Lillee Haynes, 4, surrounded by her three older brothers.
When 4-year-old Lillee Haynes runs through the doors of Seattle Children’s South Clinic for her speech therapy appointment and heads straight for a table covered in crayons, it’s hard to imagine that nearly two years ago she faced hundreds of epileptic seizures each day.
“Her seizures happened so often that I installed a camera above her bed to record any she had at night,” said Aimee Haynes, Lillee’s mom. “One night the camera recorded 200 movements. I was shocked to see how many seizures disrupted her sleep.”
Lillee’s brain didn’t rest until she underwent not one, but two neurosurgeries at Seattle Children’s to remove the diseased area of her left brain, allowing her healthy brain to grow and develop.
“You could say Lillee is most definitely right-brain dominant,” laughed Haynes. “That might explain why she has such a spicy personality.” Read full post »
“My brother saved our son’s life,” Morgan said. “Trevor has had what is called a challenge coin throughout his military career. It’s a sign of respect. It’s a symbol of someone’s unit and their life, and I wanted him to have one representing the incredible gift he gave us.” Read full post »
Grayson, wearing his black and white “Chucks,” weighed 1 pound when he was born. He overcame several life-threatening conditions while in the Seattle Children’s NICU and is now back home with is parents in Idaho.
For Leslie and Jeremy Barnett, Grayson’s black and white Converse Chuck Taylors represent a happy ending to a tough first chapter of life for their son, who weighed just 1 pound when he was born 18 weeks premature last November.
“We were told that Grayson had this Mt. Everest of health challenges to climb,” Leslie Barnett said, recalling a conversation with Seattle Children’s and University of Washington neonatologist Dr. Maneesh Batra when her son was a few days old.
At 7 months old, Spencer Nicholson underwent three surgeries to remove dead tissue from a rare disease he contracted due to a cat scratch.
You’ve probably seen it before: something falls, a loud noise ensues, and a cat with an arched back and poofy tail sprints away.
Unfortunately for 7-month-old Spencer Nicholson, when he loudly pulled a bin off a pantry shelf, the family cat was spooked right in his direction. Spencer fell on the floor and the cat, claws out, ran him over. Spencer was left with a deep scratch on his right cheek.
His mom, Kelsey Nicholson, took Spencer to urgent care near their home in Arlington, Washington, where she received a prescription for antibiotics. But hours later, Spencer’s face started to swell. By that evening, Nicholson was so concerned that she took her baby to the emergency room at her local hospital.
Life did not start out easily for Emmett Seymer. He and his twin brother, Dashiell, were born at 29 weeks in Allentown, Pennsylvania. Emmett spent the first 30 days of his life on a ventilator because his lungs were underdeveloped. Doctors at the hospital had little optimism for Emmett and told his mother to prepare herself for him to pass away.
After 180 days in the neonatal intensive care unit (NICU), Emmett was able to join his brother at home. Though he had significant difficulty breathing and an inability to swallow normally, he was finally stable enough to get out of the hospital.
Daisie Losee had a rough introduction to the world. Her mother, Melissa, struggled to deliver her sixth child at an Idaho hospital. During the birth, Daisie suffered two injuries. Her broken right arm was discovered as they changed her clothes for the first time. Doctors tried to put a splint on her tiny bone, but the break between the shoulder and elbow was in such a small area that it was difficult to keep stable. The doctors had to improvise and make a sling that held her fist against her sternum to let the bone heal.
The second injury, brachial plexus, was more mysterious. Neither Cory nor Melissa Losee had heard of that condition. For the first month after Daisie’s birth, she had no movement in her left arm and hand. The Losees saw five different doctors at the hospital in the first seven days of Daisie’s life. None of them talked about the injury to the left arm and the Losees were unsure what was happening with their newborn daughter.
Josie, with her father, Luis, first came to Seattle Children’s when she was 2 months old.
Josie came to Seattle Children’ Emergency Department when she was 2 months old after acquiring a virus and going into respiratory distress. She was also in the beginning stages of heart failure.
Statistically, she was lucky to have made it that far.
Before birth, Josie was diagnosed with Trisomy 18, a life-threatening condition caused by an extra chromosome that disrupts the typical pattern of development in significant ways. Only about 5 to 10% of children with Trisomy 18 survive beyond their first year of life.
“I didn’t expect her to live that long,” said Josie’s mother, Jenny Castillo. “I hoped we would at least have a few days or weeks with her, and we’ve been thrilled with all the time we’ve had.” Read full post »
Kendall Stark was born with giant omphalocele, a condition where her liver protruded from her body. Now at 14 years old, she is a champion gymnast.
At 14 years old, Kendall Stark’s athleticism shines through her gymnastics medals and trophies that sit proudly on her shelf.
Glancing at this display, it might be hard to believe that the same young girl, who can bend, flip and dismount off the uneven bars eight feet from the ground, was born with a condition where her liver protruded from her body.
Kendall’s mother, Kyra Stark, was just 24 weeks pregnant when she was told by a doctor in her hometown of Billings, Montana, that her baby would be born with a condition called giant omphalocele.
Omphalocele is a type of abdominal wall defect where the intestines or other organs grow outside of the baby’s body and is covered by the layers of the umbilical cord, which forms a sac around them. It can vary in size and babies born with giant omphalocele face the risk of lung disease caused by organs squeezing against the lungs.
Harper Foy was diagnosed with an extremely rare skin condition at birth.
Every routine pregnancy check up had gone well. Angie Foy’s baby had a strong heartbeat, 10 fingers, 10 toes and a cute button nose. There was never any indication something was wrong. So, when the day finally arrived almost a year ago, and Foy started feeling contractions, she and her husband rushed to the hospital feeling excited.
Unfortunately, their excitement soon turned into something else: disbelief.
“We were thrown into a whirlwind,” said Angie Foy.
“I’ll forever remember that moment,” said Foy’s husband, Kevin Foy. “Everything was normal. The doctor told me to get my camera out and take a picture. And then everything just became quiet.”
Ever wonder what it’s like to walk in the ‘shoes’, or rather the ‘paw prints’, of a furry friend? In honor of National Dog Day, On the Pulse is featuring one of the incredible canine and human companion pairs that bring joy and comfort to the hospital each week through Seattle Children’s Visiting Dog Program.
Hank, the 5-year-old, 78-pound Old English sheepdog, may seem like an unlikely visitor strolling through the colorful halls of Seattle Children’s, but he’s there for one important reason — to put as many smiles on the faces of young patients as possible.
The shaggy canine with a slow strut makes his rounds visiting patients in different units of the hospital every other Thursday of the month alongside his trusty human companion, Tom Whalen.
During their visits, the “Tom Hanks” duo carry a celebrity-like status, frequently being stopped in the hallways by patients, parents and staff for a quick pet on the head or simple greeting.
From his calm demeanor, soulful stare and wag of the tail each time he encounters someone, it’s clear that Hank, a registered therapy dog who has been visiting the hospital for two years, is skilled in comforting those that he meets.
Seattle Children's complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.