In 2016, Seattle Children’s extended their mobile extracorporeal membrane oxygenation (ECMO) capabilities to provide the service to critically ill children during transport to the hospital from anywhere in a five-state region. ECMO is an advanced life-support therapy that functions for the heart and lungs when the organs fail or need to rest. Seattle Children’s became […]
Epilepsy can be very difficult to treat – and some families explore a range of options seeking relief from seizures for a child with epilepsy looking for a solution. For 14-year-old Taylor Johnson, a procedure known as deep brain stimulation (DBS) resulted in her experiencing a completely new life and the significant seizure relief she […]
Amna and her family moved to Seattle to get the best treatment possible for her daughter Jude, who has sickle cell disease. This is Amna’s story in her own words. I will never forget the moment I learned I was pregnant with my daughter, Jude. I had moved from Sudan to join my husband, Amar, […]
Sirish was a healthy, happy boy with no underlying medical conditions aside from food allergies and eczema, both of which were easily managed at home. Then one day, he spiked a fever. Initially, his mother, Jyothi, a physician who previously practiced in India, wasn’t concerned. The fever broke, and Sirish seemed to improve. About a […]
Dr. Klane White leads the Skeletal Health and Dysplasia Program at Seattle Children’s. He is an international expert in the care of children with mucopolysaccharidosis (MPS) and skeletal dysplasia, lecturing around the globe on the orthopedic management of these conditions. In addition to being the only pediatric orthopedic surgeon in the world to serve […]
When Amanda Thorlacius found out she was pregnant with a little girl, she was overjoyed. But she wondered if her daughter would inherit the same genetic condition that robbed her of a normal childhood. “Give me all the diseases in the world, but don’t give Alagille syndrome to my children,” Amanda said. Alagille syndrome (ALGS) […]
Colleen and Derek spent the first half of Colleen’s pregnancy like many first-time parents, imagining what their child would be like, musing about things they would do as a family and celebrating a joyful new chapter in their lives. They never imagined they would have a child with special needs or that doctors would predict […]
Sabrina and Reiff Castillote knew something was wrong with their daughter Maleea’s health when she was just 5 days old. Then, their 6-year-old son Malachi’s behavior became concerning. For over 15 years, Sabrina and Reiff took their children to countless specialists, but they never received a clear diagnosis. “We were told our daughter was considered […]
Penny was diagnosed with neuroblastoma, a solid-tumor cancer with a survival rate of about 50%, three months after her baby brother, William, was born with a life-threatening heart condition. Today, William is thriving at home and Penny is in remission. Penny’s final immunotherapy treatment was on Sept. 2 after a year of treatments that included […]
On January 30, 2019, Nia Mauesby was born. To celebrate her arrival, the setting sun illuminated the Seattle skyline with bright hues of red, orange and yellow. It was one of the most dazzling and memorable sunsets of the year. As quickly as the setting sun dipped over the horizon, the winds began to shift, […]
