The Pintuff family
When Aidan Pintuff was 4 years-old, he awoke to find the right side of his jaw swollen, red and very sore. Living in Virginia at the time, Aidan’s parents took him to the emergency room where he was given antibiotics. The swelling and pain went away and the family moved on, but they had no definitive answer on what caused the condition.
As Aidan grew up, symptoms would flare up from time to time, particularly if he was hit in the face. Their local doctor had initially diagnosed him with cellulitis. Aidan continued to live his life as a young boy, doing all the things that an active child would do like wrestle with his brother, play sports and participate in the boy scouts.
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Jay waits for his appointment at Seattle Children’s Gender Clinic
Sitting unassumingly on the exam table, Jay’s feet dangle above the floor and his hands are folded in his lap. He displays a warm smile when asked how he’s doing. His mother, Cynthia, looks at her son with an overt sense of pride and the type of love that needs no words to express its presence.
Jay is awaiting the arrival of the Gender Clinic care team and as his appointment draws near, he talks about what life is like as a 10th grader in the Seattle area and his hopes for his future. As his father and brother before him, Jay wants to go into the armed services. His particular branch of interest is the Air Force and he wants to go through officer training at West Point.
Assigned female at birth, Jay also talks about his desire to fully transition to the male gender that he has identified with since he was a baby and the challenges that it presents, especially at his young age.
Cynthia, a cancer survivor herself, knows all about taking on challenges. Her experience as a patient taught her about the medical system.
“I know how important it is to be your own advocate,” she said. “I am so proud of Jay for his bravery in being his own advocate and taking control of his own medical decisions.”
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Alexis, a 7 year-old vascular anomalies patient from Indiana
By the time Alexis Stringer was 7 years-old, she had already undergone a lifetime’s worth of medical procedures; 47 of them to be precise.
Alexis was born with purple areas on her face and neck. At first, doctors thought it was due to birth trauma. But over time, when Alexis was 7 weeks old, doctors determined she instead had a series of blood and lymph vessels that were not developing properly, which are known as vascular anomalies.
The traditional treatment for this disfiguring condition meant that Alexis underwent a procedure called sclerotherapy where chemicals are repeatedly injected into the veins to make them shrink. The procedure can be painful and has to be performed several times under general anesthesia. In addition to the risks associated with repeated anesthesia, sclerotherapy came with additional risks as the high dose of the substance injected has the potential to destroy healthy tissue and even stop one’s heart.
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With increasing frequency, stories of opioid overdoses are making headlines, with tragedies striking people from all walks of life. The Centers for Disease Control and Prevention declares that the United States is in the midst of an opioid overdose epidemic, and says that every day, over 1,000 people are treated in emergency departments for misusing prescription opioids.
Amid the growing epidemic of opioid abuse among adults, parents are increasingly showing concern when their teens are prescribed opioids after procedures such as wisdom tooth removal or surgery for a sports injury. Dr. Gary Walco, director of Pain Medicine at Seattle Children’s, helps parents and teens understand the important role that opioids can play in managing pain, and also teaches healthcare providers in training about the importance of safe prescribing practices. Read full post »
Seattle Children’s recently became the nation’s first hospital campus to earn Salmon-Safe certification. The planning and work from staff like groundskeeper Meghan Fuller aims to reduce the campus’s impact on the surrounding land and aquatic plant and animal life.
Seattle Children’s philosophy on sustainability is centered around its mission to help every child live the healthiest and most fulfilling life possible.
“When we do good things for the planet, we help take care of our patients and all children,” said Colleen Groll, Seattle Children’s manager of sustainability programs. “Children are one of the most affected populations by climate change and pollution, so it’s really important that we are a leader in reducing our impact on the environment.”
That organizational mindset and Seattle Children’s longstanding commitment to the environment recently inspired it to achieve certification as the nation’s first Salmon-Safe hospital campus. The distinction is attained by meeting peer-reviewed criteria and performance standards that demonstrate environmental stewardship in areas that directly impact the urban watershed. This includes minimizing impacts of development on sensitive aquatic and land resources; and protecting downstream water quality through landscape management practices, habitat restoration and facility performance—like waste reduction and responsible water use.
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There are a lot of ways to describe it: soft, hard, brown, green, runny and stinky. It’s a messy topic often discussed behind closed doors, but today, we’re breaking down what you need to know about poop – from its color, consistency and frequency, to what to do when a child is backed up.
According to Dr. Mollie Grow, a pediatrician at Seattle Children’s and the University of Washington, it can be challenging for some families to be open about the body’s natural process of elimination. In other words, it can be hard to talk about poop. There’s often embarrassment talking about the subject when there shouldn’t be.
“As pediatricians, we get really comfortable talking about poop,” said Grow. “We try to normalize the conversation with patients and families.” Read full post »
March is the month to spring forward with daylight saving time, enjoy the college basketball tournament and renew efforts to prevent poisonings through National Poison Prevention Week. Last March, Dr. Suzan Mazor, medical director of Toxicology at Seattle Children’s, gave advice for how to give and store medicines safely. This year, she’s sharing information on how to prevent childhood poisonings from a newer product – liquid nicotine used in electronic cigarettes, or e-cigs.
E-cigs and other Electronic Nicotine Delivery Systems became available in the U.S. about 10 years ago, and with their arrival came a growing number of calls to poison centers related to nicotine exposures in children. Read full post »
Young pitchers can avoid throwing injuries by following some simple guidelines.
According to The American Journal of Sports Medicine, more than 15 million people will be playing baseball and softball this spring and summer, nearly 5.7 million of which are children in eighth grade or lower. Dr. Michael Saper, an orthopedic surgeon and sports medicine specialist at Seattle Children’s, has some useful information about how young players can avoid arm injuries.
Before joining Seattle Children’s, Saper trained under Dr. James Andrews, a renowned orthopedic surgeon who has treated many professional athletes, including hall of fame pitchers Nolan Ryan and John Smoltz. It was in working with Andrews that Saper developed his passion and expertise for the treatment and prevention of throwing elbow and shoulder issues.
Saper noticed injuries that were common in high-level athletes occurring in younger athletes and realized that education about how to stay healthy is just as important as treating the patient after a serious arm injury occurs.
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Nearly 90% of kids in the U.S. consume too much sodium, putting them at risk for high blood pressure in childhood, and heart disease and stroke later in life. While everyone needs a small amount of sodium to help control the fluid balance in the body and allow nerves and muscles work, too much sodium is harmful and is dubbed the ‘silent killer.’
In honor of American Heart Month, On the Pulse asked Kirsten Thompson, a dietitian in Seattle Children’s Pediatric Hypertension program, to provide insight into how kids are consuming so much sodium.
“When I ask patients and families about sodium intake, they often say that they don’t eat too much sodium because they don’t add salt from the salt shaker to the foods they eat,” said Thompson. “They’re often surprised to learn that sodium is actually hidden in a lot of foods that we wouldn’t normally think of as salty.” Read full post »
Danielson was recognized by the Simms/Mann Institute as a recipient of the 2017 Whole Child Award.
Today, Dr. Ben Danielson, senior medical director of Seattle Children’s Odessa Brown Children’s Clinic (OBCC), was honored by the Simms/Mann Institute as a recipient of the Whole Child Award, a national recognition that honors extraordinary leaders in medicine and education. Launched in 2015, the Whole Child Award is given to individuals who are focused on a whole child approach to caring for children and their families.
On the Pulse sat down with Danielson to talk about this achievement and how OBCC, a community clinic located in Seattle’s Central District that provides medical, dental, mental health and nutrition services to families, approaches caring for the whole child. Read full post »