Finding out your child will be born with a cleft lip and palate can be unexpected and distressing for many families. Plagued with questions, parents may wonder if their child will be able to thrive, have speech issues, or what their smile will look like. Dr. Craig Birgfeld, a craniofacial plastic surgeon at Seattle Children’s, enjoys being able to ease a family’s anxiety. At Seattle Children’s, he knows these families are in good hands.
“When patients come to see us they become part of our family,” said Birgfeld. “To me, the best part of our job is seeing these kids grow up and be completely normal kids. It’s hard to remember them as a baby with a cleft. That’s the true test, and one of the reasons we do what we do.” Read full post »
Photo credit: West2East
Cheerful caroling could be heard through the halls of Seattle Children’s today thanks to two very special guests, Ciara and her friend Kelly Rowland. They surprised patients and families in the inpatient playroom with a holiday concert, accompanied by guitarist Barry Black. But that wasn’t the only surprise they had in store for kids at the hospital. The GRAMMY winners teamed up with Amazon and brought holiday cheer to patients and families in another very big way – with one of the largest Amazon deliveries of the year – a six-foot tall Amazon gift box filled with Amazon Fire HD 7s and Amazon Fire HD 8s for patients at Seattle Children’s.
“Caroling with the kids was the perfect way to brighten up the holidays at the hospital and surprising patients with gifts made it very special,” said Ciara. Read full post »
Ben, 19 months old, shows off his Stormtrooper prosthesis.
With every step 19-month-old Benajmin (Ben) Bronske takes, a legion of Stormtroopers lead his way.
Born into a family of avid Star Wars fans, Ben has become a fan as well. With an infectious smile, while wearing a shirt that says, “I’m a Trooper,” Ben proudly shows off his leg. It was uniquely made just for him – it’s covered in Stormtroopers.
“He’s got a really cool leg and a story to go with it,” said Sarah Bronske, Ben’s mother. Read full post »
Hudson received a portion of his uncle’s liver in July as part of a living donor liver transplant.
Jordan and Morgan Hill carry with them everywhere a custom-made coin inspired by their son’s liver transplant and the man who saved his life.
Morgan had the coin made weeks before his older brother, United States Army Special Operations Command Lt. Col. Trevor Hill, flew to Seattle from his home in North Carolina to donate part of his liver to his 8 ½-month-old nephew, Hudson.
“My brother saved our son’s life,” Morgan said. “Trevor has had what is called a challenge coin throughout his military career. It’s a sign of respect. It’s a symbol of someone’s unit and their life, and I wanted him to have one representing the incredible gift he gave us.” Read full post »
Chad’s Legacy Project has been a driving force behind the first-ever Washington State Mental Health Summit. Laura Crooks (right) and her husband, Todd Crooks, started CLP in honor of their son, Chad Crooks (left), who died tragically months after he was diagnosed with Schizophrenia.
Laura and Todd Crooks have experienced personal devastation from losing a loved one whose mental health issues weren’t properly addressed. Their son Chad took his own life eight months after he was diagnosed with Schizophrenia, on Jan. 21, 2016.
The professional help the gifted 21-year-old college student required wasn’t readily available when he needed it most.
The Crooks have since openly shared their family story in an effort to help others. They also started Chad’s Legacy Project (CLP), an endeavor in memoriam, to advance mental health education and innovations in the evaluation and treatment of mental illness.
CLP is realizing its mission, serving as the driving force behind the first-ever Washington State Mental Health Summit, which will take place on Thursday, Oct. 5. A portion of the more than $100,000 CLP has raised is covering the costs of the Summit.
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Children who participated in the bike train study averaged an additional 21 minutes of exercise per day and increased cycling to school by 45%.
The path to healthier living for children could be the same one they take to school.
Children who participated in adult-supervised group bicycle rides to and from school increased their moderate-to-vigorous physical activity by 21 minutes per day and daily cycling commutes by 45%, according to a pilot study recently published in the American Journal of Preventive Medicine.
The additional exercise study participants gained from riding in the groups, known as bike trains, accounted for 35% of the 60 minutes of physical activity recommended daily for children.
“Regular physical activity can help build muscle and bone strength, raise energy levels, and help reduce the risk of conditions like obesity and heart disease,” said Seattle Children’s researcher Dr. Jason Mendoza, who served as the principal investigator for the study. Read full post »
Emmett Seymer taking steps toward a diagnosis
Life did not start out easily for Emmett Seymer. He and his twin brother, Dashiell, were born at 29 weeks in Allentown, Pennsylvania. Emmett spent the first 30 days of his life on a ventilator because his lungs were underdeveloped. Doctors at the hospital had little optimism for Emmett and told his mother to prepare herself for him to pass away.
After 180 days in the neonatal intensive care unit (NICU), Emmett was able to join his brother at home. Though he had significant difficulty breathing and an inability to swallow normally, he was finally stable enough to get out of the hospital.
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Daisie Losee had a rough introduction to the world. Her mother, Melissa, struggled to deliver her sixth child at an Idaho hospital. During the birth, Daisie suffered two injuries. Her broken right arm was discovered as they changed her clothes for the first time. Doctors tried to put a splint on her tiny bone, but the break between the shoulder and elbow was in such a small area that it was difficult to keep stable. The doctors had to improvise and make a sling that held her fist against her sternum to let the bone heal.
The second injury, brachial plexus, was more mysterious. Neither Cory nor Melissa Losee had heard of that condition. For the first month after Daisie’s birth, she had no movement in her left arm and hand. The Losees saw five different doctors at the hospital in the first seven days of Daisie’s life. None of them talked about the injury to the left arm and the Losees were unsure what was happening with their newborn daughter.
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Independence Day is soon, and families are busy planning for fun that may include celebrating with fireworks, a day at the beach or a barbecue. Dr. Tony Woodward, medical director of emergency medicine at Seattle Children’s Hospital, urges families to choose safe options for a fun holiday. Read full post »
Hamilton McNamee enjoys a snack.
From his appearance alone, 3-year-old Hamilton McNamee looks like a typical kid. He is rambunctious and playful with strawberry blonde hair and a mischievous smile.
As he climbs on the tables and chairs in Starbucks at Seattle Children’s Hospital, his mother Claire casually states, “He’s going to wander around a little. It’s fine.”
What’s different about Hammie, as his family affectionately refers to him, is that he has a condition known as tuberous sclerosis complex (TSC), a rare genetic disease that causes tumors to grow in various parts of the body, including the brain and other vital organs. Though the tumors are benign (which means they aren’t cancerous), they impact a child’s development in a variety of ways depending on where they grow and how big they get.
At age 2, Hammie experienced some seizure-like behavior after a bout with hand, foot and mouth disease. His primary care provider referred Hammie to Seattle Children’s First Seizure Clinic where tests revealed that he had growths in his brain and he was diagnosed with TSC.
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