Philanthropy

All Articles in the Category ‘Philanthropy’

Nurse Creates Song to Give Hope, Help Find a Cure for Pediatric Cancer

0153-Cassi-War-on-Cancer-Neptune-Shoot-2016-Jerry-and-Lois-Photography (lWEB).jpg Cassi White and friends | War on Cancer | Neptune Theater, July 2016 © Jerry and Lois Photography All rights reserved http://www.jerryandlois.com

The War for the Cure was created to help raise awareness, as well as funds, in the fight against childhood cancer.

Cassandra (Cassi) White was on an airplane when the words began to flow. White was a thousand miles away from Seattle Children’s, where she works as a pediatric cancer care nurse, when she began to piece together a song for the kids who never leave her heart – kids fighting cancer.

“The words came pouring out of me,” said White. “I started thinking about the kids that I see at work every day and the words just kept coming.”

White wanted others to see inside her world. She wanted to educate people about the struggles these courageous children face each day.

“A lot of people have a connection to cancer in someway,” said White. “The song gives a real look into that world. It provides a window of what these kids go through, and gives people something they can relate to.” Read full post »

A Miracle in the Making

Greta Oberhofer’s leukemia is in remission thanks to T-cell immunotherapy developed at Seattle Children’s.

Greta Oberhofer survived a bone marrow transplant for leukemia when she was just 8 months old — but the side effects nearly killed her. Then, six months later, her family’s worst fears came to life.

“My husband put the doctor on speaker phone — he told me Greta relapsed and that her prognosis was bad,” remembers her mother, Maggie Oberhofer. “She had already suffered so much with the chemotherapy and transplant, and we didn’t want to put her through that again. We didn’t know what to do.”

The Oberhofers — who live in Portland — were considering hospice for Greta. Then they heard that Seattle Children’s Dr. Rebecca Gardner was testing a therapy that uses reprogrammed immune cells to attack certain kinds of leukemia.

“Dr. Gardner said not to give up because her therapy was putting kids like Greta in remission, and that the side effects were often a lot easier to tolerate,” Oberhofer says. “We suddenly had a way forward.”

A few months later, the Oberhofers watched Greta’s reprogrammed cells drip into her body. Two weeks after that, her cancer was in remission.

Read full post »

How a Teddy Bear is Helping in the Battle Against Cancer

erin-with-t-bearHe may not be able to fly, or be as fast as the speed of light, but for children who have been diagnosed with cancer at Seattle Children’s, the cuddly teddy bear who wears a mask and purple cape is still a super hero to them – he gives them strength. His name is T-Bear and he’s bringing hope to children with cancer.

Meet T-Bear, He’s more than just a teddy bear

Catherine Lindgren, director of the Therapeutic Cell Production Core (TCPC) and its’ team at Seattle Children’s Research Institute, had an idea to make a life-changing moment feel a little more personal for cancer patients undergoing immunotherapy, a new treatment that harnesses a patient’s own immune system to seek and destroy cancer. Lindgren wanted every child to know they aren’t alone – that they have a team of support around them. And so, T-Bear was born.

“Teddy bears are historically comforting to sick children,” said Lindgren. “We wanted families to know we’re on their team, and together, we’re Strong Against Cancer.” Read full post »

Stamm Camp Celebrates 50 Years of Bringing Camp to Medically Complex Children

Going to summer camp can be perceived as a childhood rite of passage. It’s a place for kids to cut loose and embrace their independence for a few special days. Whether it’s participating in new activities like fishing or archery, or bonding with fellow campers — camp can be a magical place that creates memories that last a lifetime.

Unfortunately for some kids who have medically complex conditions, the idea of going to summer camp doesn’t seem like an option. It can be especially true for children who require a wheelchair or rely on ventilators or feeding tubes to keep their health stable.

It wasn’t an option until a doctor from Seattle Children’s, Dr. Stanley Stamm, came up with a remarkable idea 50 years ago — create a summer camp catered specifically for kids who face serious medical challenges.

Every August since 1967, Seattle Children’s Stanley Stamm Summer Camp has given children with complex medical conditions the chance to step out of their diagnoses to “just be kids.”

Funded exclusively by generous donors so kids can attend for free, the week-long sleepover camp has become a powerful opportunity for campers to connect with peers, as well as former campers turned volunteers who understand what it’s like to live with a chronic illness.

Read full post »

Seahawks to Fund Certified Athletic Trainers Program at Four Local Schools

Athletic TrainersGeniqua Harris, a Seattle Children’s athletic trainer in the Tukwila School District at Foster High School, has spent the last four years on the sidelines of practices and sporting events helping to keep young athletes in the game and injury-free.

“I’ve seen many athletes grow up right before my eyes,” said Harris. “I’ve been working with them since they were small ninth graders. Now, they’re graduating. It’s really rewarding to hear the kids and coaches tell me how much they appreciate me. I’m just doing my job, but I know it means a lot them.”

Throughout the years, Harris has seen a lot of injuries, from common sprains and strains to devastating season-ending fractures. She’s worked with athletes from a wide variety of sports and has helped them get back to the field as safely and quickly as possible after injury. However, there has always been one thing she’s always needed more of: time – time to serve more athletes, tape more ankles and help more kids through rehabilitation.

Today, thanks to the Seattle Seahawks and the NFL Foundation, time will no longer be an issue for Harris. Read full post »

Princesses in Elaborate Outfits Bring Joy to Patients

Cheal PrincessOnce upon a time, in a hospital not so far away, a princess came to spread joy to kids at Seattle Children’s. Wherever the princess went, smiles followed. For one little girl, seeing the princess was a dream come true, and soon – the patient and the princess – became the best of friends.

This is the type of tale that plays out each month at Seattle Children’s thanks to volunteer Chael Stenchever who wears many crowns, transforming herself into a variety of princesses before visiting patients.

Stenchever’s elaborate costumes are nothing short of magical. Just watch her walk through the halls of the hospital during one of her visits and you’ll see that a princess costume can truly brighten a child’s day.

For 8-year-old Daisy Hader, that’s the experience she has when Stenchever comes to visit.

“Characters and stuffed animals are Daisy’s world,” said Lolly Hader, Daisy’s mother. “Meeting the princesses in real life connects her two worlds together – fairy tales and reality. It’s truly magical for her.” Read full post »

Meet Noelia, The Artist Who Designed Kasey Kahne’s Newest No. 5 Race Car

Noelia 1What is covered in spots, red and blue stripes, has a skyline and a music scale? The answer: Kasey Kahne’s newest No. 5 race car. This July at Daytona International Speedway, Kahne will drive the Hendrick Motorsports No. 5 Great Clips Chevrolet SS with a very special paint scheme that’s guaranteed to turn a few heads. But, what makes the car truly unique is the fact that it was designed by 8-year-old Noelia Gutierrez, a cancer patient at Seattle Children’s.

Noelia’s car design was inspired by all her favorite things – Barcelona FC soccer team, jaguars, singing and Seattle’s iconic skyline.

Her hope is that all of her favorite things will inspire Kahne as he races to reach the checkered flag. Read full post »

One Mom’s Journey Inspires Her to Build a Community for Kids and Families Affected by Pediatric Stroke

Addison

Addison, 3, suffered a stroke at birth.

Words can hit like a ton of bricks. For Kaysee Hyatt, it was four words that hit her so hard her world momentarily stopped.

At the start of a weekend camping trip with her family, she received a call from her doctor with the results of her daughter’s magnetic resonance imaging (MRI), “It was a stroke.” The world faded before Hyatt and the isolation of such a diagnosis set in, not only for her, but for her baby girl, Addison.

Before that moment, Hyatt had never heard of pediatric stroke, but as she would find out, it was not that uncommon. Approximately one in 2,000 newborns have a stroke each year. For children age 1 to 18, stroke occurs in about 1 out of every 20,000. Addison suffered her stroke during birth.

Addison’s family noticed something was wrong in her first few months of life; her mobility was limited and she completely favored her right side. When she was 6 months old, they received the diagnosis that explained why.

Stroke happens when blood that carries oxygen stops flowing to the brain. Within minutes, brain cells can begin to die, which can lead to stroke symptoms and can sometimes cause neurological issues or death. Read full post »

Group of Eighth-Grade Girls Raise Money and Awareness for Mental Health

IFG

A group of seventh-grade girls formed the Island Friends Junior Guild.

In March 2015, a group of seventh-grade girls from Mercer Island came up with the idea of starting a guild to support Seattle Children’s, the Island Friends Junior Guild. They banded together and picked a cause they rarely hear their peers talk about, but believe could use a little more support: mental health.

In honor of Mental Health Awareness Month, members of the Island Friends Junior Guild are sharing their story to help inspire others to end the stigma around mental health and raise awareness for Seattle Children’s Psychiatry and Behavioral Medicine Unit (PBMU).

“The PBMU doesn’t get much attention,” said Tara Manhas, an Island Friends Junior Guild member. “Mental health isn’t really seen as a positive thing. There’s a negative stigma around it. We want to change that.”

Seattle Children’s Hospital Guild Association is the largest all-volunteer fundraising network for any hospital in the nation. In total, there are 450 different guilds that raise money for the hospital, and out of all 450 guilds, one exclusively supports the PBMU. Read full post »

Miss Seattle Gives Back to the Hospital That Saved Her Life

Miss Seattle - Baby

Posey-Grager signs a children’s book for a young patient.

The halls of Seattle Children’s Hospital are a familiar place to Joell Posey-Grager, Miss Seattle 2016, and her family. Now 24, before she was wearing crowns and singing to audiences, she was a patient at Seattle Children’s.

Recently, she returned to the hospital not as a patient, but as a visitor to help brighten the day for other patients like her. With a little help from two very special guests, RJ Mitte, from the popular television show “Breaking Bad”, and Romi Dames, from Disney’s “Hannah Montana,” that’s exactly what they did.

Posey-Grager has always wanted to give back to the hospital that saved her life. Like the patients she visited in the inpatient playroom at Seattle Children’s, she understands the challenges of being in the hospital as a child so what better way to spread cheer than with a glittering crown and a story of hope. Read full post »