In honor of Congenital Heart Defect (CHD) Awareness Week, 26-year-old Kami Sutton wanted to share her journey that began at Seattle Children’s the day she was born.
26-year-old Kami Sutton
Seattle Children’s is my home. From the previously trademark blue bubble letters, the giraffes (which were recently replaced in the remodel), trains and Mickey Mouse – it is home. It is full of the people who I have trusted with my life since before I can even remember.
I was transferred to Seattle Children’s from a local hospital on Sept. 21, 1988, at only four hours old after being delivered via emergency C-section. I was blue and unable to breathe on my own. My parents were told I most likely would not survive the 30 minute trip down I-5 to the hospital. Read full post »
Julie Kobayashi, 12, traveled from Hawaii to Seattle Children’s for her heart transplant.
Children who need a heart transplant face a frightening waiting game before a donor heart becomes available. They must live with a failing heart for months, or even years, as clinicians strive to keep them healthy enough for transplant. Nationally, these patients face the highest waiting list mortality in solid-organ transplantation medicine, with 17% of children dying while waiting for a heart transplant.
Thankfully, Seattle Children’s has one of the best waitlist mortality rates among pediatric heart transplant centers, as reported to the United Network of Organ Sharing. The hospital also treats some of the region’s most complex, advanced heart disease and heart transplant cases and has one of the highest 3-year patient survival rates in the country.
“We are proud to be ranked among the best pediatric heart transplant centers in the country,” said Dr. Yuk Law, medical director of the Cardiac Transplant/Heart Failure Service at Seattle Children’s. “We have created a team of skilled experts who have dedicated their careers to treating heart failure and transplant cases.” Read full post »
Dudzik and Paddy visit with Joey at Seattle Children’s.
At Seattle Children’s Hospital healing comes in all forms. From music therapy to acupuncture, Seattle Children’s offers many services to comfort children while they are inpatient at the hospital. One of those forms even includes a wagging tail, wet snout and big brown eyes.
Christi Dudzik and Paddy, her 5-year-old yellow Labrador, are one of 12 dog teams at Seattle Children’s that provide comfort to patients and families through its animal-assisted activities program. Dudzik, who has been training pet therapy dogs for more than 20 years, says there’s no better place to be than with Paddy walking through the halls of Seattle Children’s. Read full post »
Like many Seattle natives, 22-year-old Kevin Mick is a passionate Seahawks fan. Despite now living in Alma, Ark., Mick said the Hawks will always be his team, not just for their athletic talents, but for their actions off the field as well.
“The fact that Russell Wilson takes the time to visit patients every week at Seattle Children’s is amazing,” Mick said. “I know first-hand how much these special visits mean to a sick child.”
Growing up at Seattle Children’s
Kevin Mick grew up in Seattle as a dedicated Seahawks fan. Today, he says “Thank you” to Russell Wilson for supporting patients at Seattle Children’s.
Mick was a patient at Seattle Children’s for the first 12 years of his life after being born a conjoined twin.
In June of 1992, Mick’s parents, Rex and Debra, were living in Kirkland and found out Debra was pregnant. At a seven-week ultrasound, the parents learned they were having twins after doctors heard two heartbeats. Two months later, they learned their two sons were conjoined at their abdomens. Read full post »
Patients, families and staff gathered together at the hospital main campus today to raise the 12th Man flag and cheer on the Seattle Seahawks.
Seattle Children’s has received incredible support from the Seattle Seahawks. Not only does quarterback Russell Wilson make weekly visits to our patients and families, but many other Seahawk players, the Sea Gals and even the Seahawks’ mascot Blitz have spread joy throughout the hospital!
To celebrate the Seahawks’ return to the Super Bowl, Seattle Children’s patients, families and hospital staff showed their Seahawks pride today by coming together in their brightest and bluest attire and raising the 12th Man Flag outside the hospital’s main campus.
“We got to meet Russell and many of the other Seahawks over Christmas,” said Katie O’Day. Her 7-year-old daughter Kennedy is currently receiving cancer treatment at Seattle Children’s and helped raise the 12th Man flag today. “One player even hung out and played video games with her for a half hour! It’s was so amazing that they took the time to brighten up her day. It made coming in for chemotherapy much easier!” Read full post »
Jennifer Bevaart’s son William was diagnosed with Kawasaki disease in September, 2014.
In honor of National Kawasaki Disease Awareness Day, we are sharing the story of William, a 10-year-old boy who lives with the disease, and why Seattle Children’s, an international leader in Kawasaki disease research, is the best place for children like William to receive treatment.
In September, Jennifer Bevaart’s son William developed a fever that lasted for days. He was lethargic, had a rash on his chest and his eyes were bloodshot. Over the next two weeks, Bevaart took William to at least four different specialists, each of whom suggested a different diagnosis: a sinus infection, walking pneumonia, bronchitis, even scarlet fever. Each treatment failed to ease William’s symptoms. He went from an active, tae kwon do enthusiast to a weak boy who was too weak to walk even the short distance to the mailbox without lying down to rest.
“Call it mother’s intuition, but I just knew something was very wrong with my son,” Bevaart said. “I felt like I was watching him die.” Read full post »
Russell Wilson visits patients and their families at Seattle Children’s each Tuesday.
Each Tuesday, the hospital is decked out in blue and the halls are buzzing with excitement as Russell Wilson stops by to visit with our patients. In this blog, Russell shares why he is so dedicated to supporting the families at Seattle Children’s.
Sunday is game day for me, but my best day is Tuesday when I visit Seattle Children’s. All the amazing opportunities I’ve had on the field can’t compare to helping kids whose lives are on the line.
I started volunteering a couple of years ago. I’m humbled by the courage of the patients and families I meet and proud to witness the amazing work of the nurses and doctors who care for them.
Hospitals aren’t scary for me. I spent a lot of time visiting my dad in one before complications from diabetes took his life in 2010. He was only 55 years old. His experiences helped me better understand the unique challenges that hospitalized children and their families face. Their strength has been an inspiration to me. Read full post »
Now that the halls have been decked and the most wonderful time of the year is over, Dr. Jim Hendricks, president of Seattle Children’s Research Institute, took down the holiday tinsel from his work station and spent a moment reflecting on the research institute’s greatest accomplishments of 2014.
There were so many exciting developments over the past year that it’s impossible to fit them all in one short list, but here are some outstanding achievements that come to mind.
- Our investigators had an incredibly successful year when it comes to funding, including government, nonprofit and industry sources. Our total funding increased from $76 million in fiscal year 2013 to nearly $92 million in fiscal year 2014, which represents a 21% increase. This success is a testament to the talent of our investigators considering that the competition for federal grants has increased steadily as the available federal funding has decreased. This funding will help us get closer to finding more treatments and cures for pediatric diseases.
- We continued our first T cell cancer immunotherapy clinical trial this year and opened enrollment for two additional trials. This ground-breaking therapy reprograms the body’s infection-fighting T cells to find and destroy cancer cells with minimal side effects. While our first trial, PLAT-01, continues treating patients with relapsed leukemia, a second trial treating leukemia patients with T cell immunotherapy has had great success thus far. Additionally, a new trial opened in November to treat neuroblastoma using immunotherapy.
Read full post »
As we head into the New Year, we’d like to reflect on some of the incredible clinical advancements of 2014 that show how our doctors have gone the extra mile for our patients.
In the Children’s HealthLink Special video above, watch how futuristic medicine has saved the lives of the littlest patients at Seattle Children’s. From 3D-printed heart models to liquid ventilation, doctors and families reveal the amazing benefits of innovative treatments that challenge the status quo. Read full post »
In honor of the New Year, we’re taking a look back at some of our most popular and memorable blog posts from 2014. Below is a list of our top 10 posts. Here’s to another great year of health news to come. Happy New Year!
Lung Liquid Similar to One Used in Movie “The Abyss” Saves Infant’s Life, Doctors Encourage FDA Approval of Clinical Trials
Two doctors at Seattle Children’s went the extra mile to save Tatiana, one of the sickest babies they’ve ever seen. They got FDA approval to use a long-forgotten drug and are now inspired to help make this drug available to save more lives.
Visit with Macklemore Helps 6-Year-Old Heart Patient Recover
AJ Hwangbo was a happy-go-lucky 6-year-old without a worry in the world until mid-November when he developed a life-threatening heart condition. While specialists at Seattle Children’s Hospital helped AJ heal physically, the young boy struggled to bounce back emotionally. But, AJ’s joyful spirit returned after hospital staff arranged for him to meet his hero – local artist Macklemore. Read full post »