Liver transplant unlocks new life for girl with propionic acidemia

In a northern California suburb in 1999, Kaitlin Burns was born very sick, that much was certain. She was extremely lethargic, vomited non-stop and soon wouldn’t eat anything. When her family finally received a diagnosis two weeks after her birth, the news was devastating. Kaitlin was diagnosed with propionic acidemia, a rare, inherited metabolic disorder that affects […]

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‘The Ultimate Gift’ | Young Girl Flourishing After Receiving Life-Saving Transplant

After receiving a life-saving liver transplant at Seattle Children’s, 4-year-old Ruby Josephine Mwamba is thriving and living a dramatically different life than she was at this time last year. Ruby was born with biliary atresia, a liver condition that occurs when a baby’s bile ducts do not form normally and are unable drain bile. Bile […]

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“We’re Not Just Transplanting Organs, We’re Transplanting Lives”

Having one child in need of a liver transplant can be tremendously challenging for a parent. Eugenia and Justino Hurtado have four. All four of the Hurtado children were born with Maple Syrup Urine Disease (MSUD) — a rare genetic metabolic disorder in which the body is unable to break down certain parts of proteins […]

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Achieving Racial Equity in Transplants: Seattle Children’s Dr. Evelyn Hsu’s Mission

Seattle Children’s recently named Dr. Evelyn Hsu the division chief of Gastroenterology and Hepatology. For more than a year, Hsu was the acting chief while a national search was conducted. In this interview, Dr. Hsu talks about her extensive medical career, her vision for the future and what hope, care and cures mean to her. […]

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Charlotte’s Journey to Transplant

Janessa Felt watched helplessly as her 2-year-old daughter’s sunny disposition began to fade away. Charlotte’s bright smile and infectious laugh usually hid her struggle well, but that façade was cracking. Charlotte was getting sicker, which was evident by her yellow skin, the silver highlights in her hair and her large distended belly. Her piercing blue […]

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Dying Baby’s Path to Lifesaving Transplant Sheds Light on Disparities in Pediatric Organ Donation

Picturing her daughter making it to her first birthday was difficult for Rachael Rowe as she watched her baby struggle to survive each passing day waiting for a liver transplant. Time officially took its toll on Feb. 6, 2018 — four months after 10-month-old Raylee was put on the transplant waiting list. “I remember it […]

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