Patient Care

All Articles in the Category ‘Patient Care’

Building Hope expansion full, getting rave reviews one month after opening

Building Hope patient roomIt’s been one month since Seattle Children’s new cancer, critical and emergency care expansion opened to patients and the inpatient units are already full. The new Emergency Department (ED) on the ground floor of the building has also seen higher-than-normal patient volumes. Patients and staff are giving Building Hope high marks.

“It’s unbelievable to see it as a real building. It’s amazing that it’s so similar to the cardboard mockup we built three years ago,” says Mandy Hansen, Building Hope project manager. “There’s a great sense of pride about all the hard work that went into building a space that really supports our patients and families.”

New inpatient rooms already full

The new critical care and cancer care units in Building Hope filled up almost immediately after the building opened. Twenty patients moved into the new cancer unit on April 21, but volumes quickly grew. At times since the opening, all 48 beds in the unit have been full (up from 33 beds in the previous unit). Read full post »

Tips for kids’ mental health

MentalHealthPostWhen a child is sick, needs a vaccination or gets bumped or bruised, most parents don’t hesitate to make a trip to the doctor’s office. But what happens when a child’s feeling blue, overly anxious or struggling to focus in school? This month, in recognition of Mental Health Awareness Month, doctors offer tips for parents to keep kids mentally and emotionally well, and explain what to do when there’s a problem.

Carol M. Rockhill, MD, PhD, and Ian M. Kodish, MD, PhD, child and adolescent psychiatrists at Seattle Children’s Hospital, say first and foremost, we need to relearn the way we view mental health.

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Lawyers team with doctors to help patients navigate legal system and get the care they need

Medical Legal PartnershipWhen 14-year-old Ryan Hribernick of Shoreline, Wash., started having trouble propelling his manual wheelchair, his healthcare team at Seattle Children’s recommended he add power-assist devices to give his wheels an extra boost.

But instead of approving the modification, Washington state – which pays for a portion of Ryan’s medical equipment through Medicaid – offered him a motorized wheelchair.

Not a good solution, says Susan Apkon, MD, chief of rehabilitation medicine at Children’s.

“Pushing a manual wheelchair helps Ryan maintain upper body strength and overall health,” says Apkon. “He needs power-assist wheels to safely go up and down ramps and keep pace with his friends, but he doesn’t need a motorized wheelchair to do this.”

Ryan’s mom, Kristina Ray, was concerned about the social and emotional impact on her son, who has cerebral palsy and is successfully navigating life – and middle school – with a disability. “More than anything, Ryan wants to fit in,” she says. “Putting him in a power chair would make him stick out.”

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Liver transplant unlocks new life for girl with propionic acidemia

Kaitlin Burns_liver transplantIn a northern California suburb in 1999, Kaitlin Burns was born very sick, that much was certain. She was extremely lethargic, vomited non-stop and soon wouldn’t eat anything. When her family finally received a diagnosis two weeks after her birth, the news was devastating.

Kaitlin was diagnosed with propionic acidemia, a rare, inherited metabolic disorder that affects about one in 100,000 in the United States. Propionic acidemia prevents the body from processing protein properly, leading to an abnormal buildup of a group of acids known as organic acids. Abnormal levels of organic acids in the blood, urine and tissues can be toxic and can cause serious health problems.

Michelle Burns, Kaitlin’s mother, recalls how the local hospital at the time was their second home. “During the first year of her life, I can’t even count on my fingers and toes how many trips we made,” she explains.

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Doctor offers spring safety tips for parents and kids

Kids on trampoline

The days are getting longer, the weather is getting warmer and kids are spending more time outdoors. It is spring time – a season for hiking, grilling, gardening and outdoor fun. But with spring also comes the occasional bump, bruise, bite, rash and fall. How can parents help their kids avoid injury?

Tony Woodward, MD, MBA, medical director of the division of emergency medicine at Seattle Children’s Hospital, offers advice for keeping kids healthy and out of the emergency room.

 

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Patients move into Building Hope expansion

Russell Wilson Building Hope

On Sunday, April 21, care teams moved patients into new cancer and critical care units in the Building Hope expansion, including the country’s first teen and young adult inpatient cancer unit. Patients, hospital leadership and staff, and Seattle Seahawks quarterback Russell Wilson helped celebrate the opening with a ribbon-cutting ceremony.

The expanded emergency department opened to patients Tuesday, April 23. The new ED has 38 exam rooms and features a new model of care that will reduce wait times and allow patients to be seen by a nurse right away.

The video below offers a behind-the-scenes look at the first patients moving into Building Hope.

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Building Hope, Part 5: Meet the people behind the design

Building HopeMore heads are better than one—especially when it comes to designing Seattle Children’s new expansion, Building Hope. Children’s brought together a unique advisory board made up of patients, families and hospital staff to provide feedback throughout the design process.

With Building Hope, Children’s wanted to create an environment that would support the physical, emotional and psychological aspects of healing. Who better to understand the subtleties of the patient experience than actual patients and their families?

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Mom and Children’s bring boy back to life after near-drowning

Travis AndersonFriday, July 13, 2012 was the day 9-year-old Travis Anderson drowned in the Pilchuck River near Snohomish, Wash. It was also the day that his mother, Kim, and the emergency team at Seattle Children’s saved his life.

Travis, a wiry redhead, was wading in a shallow portion of the river, near his mom, his brother and sister, and his best friend. He lost his footing. The current swept him downstream and beneath a log, where he became trapped under water. Kim and Travis’s older brother Jacob couldn’t free him. After a few minutes, a bystander helped shift the log, and Kim pulled her youngest child to the river bank.

Travis was a ghostly pale gray, his eyes half open. Blue lips and purple circles around his eyes indicated cyanosis, a lack of oxygen in the blood. He was unresponsive, with no pulse. Kim began CPR while her daughter called 911.

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Dad’s gift to his daughter – Evelyn’s transplant story

Evelyn Sherman had a kidney transplant this past Halloween, just 10 days before she turned three years old. Her dad, Keith, was her donor. In honor of Donate Life Month, Evelyn’s mom, Julianne, reflects on their journey as they near the six-month anniversary of the transplant.

Getting the diagnosis

Evelyn was nine months old when she started falling off the chart. I thought my milk supply had dropped off so we were just sort of waiting it out, but she was still falling off the curve. Then we tried to beef up her diet and that wasn’t working.

Evelyn_dialysis By the time we got the diagnosis when she was 15 months old, we had made a tour of Children’s. She had some other physical manifestations of something being wrong. She had a sixth toe. She had wine stains on her skin. So we’d been to orthopedics to have her toe removed. And we’d been to dermatology. We felt like we were ending our tour when we got to nephrology. It was our last stop.

Evelyn was diagnosed with renal dysplasia, meaning that the kidney developed incorrectly in the beginning. She also has kidney reflux and that means that the urine is going back up into the kidneys from the bladder. It often causes a kidney infection, but for whatever reason, she didn’t really manifest that.

When the doctor delivered the news that there was something wrong with her kidney, I remember thinking, “I feel like you’re saying something really important to me and it’s just not registering because you have got to be talking about somebody else.” I couldn’t comprehend what he was saying, that I had a critically ill child.

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Diagnosing Kawasaki disease: “Grey’s Anatomy” mirrors real-life

Sarah Chalke, actressA story every mother needs to see, inspired by real-life events. This promotion for an episode of “Grey’s Anatomy” may sound dramatic, but when your child is ill and a diagnosis doesn’t happen promptly, the situation is not without drama.

Sarah Chalke, a television star who appeared on “Roseanne” and “Scrubs,” is a guest star on tonight’s “Grey’s Anatomy,” with a storyline that mirrors what happened to her family.

Two years ago, Chalke’s son, Charlie, came down with Kawasaki disease, a rare condition with potentially serious effects. She has spoken publicly about the difficulty of getting Charlie diagnosed and the urgency of getting the appropriate treatment. There is a narrow window—a mere 10 days after the initial symptoms appear—for the intravenous treatment to be effective.

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