Seattle Children’s doctors and researchers are leading efforts to better treat cancer in children, adolescents and young adults by boosting the immune system with T-cell immunotherapy. Patients who cannot be cured with standard therapies are benefiting from clinical trials developed at the Ben Towne Center for Childhood Cancer Research, and supported by Strong Against Cancer.
One of these patients is Aaron. When he feared he might be out of treatment options, Aaron found hope at Seattle Children’s. Now, he shares his story.
Cancer is such an ugly word. On the internet, it has become normal for people to use it to describe things, ideas or people they don’t like. But for me, that word only brings back painful memories of fighting a disease I would not wish on my worst enemies.
I was first diagnosed with acute lymphoblastic leukemia in January 2013. I was 19 years old, living in Vancouver, Canada, and studying computer science at Simon Fraser University.
I became suddenly ill while on a cruise vacation with my family. I had a fever that wouldn’t go away; nausea for no reason; and extreme fatigue. I needed to sleep all the time. I could barely walk. Climbing a flight of stairs felt like trying to climb Mount Everest.
We knew something was very wrong, so my family took me to the Emergency Department at Vancouver General Hospital.
I still remember lying on the hospital bed after the doctor delivered the bad news — I had leukemia. I couldn’t believe it. I asked the nurse as he was putting in my IV, “How long do you think it’ll take before I get better?”
He replied, “My friend, I’m afraid this is just the beginning of a long and difficult journey for you.”