Cancer and Blood Disorders

All Articles in the Category ‘Cancer and Blood Disorders’

Seattle Children’s to open country’s first dedicated teen and young adult cancer unit

Cancer Patient Room

Cancer Patient Room

On April 21, Seattle Children’s Hospital will be the first hospital in the country to open an inpatient cancer unit dedicated to teens and young adults. The 16-bed unit will occupy the top floor in the hospital’s new Building Hope facility, which will house inpatient cancer treatment, critical care treatment and a new Emergency Department.

Teen and young adult patients in the new unit will benefit from the support of their peers, as well as an enhanced package of psychosocial support programs that will improve their treatment experience.

The unit will also be the new home of Children’s Adolescent and Young Adult (AYA) Oncology Program, which was one of the first five cancer programs for teens and young adults in the U.S. Children’s AYA program has been a model for the development of other programs across North America, and will now set the stage for opening a new space for this age group.

“It’s going to be a groundbreaking event in the U.S. to have a unit like this dedicated to teens and young adults,” said Rebecca Johnson, MD, oncologist at Seattle Children’s. “It presents an opportunity for us to continue with the development of new programs for this age group. Our unit will also provide an example to other institutions of how to deliver quality care for teens and young adults in a dedicated space.”

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Patients’ imaginations come alive in animation workshop

As part of Seattle Children’s collaboration with Children’s Film Festival Seattle, professional animators Charlotte Blacker from England and Britta Johnson from Seattle offered two days of animation workshops to hospital patients.

With short stories featuring a wide range of objects and characters from aliens, exploding stars to “banana slips”, patients’ imaginations came alive as they created their stop motion animation films.

To make the films each patient came up with a story idea, made their characters or objects that would be in their film and then moved them in small increments between individually photographed frames. Once the frames were played together as a continuous sequence, their animation was born.

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Christian Bale makes special call to young Batman fan battling leukemia

Jan. 30, 2013: Zach received a care package full of Batman goodies from Christian Bale this week, and his reaction was priceless:

Jan. 25, 2013: A young Seattle Children’s patient – and avid Batman fan – got a special surprise last week, when actor Christian Bale called him in his hospital room. 8-year-old Zach Guillot, of Dallas, Texas, is battling acute myeloid leukemia. He is currently a patient in the hospital’s Cancer and Blood Disorders Center, where he is recovering from chemotherapy in hopes of later receiving a bone marrow transplant. It will be his third transplant since he was first diagnosed in February 2010.

“Everyone knows Zach is a big Batman fan,” said Jeff, his father.  “One of our friends called Christian Bale’s agent, cold-called-him from what I understand, and told him Zach’s story.”

On Jan. 18, Bale called Zach to talk about costumes, little brothers who moonlight as trusty sidekick “Robin,”and Zach’s homemade Batmobile. Zach’s parents, Julie and Jeff caught the conversation on video and shared it on YouTube.

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Seattle Children’s Patients Star in the Children’s Film Festival Seattle

TheatreNorthwest Film Forum’s 8th annual Children’s Film Festival Seattle will be rolling out the red carpet to children and their families today through Feb. 3. It has become the largest film festival on the West Coast dedicated to this young audience, reaching more than 10,000 people during festival screenings in Seattle and a subsequent festival tour of 15 to 20 U.S. cities.

New this year, current and former patients at Seattle Children’s Hospital will have a few very special starring roles in the festival.

Lights, camera, action!

The festival will showcase more than 120 innovative, inspiring and fun films from 38 countries. Children’s is excited that five short films created by patients or featuring patients’ creative works have been selected to be shown at the festival.

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One Step Closer to a Cure for Leukemia without Chemotherapy or Radiation

At most hospitals, children with relapsed acute lymphoblastic leukemia (ALL) who aren’t responding well to chemotherapy would be running out of options. But Seattle Children Research Institute’s researchers are one step closer to finding a cure.  Starting this month, patients who have relapsed ALL will have the option of participating in a new clinical trial if they are not responding to chemotherapy and have a less than 20 percent chance of survival. 

Harnessing life-saving cells in patients’ blood

The new treatment—called cellular immunotherapy—involves drawing blood from the patient, reprogramming their infection-fighting T cells to find and destroy cancer cells, and infusing the blood back into their body.

T cells attack neuroblastoma tumor cells

Only three other institutions in the country are conducting this type of clinical trial, which involves using a specialized high-tech facility to manufacture the personalized therapy using each patient’s blood. 

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Building Hope, Part 1: Top Ten Features of Cancer Inpatient Unit

Cancer Patient Room

In April 2013, Seattle Children’s will open Building Hope, a new  facility that will house a new cancer inpatient unit with 48 single patient rooms. Additionally, Building Hope will include 32 private rooms for critical care treatment and a new Emergency Department.

The cancer care space will span two floors and offer several features that will make a patient and their family’s stay as personalized and comfortable as possible.

A 16-bed teen and young adult cancer space will occupy its own floor, where patients will benefit from the support of their peers in an age-appropriate environment. No other hospital in the United States currently offers a dedicated inpatient unit of this size for the care of teens and young adults with cancer.

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Seattle Children’s Cancer Patient Presents “Haunting: A Head” – A Halloween Video

10-year-old Jenna Gibson, a Maple Valley, Wash. resident, has been a patient at Seattle Children’s since she was initially diagnosed with acute myeloid leukemia earlier this year.

While staying at the hospital’s cancer care inpatient unit recently, she had the idea to create for her friends and family a video entitled: “Haunting: A Head” – all in the spirit of Halloween fun.

In the video, Jenna, hidden beneath a magical hospital robe that makes everything but her head invisible, can be seen on a spooky hijinks across the floor.

“I wanted to show some of the things that were frustrating but kind of funny about being in the hospital,” said Jenna. “And I wanted to use only my head because it seemed mysterious.”

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Gene Repair Breakthrough Led by Seattle Children’s Research Institute

Imagine a prowler casing a neighborhood, looking for a way into a home. That’s essentially what HIV, the human immunodeficiency virus, does:  It moves through the bloodstream trying to gain entry to T-cells — the primary warrior of the immune system. A special receptor on the T-cell’s surface (called CCR5) is the open door it seeks. Once it gains entry, the virus hampers a T-cell’s ability to do its job, leaving people vulnerable to infection and disease — and enabling HIV to spread.

Now imagine you can lock that door forever. The virus can’t enter the T-cells and interfere with the immune system and the body can fight off the infection.

Drs. Dave Rawlings, Andy Scharenberg and a team at Seattle Children’s are getting close to making that vision a reality. Working with colleagues at University of Washington and Fred Hutchinson Cancer Research Center in the Northwest Genome Engineering Consortium, they have figured out how to modify genes and knock the CCR5 receptor off T-cells.

Dr. Dave Rawlings, Dr. Andy Scharenberg (right)

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The Cat Immersion Project: The Next Best Thing to Being There in Purrrson

Many of the cancer patients at Seattle Children’s Hospital are here for months at a time and far from the comforts of home – including the presence of their much-loved family pets. To make matters worse, these patients often need to be in isolation due to their compromised immune systems, cutting them off from the social support that can be a lifeline during a long course of treatment.

Maga Barzallo Sockemtickem is one such patient. Maga spent more than seven months at Children’s in 2011 waiting for a compatible bone marrow donor, eventually undergoing a transplant. A 16-year-old cat-lover, back at Children’s for post-transplant treatment, Maga is confined to her room and hasn’t seen her beloved cat, Merry, in nearly a month.

The staff at Children’s decided to do something about that. While they couldn’t bring Merry to Maga, they did the next best thing. A call to Children’s Facebook fans to post their favorite cat photos for Maga sparked an overwhelming response: fans sent more than 3,000 photos along with comments and heartfelt get well wishes.

Maga, touched by the outpouring of support, responded with …”You guys remind me that there is so much good in the world, and it just makes me feel so much better, and connected. I can’t tell you how it feels sometimes, feeling disconnected and cut off from the world, and then with something like cat pictures bringing me back. Thank you all for your kind words, and well wishing. Its means more than you can ever know. Thank you. Thank you. Thank you…”

With more than enough photos, staff got to work and created the Cat Immersion Project. Using the photos fans sent and adding some creative magic with sound, sheets, and projectors, they created a virtual cat cocoon, making Merry seem just a little bit closer.

Watch Maga experience the Cat Immersion installation for the first time:

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Cancer Patient Raps “Look At Me Now” in Music Video

They say that humor can be great medicine and this rings true for 18-year-old Abigale Hamlin, a leukemia patient being treated in Seattle Children’s Hospital’s Adolescent and Young Adult Oncology Program. Abigale says that a good dose of laughter in her situation helps her to see and think of things in a different light.

Last year, when she first heard Chris Brown’s song featuring Lil Wayne and Busta Rhymes, “Look At Me Now,” her witty and creative nature took hold and her inner rapper emerged as she flowed to the beats with her own lyrics that described what she was going through, “Look at me now, look at me now, I’m losin’ hair-air, or I’m gettin’ che-mo.”

“I’m the kind of person who sings a song and puts my own words to it because I think it is funny,” says Abigale. “Then I thought, how funny would it be if I took the lyrics and made this song cool and funny in my own way!” Read full post »