Philanthropy

Dr. Jane Buckner of the Benaroya Research Institute at Virginia Mason and Dr. David Rawlings of Seattle Children’s Research Institute are leading gene editing research to develop new therapies for autoimmune conditions like type 1 diabetes.

For much of the last decade, Dr. David Rawlings, director of Seattle Children’s Research Institute’s Center for Immunity and Immunotherapies, has dreamed of developing a therapy for children with type 1 diabetes that doesn’t involve insulin injections but uses a person’s own immune cells to target and treat the disease.

Now, new research and a fresh infusion of funding bring this dream closer to reality, and nearer to opening a first-in-human clinical trial of an experimental therapy at Seattle Children’s in collaboration with research partner Benaroya Research Institute at Virginia Mason (BRI).

“What started as a dream is now within reach,” Rawlings said. “My hope is that our research will lead to a new treatment that turns off the destructive immune response leading to development of type 1 diabetes in children.” Read full post »

The Teasley sisters visit Dr. Kathy Sie, who helped them become the successful young women they are today. From left to right: Erika, Alicia, Dr. Sie and Janna.

When Ken and Kathi Teasley learned their two oldest daughters were deaf, they feared it would hold them back. Instead, Seattle Children’s providers taught the girls to live without limits and use their experience as people who are deaf and hard of hearing to help others.

Now in their 20s, all three of the Teasley sisters volunteer or work at Seattle Children’s. Read full post »

Shanghai Children’s Medical Center donates masks to Seattle Children’s.

When Seattle Children’s posted on social media asking followers to consider donating any unopened masks in light of a global manufacturing shortage and the impact of the novel coronavirus 2019 (COVID-19), the community responded in a big way.

In one week, community members near and far rallied to donate more than 17,000 masks and these numbers are expected to increase with more donations in the coming weeks.

“We were overwhelmed by the rapid and extensive response by our community,” said Aileen Kelly, executive director of Seattle Children’s Guild Association. “In times like these, it is heartwarming to see people come together to serve the greater good. We are very appreciative of this generosity and it’s not lost on us how a simple thing like a mask can make a significant impact locally, nationally and globally.”

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This past December, Nataly Cuzcueta was brought to tears by a word from her 4-year-old daughter, Kira.

With her little arms outstretched, Kira looked up to her mother and said “up.” It may seem like a simple request, but for Cuzcueta, it was a major milestone and cause for celebration. Immediately and happily, she obeyed. She lifted her daughter into her arms and excitedly twirled around the room, a smile beaming across her face.

“Today has been a day I’ll never forget,” she said.

Miles away at Seattle Children’s Autism Center, Dr. Mendy Minjarez, director of the Applied Behavior Analysis Early Intervention Program and interim executive director of Seattle Children’s Autism Center at Seattle Children’s, celebrated as well. Cuzcueta had captured the moment on her camera and had sent a note of gratitude to Minjarez and her care team.

“It was monumental for our whole team,” Minjarez said. “I remember getting the email and running down the hall excitedly to tell our team. It’s been a long time coming.”

Today, Cuzcueta says the team at Seattle Children’s Autism Center is like a second family. Her twin daughters have come a long way since they first started receiving treatment more than 2 years ago. Read full post »

From the first time Daisy Martinez heard the thumping of her baby’s heartbeat, she was in love. She always wanted to be a mother and hoped for a baby girl. She even had a name picked out: Aliyanna.

When doctors confirmed Martinez was having a baby girl, she was elated. Unfortunately, her joy was short-lived. During an ultrasound 25 weeks into her pregnancy, the ultrasound technician noticed something amiss. A large lump was growing on Aliyanna’s spine. Read full post »

The joyful sound of caroling could be heard echoing through the halls of Seattle Children’s and Odessa Brown Children’s Clinic (OBCC) this week thanks to two very special visitors, Ciara alongside her and Russell’s new music artist DeAndre. They handed out toys and gift cards to patients and families at the hospital and delighted families with classic holiday songs.

“I’m so grateful we got to come and sing for you all today,” Ciara said. “We believe in you and we’re rooting for you,” she added.

In the inpatient playroom at the hospital, patients and families were overjoyed. They sang along, with some children singing at the top of their lungs with huge smiles on their faces, and others dancing happily to the cheerful tunes. Read full post »

For Shameka Cornelius, Seattle Children’s Odessa Brown Children’s Clinic (OBCC) is more than just a community clinic. To her, OBCC is family.

The clinic provides medical, dental, mental health and nutrition services to all families, regardless of their ability to pay. It also offers a unique model of care that addresses the socioeconomic and environmental roots of illness.

Shameka Cornelius poses with her three children, Saymirah, Shayrielle and Sy’ier.

Since Cornelius was a little girl, OBCC has been her medical home. From dental visits to well-child check-ups, Cornelius has fond memories of the clinic. She remembers walking from her grandmother’s house just blocks away in Seattle’s Central District to go to clinic appointments. For her, it never felt like going to the doctor. She was always excited to see the smiling faces of her care team.

“I still remember the very first fish tanks they had,” Cornelius said as she laughed. “Those were my first fish. You get your tokens when you go to the dentist and pick out a book after getting your shots. They even had popsicles sometimes.”

Cornelius says above all else, it’s the people that have made OBCC so special to her.

“Everyone should experience that type of service and a clinic of home and togetherness,” Cornelius said. “They actually care at OBCC. Everybody there is really friendly. For me, I wanted my kids to experience the same care that I received. The same people have been there since I was young. You can tell it’s not just work for them; they actually have a passion to be there.” Read full post »

For 7-year-old Lucy Watters, her mother, Nicole Watters, and their family, Seattle Children’s is like a second home. They are at the hospital often, and their care team has become like an extension of their family. Compared to their usual visits, their current stay, 23 days in the Cancer Care Unit, doesn’t seem that long.

“As hard as it is to be here, we know we’re in good hands. We have family within the hospital walls,” said Watters. “When we walked in that first day, Lucy was smiling, like she was going on vacation.”

It breaks Watters’ heart, but also gives her relief.

In the beginning of June, their family received devastating news. Lucy relapsed again, for the fourth time. Lucy was first diagnosed with acute lymphoblastic leukemia at 3 years old. Since then, for nearly half her life, she’s been in and out of the hospital for treatment.

“She doesn’t remember life before cancer,” Watters said.

Through everything, they hold onto hope, and live by a simple motto.

“Stay in today,” Watters said. “We take it one day at a time and live in the moment.”

Thursday was a good day, filled with so many special moments. They got to go home and received a special send-off from one of Lucy’s biggest fans, Alysha Clark of the Seattle Storm. Read full post »

At 3 years old, Yori Tsunoda was a bright and energetic boy who was always on the go.

“Yori had a huge personality,” his mother, Chezik Tsunoda, said. “As the third of four boys, he knew how to stand out. He was really silly, always made everyone laugh and loved playing with his brothers.”

The toddler had a knack for puzzles and a vast knowledge of airplanes. One of Yori’s favorite books was an airplane encyclopedia and he could name any plane by the picture.

Less than a year ago, Yori was at a friend’s house playing in the pool when he quietly slipped below the surface. When Yori was pulled from the water, it was clear that he was not breathing and did not have a pulse. After a few minutes of CPR, first responders arrived. They were able to revive his heart and transfer him to Seattle Children’s.

While Yori’s body eventually recovered, his brain never regained function due to a severe lack of oxygen, which is unfortunately the case with many drowning victims. Two weeks later, he was pronounced brain dead and passed away on Sept. 1, 2018.

“I had no idea when we walked into the hospital that we would not be walking out with him,” Tsunoda said. “As a parent, you assume it’s going to be okay, but it wasn’t. We were completely devastated.” Read full post »

Madeline Boese, with her mom Terri, cancer-free after a 12-year battle with acute lymphoblastic leukemia.

When Madeline Boese was 14, she had visions of pointe shoes, tutus and sugar plums dancing in her head. She dreamed of becoming a professional ballerina, and hoped for a future in the spotlight doing what she loved.

Unfortunately, her body had different plans.

One day in ballet class in December 2006, she noticed an odd golf ball-sized lump on her left thigh below her pink tights. Her mom, Terri Boese, said a trip to their doctor in their hometown of Plano, Texas, led to a bone-chilling discovery.

“I was terrified when I heard ‘malignancy detected,’” Boese said. “It was awful and so out of the blue. I felt like I was going to hyperventilate, and it took all I had to hold myself together.”

Madeline was immediately referred to a hospital in Dallas where she was diagnosed with acute lymphoblastic leukemia (ALL). From there, Boese said everything moved rapidly as Madeline began what would be two and a half years of grueling chemotherapy treatment.

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