium Girl.” Kat, now a sophomore at Mercer Island High School, asked On the Pulse if she could share an important message with those who cared for her at Seattle Children’s. We think you’ll enjoy reading it as much as we did.

Thank you. It’s just two simple words. In some languages it’s just one, gracias or merci for example. I was brought up to say thank you all the time. Thank you to my teachers, my coaches, my bus driver and the store clerk behind the counter. Are these two words really enough though? What if it’s a big thank you? What if the people you want to thank are the reason you are standing here today?

In March 2013 I was diagnosed with Ewing sarcoma, a rare form of bone cancer. I was at Seattle Children’s Hospital when I first met my oncologist, Dr. Doug Hawkins. I will never forget that day. He had to deliver the worst news of my life. However, as he told me that I had a cancerous tumor in my leg, his voice was full of compassion, patience and honesty. He was honest about how hard this journey I was about to embark on was going to be. I remember being very scared that day, but I never felt hopeless. He had a plan for me and I trusted him. Thank you, Dr. Hawkins. Read full post »

Conquering Childhood Cancer: An Inside Look at Seattle Children’s Cancer Care Unit

In the video above, take an inside look at Seattle Children’s Hospital’s Cancer Care Unit and meet the individuals at Seattle Children’s dedicated to helping children and teens conquer childhood cancer, the second leading cause of death in children ages 5-14.

Tour the country’s first adolescent and young adult cancer unit thanks to a guide who knows the unit all too well, a former patient. See first-hand the cutting-edge research that is saving and enhancing the lives of children and adolescents – from using the body’s own immune system to fight cancer to a relatively new form of radiation therapy that offers hope to children with recurrent neuroblastoma. Read full post »

Clinical Research: What Would You Do if it Were Your Child?

Dr. Abby Rosenberg is the medical leader of Seattle Children's Adolescent and Young Adult (AYA) Cancer Program

Dr. Abby Rosenberg is the medical leader of Seattle Children’s Adolescent and Young Adult (AYA) Cancer Program

After a child has been diagnosed with cancer, one of the first conversations we have with families is about clinical research. In fact, almost all children with cancer have the opportunity to participate in research, and many parents are asked to make decisions about enrollment early in their child’s cancer experience. The question we as researchers have to ask ourselves: Is this unfair? Parents are already struggling with the nearly impossible tasks of accepting their child’s cancer, assimilating huge amounts of new (perhaps confusing) medical information, and uprooting their lives to meet the demands of illness. Can they also make educated decisions about enrolling their child in clinical research?

Many ask, “What would you do if it were your child?” The question is not surprising; parents often make cancer-treatment decisions by “trusting staff.”1 Unfortunately, the answer is often, “I don’t know.” And that answer is true.

We don’t know how it feels to walk in your shoes, with your family’s values, perspectives and relationships. We also come from a different perspective, one where research is embedded in our training and guides almost all of our medical decision-making. We believe in research, but we don’t want to bias you with that belief. (As an aside, I’m pretty sure that all of my training and perspective would be forgotten if it were my own child, and I would ask the very same question of my medical providers. Like you, my single goal would be to do the right thing for my child.)

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