Sam Foster, 19, has struggled with obsessive compulsive disorder for most of his life. At first he felt ashamed of it, until he began expressing himself through music and underwent intensive treatment at Seattle Children’s. Photo credit: Christopher Nelson
When Sam Foster steps onstage, guitar in hand, he lights up the room with his confident presence.
Yet behind his poised demeanor is a painful truth that begins to unravel as he lets his lyrics flow through the microphone.
According to the National Institute of Mental Health, OCD is a common, chronic and long-lasting disorder. It occurs when a person has uncontrollable, reoccurring thoughts, known as obsessions, and behaviors that they feel the urge to repeat over and over, known as compulsions.
In response to the social stigma that often surrounds mental health disorders, Sam initially felt ashamed of having OCD. That was, until he began expressing himself through writing music and eventually got the treatment he desperately needed.
Julie Munko tried to manage her daughter Annie’s anxiety on her own until she found a therapeutic program at Seattle Children’s that dramatically improved their lives.
Imagine if you had a child who cried themselves to sleep at night because they had no friends; who called themselves “horrible” and drew disparaging images of themselves in their journal; who suffered physical pain when they wore clothes or gave you a hug.
This was once the reality for Julie Munko and her daughter Annie, who suffered from an anxiety disorder. But today, their lives are completely different, thanks to skill-based therapy at Seattle Children’s that pushed Annie outside of her comfort zone.
Crawling out of her skin
Munko first noticed Annie’s anxious behavior in fourth grade. Annie desperately avoided the school library and cried at night if she had to go there the following day. She no longer wanted to sleep over with friends or go to parties.
By fifth grade, it began affecting her school life. Annie became distressed if she unexpectedly had a substitute teacher. She ran out of the classroom if her computer was not working properly. Annie was an excellent student but panicked if her teacher’s instructions were unclear or if she was having trouble with an assignment.
April Merrill is a 6-year-old who loves to sing and dance. Yet, her struggle with an anxiety disorder called selective mutism hinders her ability to do the activities that showcase her vibrant and joyful personality.
“Her voice disappears, as April describes it,” said Kelly Merrill, April’s mother. “She said that she wants to talk but can’t seem to find her voice.”
As April was growing up, Merrill noticed signs in her daughter that indicated something might be wrong.
“When April started to talk, she could only verbalize 20 or so words,” said Merrill. “She was 2 years old at the time and I noticed she couldn’t expand her vocabulary.”
Emily Talbot, 17, shares her story about her lifelong battle with a rare brain disease and how she has overcome the physical and mental health challenges caused by the condition through writing and performing music.
Although I look like any other 17-year-old, people don’t know that I live in pain 24 hours a day.
Since the age of 7, I have had 14 brain surgeries, 12 back surgeries and 6 stomach surgeries. I can’t begin to count how many spinal taps I’ve had.
May 29, 2018 | Mental Health, Patient CareComments Off on Seattle Children’s Reaches Beyond Its Walls to Improve Mental Health Care for Kids in the Community and Across the Region
There is a tremendous need for improved access to mental health care and resources for children and teens nationwide.
At Seattle Children’s, its commitment to helping address this need spans not only within the Seattle community, but throughout the region.
According to the U.S. Centers for Disease Control and Prevention, nearly 1 in 5 children have a mental, emotional, or behavioral disorder, such as anxiety or depression, attention-deficit/hyperactivity disorder, disruptive behavior disorder, and Tourette syndrome.
While early intervention is key in managing mental health issues, only about 20% of children with disorders receive care from a specialized mental health care provider.
That’s why Seattle Children’s is continuously working to enhance access to mental health services, promote education and research, and advocate for families affected by mental illness.
The following describes three of the many innovative programs and initiatives that Seattle Children’s offers to help improve mental health care for all children.
Brendan Bittinger, 9, was diagnosed with autism spectrum disorder using a team evaluation model developed at the Seattle Children’s Autism Center.
Some say ‘it takes a village to raise a child.’ At Seattle Children’s Autism Center, this concept came to life to a certain degree through the development of a collaborative method for diagnosing autism in children that aimed to improve the diagnostic process and increase efficiency, with the potential of leading to better patient outcomes.
Linda Bittinger’s 9-year-old son Brendan found his ‘village’ at the Autism Center in June 2017 when a team made up of providers from different disciplines came together for a thoughtful diagnostic evaluation that would shape his treatment path to progress.
“When we received his diagnosis, I felt a sense of optimism,” said Bittinger. “I had less worries knowing there were opportunities for treatment. And since then, he’s made tremendous strides.”
John Madden, now 22 years old, has referred to his stay as a teenager in the Seattle Children’s Psychiatric and Behavioral Medicine Unit as the 10 most important days of his life.
When John Madden was 16 years old, the growing stress from his demanding academic schedule became a catalyst for larger issues.
Madden had withdrawn from friends and family. His misuse of prescription medication and use of illicit drugs to cope with the stress further aggravated undiagnosed mental conditions. Bouts of depression and mania sometimes left him sleepless for days with little control over his thoughts and actions.
“I had this Hollywood view of treatment and thought it was going to jump from talking to being restraint-oriented, locked in a room and treated sub-human,” Madden said. “I wanted to avoid that stigma about what goes on in mental health hospitals.”
As an adolescent medicine specialist, I help teens manage a wide range of eating habits, many of which can negatively impact their overall health and development. For example, I often hear teens say they’re skipping breakfast or trying to diet. Some have very rigid rules around food that alarmingly result in their bodies showing signs of starvation. Although these symptoms can rarely point to a severe eating disorder like anorexia and bulimia nervosa, when these disorders do take hold they can be life altering.
I recently watched a film on Netflix called “To the Bone,” which illustrated an example of one person’s struggle to recover from anorexia. Despite its dramatic portrayal for cinematic purposes, I was impressed with the truthful depiction of the emotional experiences the main character faced with her eating disorder.
Eating disorders affect about 0.5% of the population, but symptoms often start during the teen years. Complications of eating disorders can be severe and include shifts in electrolytes (like potassium, chloride and glucose), diminished hormone levels (estrogen and testosterone), decreased bone strength, poor concentration, and death.
Chad’s Legacy Project has been a driving force behind the first-ever Washington State Mental Health Summit. Laura Crooks (right) and her husband, Todd Crooks, started CLP in honor of their son, Chad Crooks (left), who died tragically months after he was diagnosed with Schizophrenia.
Laura and Todd Crooks have experienced personal devastation from losing a loved one whose mental health issues weren’t properly addressed. Their son Chad took his own life eight months after he was diagnosed with Schizophrenia, on Jan. 21, 2016.
The professional help the gifted 21-year-old college student required wasn’t readily available when he needed it most.
CLP is realizing its mission, serving as the driving force behind the first-ever Washington State Mental Health Summit, which will take place on Thursday, Oct. 5. A portion of the more than $100,000 CLP has raised is covering the costs of the Summit.
Anxiety is a natural response that alerts people to situations that they find threatening. Anxious feelings are a part of life for kids, teens and adults, but when anxiety is severe, frequent and lasts for months, it requires professional treatment. Dr. Kendra Read, attending psychologist on Seattle Children’s Psychiatry and Behavioral Medicine team, works with kids and teens with anxiety disorders, helping them identify their anxiety triggers and learn how to control their worries and fears.
“Research shows that once anxiety becomes problematic, most kids do not just grow out of it,” said Read. “In fact, left untreated, anxiety can result in problematic long-term consequences that impact academic achievement, employment, substance use, and development of additional psychological disorders, such as depression.” Read full post »
Seattle Children's complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.