Jennifer Bevaart’s son William was diagnosed with Kawasaki disease in September, 2014.
In honor of National Kawasaki Disease Awareness Day, we are sharing the story of William, a 10-year-old boy who lives with the disease, and why Seattle Children’s, an international leader in Kawasaki disease research, is the best place for children like William to receive treatment.
In September, Jennifer Bevaart’s son William developed a fever that lasted for days. He was lethargic, had a rash on his chest and his eyes were bloodshot. Over the next two weeks, Bevaart took William to at least four different specialists, each of whom suggested a different diagnosis: a sinus infection, walking pneumonia, bronchitis, even scarlet fever. Each treatment failed to ease William’s symptoms. He went from an active, tae kwon do enthusiast to a weak boy who was too weak to walk even the short distance to the mailbox without lying down to rest.
“Call it mother’s intuition, but I just knew something was very wrong with my son,” Bevaart said. “I felt like I was watching him die.” Read full post »
Lydia digs in.
Last April, at the age of 12, Lydia Vaughan felt hungry for the first time.
The new sensation – along with support from her family and a team of specialists at Seattle Children’s – helped her learn to do in two weeks what she had never done before: put food in her mouth and swallow it. Read full post »
Dr. Abby Rosenberg, medical leader of Seattle Children’s Adolescent and Young Adult (AYA) Cancer Program
This past week, my 10-year-old son was assigned a science experiment to conduct at home: exist for a full hour without electricity. During our family’s allotted hour, some things became incredibly difficult (imagine hand-washing dinner dishes in darkness). But the rest became wonderfully easy. With no way to do routine activities involving smartphones, TVs, computers, or other electronics, we just sat, talked and played board games by candlelight.
My son’s conclusion from this assignment? Without electricity, life is richer. He commented that he appreciated this opportunity to just be present and be together. “It’s different,” he explained. “In a weird way, electricity takes us away from each other. When you remove the electricity, you spend more time doing what’s important to you – what matters. You realize how lucky you are to have each other…and to have electricity the rest of the time.”
This was when my son’s simple assignment suddenly reminded me of what I see in and strive to teach our patients and families everyday. Read full post »
Jaime Ralston-Wilson (left) and Elizabeth (Liz) Artola
When Gailon Wixson Pursley came to Seattle Children’s, she was in so much pain she couldn’t walk. At 19 years old, Gailon was diagnosed with sarcoma, an aggressive cancerous tumor in her hip flexor muscle.
Gailon’s treatment plan included surgery to remove the large tumor, radiation and chemotherapy, along with a long list of medications to help manage the side effects of her diagnosis and treatments.
Gailon’s mom, Yvette Wixson, asked whether another treatment was available for her daughter: acupuncture. To Yvette’s delight, the answer was yes.
Seattle Children’s inpatient acupuncture program began as a six-month pilot in January 2014. During the pilot, acupuncturists were available four hours a day, five days a week. Before the pilot, acupuncture was available to outpatients, but only on a sporadic, ad-hoc basis for inpatients. Read full post »
As we head into the New Year, we’d like to reflect on some of the incredible clinical advancements of 2014 that show how our doctors have gone the extra mile for our patients.
In the Children’s HealthLink Special video above, watch how futuristic medicine has saved the lives of the littlest patients at Seattle Children’s. From 3D-printed heart models to liquid ventilation, doctors and families reveal the amazing benefits of innovative treatments that challenge the status quo. Read full post »
In honor of the New Year, we’re taking a look back at some of our most popular and memorable blog posts from 2014. Below is a list of our top 10 posts. Here’s to another great year of health news to come. Happy New Year!
Lung Liquid Similar to One Used in Movie “The Abyss” Saves Infant’s Life, Doctors Encourage FDA Approval of Clinical Trials
Two doctors at Seattle Children’s went the extra mile to save Tatiana, one of the sickest babies they’ve ever seen. They got FDA approval to use a long-forgotten drug and are now inspired to help make this drug available to save more lives.
Visit with Macklemore Helps 6-Year-Old Heart Patient Recover
AJ Hwangbo was a happy-go-lucky 6-year-old without a worry in the world until mid-November when he developed a life-threatening heart condition. While specialists at Seattle Children’s Hospital helped AJ heal physically, the young boy struggled to bounce back emotionally. But, AJ’s joyful spirit returned after hospital staff arranged for him to meet his hero – local artist Macklemore. Read full post »
Sutton Piper, age 3
Sutton Piper, 3, was born with a metabolic disorder that made his muscles too weak for crawling, walking and talking. After being referred to Dr. Sihoun Hahn, a biochemical geneticist at Seattle Children’s, Sutton is bouncing on his mini-trampoline and chatting up a storm.
Sutton Piper came into the world on his own terms: nine days late.
At 6 months, he’d made little attempt at rolling over; at 9 months, he showed no interest in sitting up on his own; and, by his first birthday, he wasn’t even trying to crawl. Read full post »
Elise Pele had been in labor for hours awaiting the arrival of her baby girl, Tatiana, on the evening of Aug. 29. Elise remembers wanting desperately to hear her baby cry – a sign that everything was ok. But that cry never came. She saw Tatiana for only a few seconds before nurses rushed her to the neonatal intensive care unit (NICU) at a local hospital.
“I instantly knew something wasn’t right and I was terrified,” Elise said. “The doctors told me my baby wasn’t breathing right and had to be transferred to Seattle Children’s.”
Tatiana experienced meconium aspiration syndrome where she inhaled a mixture of meconium (stool) and amniotic fluid during labor due to stress, which obstructed and irritated her airways, leading her down a path where doctors thought she would likely die. Read full post »
You may remember Kat Tiscornia from September of last year when she shared her experience of battling Ewing sarcoma and becoming “Titanium Girl.” Kat, now a sophomore at Mercer Island High School, asked On the Pulse if she could share an important message with those who cared for her at Seattle Children’s. We think you’ll enjoy reading it as much as we did.
Thank you. It’s just two simple words. In some languages it’s just one, gracias or merci for example. I was brought up to say thank you all the time. Thank you to my teachers, my coaches, my bus driver and the store clerk behind the counter. Are these two words really enough though? What if it’s a big thank you? What if the people you want to thank are the reason you are standing here today?
In March 2013 I was diagnosed with Ewing sarcoma, a rare form of bone cancer. I was at Seattle Children’s Hospital when I first met my oncologist, Dr. Doug Hawkins. I will never forget that day. He had to deliver the worst news of my life. However, as he told me that I had a cancerous tumor in my leg, his voice was full of compassion, patience and honesty. He was honest about how hard this journey I was about to embark on was going to be. I remember being very scared that day, but I never felt hopeless. He had a plan for me and I trusted him. Thank you, Dr. Hawkins. Read full post »
Dr. Katie Williams, a pediatrician and urgent care specialist at Seattle Children’s Bellevue Clinic and Surgery Center, lived every parent’s worst nightmare when her 1-month-old son turned gravely ill one Saturday evening in January. Here, Williams shares how her infant escaped the grip of death — and how she gained a new level of gratitude — thanks to her colleagues’ expertise in pediatric life support.
Dr. Katie Williams with her son, Grayson
The Saturday that is forever burned in my memory started out typically. My husband David DeTerra and I took our three kids — 4-year-old Evan and 1-month-old twins Elisabeth and Grayson — to an afternoon birthday party for a friend. On the way home, we stopped for takeout and looked forward to a relaxing evening at home. I remember sitting in the car thinking how glad I was that the twins had reached the 30-day mark, because that’s the point where infants are less likely to get serious infections.
What happened next came totally out of the blue.
Grayson started breathing funny and he had this strange rhythmic cry. I figured he was hungry and wanted out of his car seat to nurse. When we got home, David noticed he felt cool and clammy and his face looked pale. We both tried to feed him, but he wouldn’t eat. His eyes, normally so alert, couldn’t connect with us at all. When his tiny body went limp, we frantically called 9-1-1. Read full post »