London Bowater fought for her life for nearly 180 days in the hospital when she developed severe GVHD after a cord blood transplant.
To pass the nearly 180 days she was a patient in Seattle Children’s Cancer Unit with graft-versus-host disease (GVHD), London Bowater took orders from her doctors, nurses and other patients and families for friendship bracelets that she would braid from her hospital bed.
While her handicraft would help fill the time between treatments, it did little to help ease the severe GVHD she developed after a cord blood transplant for acute lymphoblastic leukemia.
“Her hair was falling out and her intestines were hemorrhaging blood, yet somehow my little ray of sunshine still managed to stay positive and touch all the amazing doctors and nurses with her kindness,” said Nicholas Bowater of his then 8-year-old daughter. “At one point the hemorrhaging was so bad, I melted. I went into the empty room next door and lost it. I knew we would need a miracle.” Read full post »
Atticus Gwilliam was diagnosed with a brain tumor in August 2016.
September is Childhood Cancer Awareness Month. But What does ‘awareness’ really mean?
To become aware? To obtain new knowledge? To gain a new perspective? To become informed? To become concerned or even empathetic to an unfamiliar situation?
The concept of awareness can take on many faces, and its perception can change depending on the person you talk to. To the mother who spends her days at a children’s hospital, it’s a sense of defeat and desperation about the path that life has taken her. To the father who lost his son, a harrowing and solemn reminder of a fierce battle once fought. To the general social media patron, it may be a month of raw images that they don’t fully understand.
This was the crossroad we found ourselves in as we entered the doors at Seattle Children’s Hospital 12 long months ago. The world of childhood cancer was not something that was on my radar as a mother of three (with one on the way), let alone with regards to one of my own children. Read full post »
The design 9-year-old cancer patient Wyatt Zender created for Kasey Kahne’s No. 5 race car.
In just three days, 9-year-old Wyatt Zender and his family will see his artwork come to life on the Chicagoland Speedway.
Wyatt, a cancer patient at Seattle Children’s, was the lucky winner of a coloring contest presented by Great Clips to design the paint scheme for Kasey Kahne’s No. 5 Great Clips Strong Against Cancer Chevrolet SS, which Kahne will drive at the first playoff race of the NASCAR Cup Series, The Tales of the Turtles 400, on Sept. 17.
“Our family is so excited to see Wyatt’s colorful design speed down the racetrack,” said Wyatt’s mom, Heather Zender. “This has been a great opportunity to give Wyatt the chance to do something fun and share his story as well.”
Read full post »
Liesel Von Imhof, 18, doing one of her favorite activities – cross-country skiing.
Liesel Von Imhof, 18, came to Seattle Children’s from her home in Anchorage after learning the reason for her migraines: a ping-pong ball–sized tumor in the middle of her brain. In honor of Childhood Cancer Awareness Month, here she shares her journey of diligently working to achieve her goals despite recovering from brain tumor surgery during her senior year of high school.
How long does it take to recover from brain surgery? What does “recovery” really mean? Would I be the same as before, or to what degree would I be different? These were the many questions swirling around in my mind on July 12, 2016, when I sat next to my pale-faced mother in the hospital as we learned I had a brain tumor. I was diagnosed with a Pilocytic Astrocytoma tumor in the third ventricle of my brain.
With this diagnosis, I was soon on a journey of self-discovery to learn just how much grit and determination I really had. Whether I liked it or not, I was going to have to go through two brain surgeries. My life depended on it.
I gripped the thin hospital bed and prepared myself for the ride. Read full post »
Children who participated in the bike train study averaged an additional 21 minutes of exercise per day and increased cycling to school by 45%.
The path to healthier living for children could be the same one they take to school.
Children who participated in adult-supervised group bicycle rides to and from school increased their moderate-to-vigorous physical activity by 21 minutes per day and daily cycling commutes by 45%, according to a pilot study recently published in the American Journal of Preventive Medicine.
The additional exercise study participants gained from riding in the groups, known as bike trains, accounted for 35% of the 60 minutes of physical activity recommended daily for children.
“Regular physical activity can help build muscle and bone strength, raise energy levels, and help reduce the risk of conditions like obesity and heart disease,” said Seattle Children’s researcher Dr. Jason Mendoza, who served as the principal investigator for the study. Read full post »
At 7 months old, Spencer Nicholson underwent three surgeries to remove dead tissue from a rare disease he contracted due to a cat scratch.
You’ve probably seen it before: something falls, a loud noise ensues, and a cat with an arched back and poofy tail sprints away.
Unfortunately for 7-month-old Spencer Nicholson, when he loudly pulled a bin off a pantry shelf, the family cat was spooked right in his direction. Spencer fell on the floor and the cat, claws out, ran him over. Spencer was left with a deep scratch on his right cheek.
His mom, Kelsey Nicholson, took Spencer to urgent care near their home in Arlington, Washington, where she received a prescription for antibiotics. But hours later, Spencer’s face started to swell. By that evening, Nicholson was so concerned that she took her baby to the emergency room at her local hospital.
Read full post »
Frankline Onchiri with his daughters (left to right) Nicole and Joey and his wife Everline.
It seems impossible for Dr. Frankline Onchiri to talk about Seattle Children’s without smiling.
When Onchiri joined Seattle Children’s Research Institute as senior biostatistician and epidemiologist in 2015, his role assisting investigators at the Center for Clinical and Translational Research was so much more than a professional dream come true. It also started the next chapter of a personal journey that brought his family from Kenya to Seattle – not once, but twice – and offered him the rare opportunity to work at the hospital responsible for saving his daughter’s life. Read full post »
Twins Hendrix (left) and Harper were diagnosed with SMA Type II in summer 2015. They have made tremendous progress since beginning a breakthrough treatment in February 2017 at Seattle Children’s.
Spinal Muscular Atrophy (SMA) had progressively taken away the strength of 3-year-old twin brothers Harper and Hendrix to lift a cup of water, crawl or even take a deep breath on their own. Without access to a breakthrough treatment for the incurable genetic condition, the regression of their motor skills was certain to continue, potentially to the point that it was life-threatening.
So moments like the one that unfolded between Harper and Hendrix in a Seattle Children’s recovery room shortly after their fourth infusion of the new drug, Spinraza, represented much more than brotherly play to their parents, Crystal and Noe Ramos.
Harper raised his right arm high above his head and paused briefly before snapping it down in front of him as he released a makeshift ball of medical tape and paper. The object bounced and then skidded on the floor before it came to rest near Hendrix, who gave it a casual glance before returning his attention to the iPad in his lap he gripped firmly with his fingers.
Read full post »
Physical activity may be one way for teen cancer survivors to reduce their risk of several chronic conditions. A team led by researchers at Seattle Children’s recently tested the practicality of using a Fitbit Flex and Facebook to help encourage physical activity among survivors.
The battle against cancer continues well after remission for many adolescents and young adults. Cancer survivors are at increased risk to develop chronic diseases like obesity, type 2 diabetes, high blood pressure and second cancers.
Physical activity can be an important factor to help lower the risk of developing these conditions while providing an increased quality of life among survivors. However, many studies have shown that cancer survivors maintain a lower level of physical activity than their peers.
A team of researchers led by Dr. Jason Mendoza at Seattle Children’s Center for Child Health, Behavior and Development and Dr. Eric Chow at Seattle Children’s Cancer and Blood Disorders Center recently tested the feasibility of a mobile health intervention aimed at encouraging increased physical activity among teen cancer survivors. The team tapped into wearable fitness technology, the Fitbit Flex, social media and self-determination theory (SDT) to develop an approach that meets teen cancer survivors where they’re at. Read full post »
Josie, with her father, Luis, first came to Seattle Children’s when she was 2 months old.
Josie came to Seattle Children’ Emergency Department when she was 2 months old after acquiring a virus and going into respiratory distress. She was also in the beginning stages of heart failure.
Statistically, she was lucky to have made it that far.
Before birth, Josie was diagnosed with Trisomy 18, a life-threatening condition caused by an extra chromosome that disrupts the typical pattern of development in significant ways. Only about 5 to 10% of children with Trisomy 18 survive beyond their first year of life.
“I didn’t expect her to live that long,” said Josie’s mother, Jenny Castillo. “I hoped we would at least have a few days or weeks with her, and we’ve been thrilled with all the time we’ve had.” Read full post »