Thanks to the Chronic Recurrent Multifocal Osteomyelitis (CRMO) Program at Seattle Children’s, a family found answers and treatment for their son’s pain. Now that the symptoms associated with the disease are under control, Seth Maharry is able to focus on doing things he loves most— like playing guitar.

From an early age, Seth Maharry has been an active kid. He started playing soccer at age 4, joined Little League at 5 and by the time he was 9, Seth earned a spot on a club team in Portland, Oregon where he played soccer year-round. During one of those tournaments, Seth started to complain about the pain in his hip.

“We figured he’d just been playing soccer all weekend,” said his mom Nora. “We saw the physical therapist and they said everything was fine, but it continued to get worse and worse.”

Seth’s parents decided to take Seth to the doctor but were told it was just growing pains, though it was clear to Nora that this was something far more serious.

“That was our battle for a year and a half,” Nora explained. “My heart just ached because I knew what we were being told was not right.”

Read full post »