My two-year-old son Malachi is a medically-complex Seattle Children’s kiddo and a “frequent flyer” here at the hospital. We visit the hospital often—for clinic appointments, routine procedures, sicknesses and medical emergencies. Malachi was diagnosed with Spina Bifida before he was born. He had several lifesaving operations in his first few months with us including spine and brain surgeries on his first two days of life.

Moving to get the care we needed

Malachi, his dad, and I currently live in Auburn, Wash., however we didn’t always live in Auburn. We moved from Yakima to be closer to the care Malachi needs. After two emergency air flights in two weeks just after Malachi’s first birthday, we made the decision to relocate to Auburn.

Like most parents who have medically complex kids, we were kind of pros at social distancing even before COVID-19.

As the parent of a medically complex kiddo, the current pandemic is especially concerning. We were especially cautious early this spring as news of the impact of the virus began to spread. We went into complete isolation—no one in or out of our home—on March 12. Like many parents in our situation, my husband and I were intent on doing everything possible to avoid a hospital admission. We both began working from home. We cancelled all clinic appointments and, instead, opted for telemedicine appointments with my son’s providers. Telemedicine has been so incredibly helpful for us but some things demand in-person care.

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