Philanthropy

Cassidy Huff, 15, enjoys recording music.

More than a year ago, 15-year-old Cassidy Huff was celebrating her birthday at Seattle Children’s on the eve of her 39th surgery. She was doing what makes her happiest – singing and playing her ukulele. She performed in front of a small crowd made up of her friends, family and medical team. One of the songs she sang was called “Halo,” a parody of Adele’s popular song “Hello,” and an ode to the metal device around her head that would soon be removed.

“When I’m playing I don’t think,” said Cassidy. “Everything around me disappears, and it’s just me. Music has always been my outlet. It tells a story and gives people an inside look into who I am.”

Today, Cassidy is preparing for another performance, this time for a much larger crowd. She’s working with Grammy-winning composer Mateo Messina on an original song for Messina’s 20th annual Seattle Children’s benefit concert called Epoch. She’ll be performing the song alongside the Northwest Symphony Orchestra in front of nearly 2,500 people at Benaroya Hall. Read full post »

The design 9-year-old cancer patient Wyatt Zender created for Kasey Kahne’s No. 5 race car.

In just three days, 9-year-old Wyatt Zender and his family will see his artwork come to life on the Chicagoland Speedway.

Wyatt, a cancer patient at Seattle Children’s, was the lucky winner of a coloring contest presented by Great Clips to design the paint scheme for Kasey Kahne’s No. 5 Great Clips Strong Against Cancer Chevrolet SS, which Kahne will drive at the first playoff race of the NASCAR Cup Series, The Tales of the Turtles 400, on Sept. 17.

“Our family is so excited to see Wyatt’s colorful design speed down the racetrack,” said Wyatt’s mom, Heather Zender. “This has been a great opportunity to give Wyatt the chance to do something fun and share his story as well.”

Read full post »

My name is Makenna Schwab and I’m 14 years old. Over the course of my life, I have been treated at Seattle Children’s Hospital where an amazing team of doctors have performed over 15 life-changing and life-saving surgeries for me.

I was born with a rare connective tissue disorder called Larsen syndrome, which causes dislocations in my joints, instability in my spine and trouble with my breathing. I’ve had to face a lot of challenges, but rather than let my disability hinder me from what I love to do, I decided to embrace it and try to use my experience to create something positive.

When I was 8 years old, I asked my mom if I could sell cookies and lemonade and donate all of the proceeds to Seattle Children’s as a way to give back. Since then, I’ve worked on a variety of projects — from bake sales and toy drives to making packs of food for inpatient families. The money I’ve raised has helped to provide uncompensated care to families at Seattle Children’s. It has also allowed me to provide red wagons for patients in the hospital and purchase new medical equipment to help treat kids like me.

Read full post »

In recognition of National Child Abuse Prevention Month, On the Pulse shares a heart-wrenching story about a mother whose son suffered debilitating injuries at the hands of a babysitter. Through the pain and daily struggle of caring for a fully disabled child, she has become a driving force for advocacy and awareness for child abuse prevention.

What began as a normal day for Jamie Thompson, ended in a tragedy that would forever change her life.

On May 20, 2010, Thompson received an unexpected call at work. It was her 8-month-old son’s babysitter.

“I was told he wasn’t breathing and paramedics had arrived to the babysitter’s home to help resuscitate him,” said Thompson. “As I frantically left work, I received a second call — this time from my husband.”

With news from her husband that her son, Colby, was not responding, Jamie drove straight to Seattle Children’s where he was urgently transported to by helicopter.

Read full post »

Longtime Seattle Children’s patient Makenna Schwab excitedly waits to cut the the ribbon off the low dose radiation X-ray machine she raised $25,000 for.

Patients at Seattle Children’s are benefiting from yet another fundraising project from 14-year-old Makenna Schwab, whose fearless determination in raising thousands of dollars has allowed the hospital to purchase a special X-ray machine to help treat other kids like her.

To celebrate Makenna’s latest fundraising project, which collected $25,000 for the purchase of a 3D low dose radiation X-ray machine called the EOS, Seattle Children’s threw her a heartfelt thank you party. At her celebration, there was no shortage of smiles, laughter and hugs — all for one special teen whose enthusiasm to give is boundless.

“This was more than I ever expected,” said Makenna. “It was so great seeing everyone who has supported me over the years in one room. It made me feel really special.”

Read full post »

Rap artist Desiigner and seven-year-old cancer patient Ewan Lill show off their superhero artwork.

On Monday, patients in Seattle Children’s Cancer Unit were given the special opportunity to meet a rap superstar and collect some stylish swag from Love Your Melon, an apparel brand that has given more than 90,000 hats to kids battling cancer and over $2.6 million to support pediatric cancer research.

After wrapping up his Seattle concert the night before, Desiigner, best known for his Billboard chart-topping song “Panda”, made a surprise pit stop to visit kids at Seattle Children’s. During his visit, Desiigner passed out Love Your Melon hats and met with patients, giving impromptu rap performances and creating colorful superheroes.

“It’s a blessing being able to visit these kids,” said Desiigner. “I want to do what I can to make them happy, and working with Love Your Melon is helping me do that.”

Penny Lees, clinical manager of Seattle Children’s Child Life Department, was thrilled when she learned Love Your Melon and Desiigner wanted to spread their generosity to the hospital’s young cancer patients.

“The work that Love Your Melon is doing to help to raise awareness for childhood cancer is incredibly impactful,” said Lees. “Their interest in coming to the hospital to meet the kids who inspire their mission is a wonderful thing to see.”

Read full post »

Gio Caro, 6, helped bring holiday cheer to patients at Seattle Children’s.

The holidays arrived early this year for families at Seattle Children’s and Odessa Brown Children’s Clinic (OBCC). Amazon brightened the day for patients and families by making one of their largest – and most special – deliveries of the year.

“We so appreciate the important work Seattle Children’s and Odessa Brown does for families in our Seattle community,” said Sam Kennedy, an Amazon spokesperson. “We are proud to give back to such amazing organizations and to put a smile on people’s faces during this special time of year.”

The hospital was filled with excitement as patients and families gathered around a giant Amazon gift box in the inpatient playroom at the hospital. Giomoni (Gio) Caro, 6, a long-time patient at Seattle Children’s, was given the honor of unveiling what was inside the box – a brand new Kindle For Kids Bundle with the latest E-reader for every child in the hospital and a $50 gift card for families in the Neonatal Intensive Care Unit (NICU) – and was designated as an “Elf for a Day” to help spread holiday cheer throughout the hospital. Read full post »

Skyler, 17, poses with a sock puppet he designed.

When Skyler Hamilton was born, his mother called him her miracle baby. He was perfect.

It wasn’t until he turned 7 years old when the family noticed something wasn’t quite right. What started as a limp quickly progressed into something unimaginable.

Three months later, Skyler was diagnosed with a rare and aggressive brain tumor, medulloblastoma.

On August 13, 2006, Skyler was admitted to Seattle Children’s. Four days later, he had surgery to have the tumor removed.

“His tumor was so advanced,” said Margaret Hamilton, Skyler’s mom. “It was the worst nightmare you could imagine.” Read full post »

Ambassador Chris Stevens’ life was formed by global experiences, and a new endowment in his memory at Seattle Children’s intends to preserve his legacy by connecting pediatricians in Seattle with pediatricians abroad.

When Dr. Anne Stevens thinks of her brother, she remembers his wide-eyed awe about the world around him. That love of discovery is what led her brother, former Ambassador Chris Stevens, to a career in diplomacy with the U.S. State Department.

“Chris was a big believer in international exchange and experiences,” said Stevens, a pediatric rheumatologist at Seattle Children’s Hospital. “His life was formed by global experiences, and he also inspired my little brother, sister and I to learn foreign languages and study abroad.”

Ambassador Stevens and three other Americans died in the line of service during a tragic attack on the U.S. mission in Benghazi, Libya in 2012.

Now, a newly funded endowment at Seattle Children’s will preserve his legacy of cultural understanding with a medical exchange that connects pediatricians in Seattle to pediatricians abroad through an intensive training and education program. Read full post »

Going to summer camp can be perceived as a childhood rite of passage. It’s a place for kids to cut loose and embrace their independence for a few special days. Whether it’s participating in new activities like fishing or archery, or bonding with fellow campers — camp can be a magical place that creates memories that last a lifetime.

Unfortunately for some kids who have medically complex conditions, the idea of going to summer camp doesn’t seem like an option. It can be especially true for children who require a wheelchair or rely on ventilators or feeding tubes to keep their health stable.

It wasn’t an option until a doctor from Seattle Children’s, Dr. Stanley Stamm, came up with a remarkable idea 50 years ago — create a summer camp catered specifically for kids who face serious medical challenges.

Every August since 1967, Seattle Children’s Stanley Stamm Summer Camp has given children with complex medical conditions the chance to step out of their diagnoses to “just be kids.”

Funded exclusively by generous donors so kids can attend for free, the week-long sleepover camp has become a powerful opportunity for campers to connect with peers, as well as former campers turned volunteers who understand what it’s like to live with a chronic illness.

Read full post »