‘Like Looking at a Miracle’: Baby Blossoms Thanks to Gene Therapy

When Arabella Smygov was diagnosed with spinal muscular atrophy (SMA) type 1 at 3 months old, the first recommendation Dr. Fawn Leigh, a neurologist at Seattle Children’s, gave her parents, Sarah and Vitaliy, was to wait on searching for information about SMA online. This is because up until a few years ago, SMA type 1 […]

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Cutting to Cope: What is Nonsuicidal Self-Injury?

Today, nearly one in five children has a mental, emotional, or behavioral disorder. While some seek relief from their distress using positive coping methods, others may choose methods that are harmful and potentially life-threatening. Dr. Yolanda Evans, an adolescent medicine specialist at Seattle Children’s, has been seeing a recent increase in teens coming into the […]

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Charlotte’s Journey to Transplant

Janessa Felt watched helplessly as her 2-year-old daughter’s sunny disposition began to fade away. Charlotte’s bright smile and infectious laugh usually hid her struggle well, but that façade was cracking. Charlotte was getting sicker, which was evident by her yellow skin, the silver highlights in her hair and her large distended belly. Her piercing blue […]

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Care Close to Home Gives Carson Ability to Pursue Her Creativity

Creativity is at the center of 11-year-old Carson Bryant’s life. “I would describe her as being imaginative,” her mother, Andrea Bryant, said. “She has a love for theater and dreams of being an illustrator someday.” In January 2018, Carson had to put her creative passions aside when she began experiencing symptoms that sparked concern for […]

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Madeline Pursues New Dream After Overcoming Cancer Four Times

When Madeline Boese was 14, she had visions of pointe shoes, tutus and sugar plums dancing in her head. She dreamed of becoming a professional ballerina, and hoped for a future in the spotlight doing what she loved. Unfortunately, her body had different plans. One day in ballet class in December 2006, she noticed an […]

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Researchers Ready B Cells for Novel Cell Therapy

Scientists at Seattle Children’s Research Institute are paving the way to use gene-edited B cells – a type of white blood cell in the immune system – to treat a wide range of potential diseases that affect children, including hemophilia and other protein deficiency disorders, autoimmune diseases, and infectious diseases. If successful, their research would […]

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