More developmental monitoring of children with skull deformation needed, researchers say
Top of head of child with deformational plagiocephaly (drawn by Huang MHS)
As many as 30 percent of all infants may have deformational plagiocephaly, also known as positional plagiocephaly, which is characterized by asymmetry and flattening of the head caused by external pressures. In previous studies, infants and toddlers with this condition have been shown to experience delays in development compared to unaffected children.
Researchers at Seattle Children’s Research Institute wanted to find out if these developmental delays persisted as children grew older. The researchers studied the development of 224 children with deformational plagiocephaly from infancy ( months, on average) through 36 months of age, comparing them to 231 unaffected children. This is the first scientifically rigorous study to examine development in preschool-age children with deformational plagiocephaly compared to a control group of kids without the condition.
Results of the study were published today in the journal Pediatrics. The findings indicate that children with deformational plagiocephaly continued to score lower on development measures than unaffected children at age 36 months. Differences between children with and without deformational plagiocephaly were largest on measures of language and cognition, and smallest on measures of motor skills such as balance, jumping and running. Read full post »
Author:Meghan PembrokeComments Off on Celebrating the holidays at Seattle Children’s Hospital
For families with sick babies and kids, the holidays can be a particularly difficult time. At Seattle Children’s, staff, volunteers, family members and the community find creative ways to bring the holidays to the hospital.
Here’s a sampling of some of their efforts this year:
HAM’ing it up with Santa Claus
Staff at Children’s have a unique connection to the man at the North Pole. With the help of a HAM radio, patients tell Santa their Christmas wishes and ask their most pressing questions.
Author:On the PulseComments Off on Coping with Safety Concerns As Kids Go Back to School
Following the tragic shooting in Newtown, Connecticut that has shocked the world, many families may feel uneasy as their children return to school this week. Not only has the tragedy made some parents question their children’s safety at school, but children and teens may also find it difficult to return to their normal routine as they remain concerned about the events that took place.
Seattle Children’s pediatrician and blogger Dr. Wendy Sue Swanson provides helpful advice about how parents can support their children as well as themselves in the next few days and weeks ahead.
Remember your child’s school is safe – Random shootings are an anomaly and it is important to remind yourself that this tragedy was an exception.
Get the information you need – Reach out to your child’s school to ensure there are good safety measures in place.
Step back from media reports – Any overwhelming informational stream can increase anxiety and heartache.
Listen to your children before you speak – Ask what your children have heard and how it makes them feel. If your children don’t speak about it, begin the conversation and ask open-ended questions.
Discuss the safety measures you take in your own home and at school to protect your children from harm.
Check in with your child when they get home from school – Ask open-ended questions to see what they’ve learned or how they’re feeling and continue to check in over the next few weeks. Read full post »
Author:Meghan PembrokeComments Off on Ban on mercury in vaccines would hurt children in developing countries
The American Academy of Pediatrics (AAP) today reiterated its concern that a proposed mercury ban by the United Nations Environmental Program (UNEP) could have devastating effects on the world’s most vulnerable children. The proposal includes a ban on thimerosal, a mercury-containing preservative used in vaccines in many developing countries.
The AAP and the World Health Organization said that the proposed ban would threaten access to vaccines for children in poor countries – where the risk from vaccine-preventable diseases remains high.
Ed Marcuse, MD, MPH, associate medical director for quality improvement at Seattle Children’s Hospital and member of the U.S. Food and Drug Administration’s Vaccines and Related Biologics Advisory Committee, said that the serious health risks that would result from a ban on thimerosal in vaccines far outweigh the potential environmental benefits.
“The proposed ban would have the potential to enormously increase the cost of vaccines, making them inaccessible to many of the world’s children,” says Marcuse.
Author:Meghan PembrokeComments Off on Connecticut school shooting – Helping kids cope with violence in the news
On the heels of Tuesday’s mall shooting in Oregon, this morning a tragic mass shooting unfolded at an elementary school in Connecticut.
Just like adults, kids are exposed to news coverage of violence or hear about it from friends, and they are likely to have fears and questions. Studies show that children can suffer long-term emotional damage from exposure to violence in news coverage.
Dr. Bob Hilt, child and adolescent psychiatrist at Seattle Children’s Hospital, says parents should be prepared to help their children deal with traumatic events, such as natural disasters and acts of violence.
How to help your kids cope with violence
Dr. Hilt suggests parents follow these tips to help their kids process traumatic events:
Control what kids are seeing and hearing. Limit the amount and type of news coverage your child is exposed to. If the TV is on, make sure you watch with your kids so you can answer any questions they might have about what they’re seeing. Younger kids don’t have the ability to contextualize traumatic events. A child might personalize an event and worry that it might happen to his family. While teens are better able to emotionally process violence and disasters, they might still have questions. Make sure to check in with your older children as well.
At most hospitals, children with relapsed acute lymphoblastic leukemia (ALL) who aren’t responding well to chemotherapy would be running out of options. But Seattle Children Research Institute’s researchers are one step closer to finding a cure. Starting this month, patients who have relapsed ALL will have the option of participating in a new clinical trial if they are not responding to chemotherapy and have a less than 20 percent chance of survival.
Harnessing life-saving cells in patients’ blood
The new treatment—called cellular immunotherapy—involves drawing blood from the patient, reprogramming their infection-fighting T cells to find and destroy cancer cells, and infusing the blood back into their body.
Only three other institutions in the country are conducting this type of clinical trial, which involves using a specialized high-tech facility to manufacture the personalized therapy using each patient’s blood.
Author:Kathy PoradaComments Off on Building Hope, Part 1: Top Ten Features of Cancer Inpatient Unit
Cancer Patient Room
In April 2013, Seattle Children’s will open Building Hope, a new facility that will house a new cancer inpatient unit with 48 single patient rooms. Additionally, Building Hope will include 32 private rooms for critical care treatment and a new Emergency Department.
The cancer care space will span two floors and offer several features that will make a patient and their family’s stay as personalized and comfortable as possible.
A 16-bed teen and young adult cancer space will occupy its own floor, where patients will benefit from the support of their peers in an age-appropriate environment. No other hospital in the United States currently offers a dedicated inpatient unit of this size for the care of teens and young adults with cancer.
Author:Rachel HartComments Off on Cure for Pain: How physical therapy helped Pasco pre-teen get her life back
If there’s one thing 12-year-old Chloe Schmidt of Pasco, Wash., is thankful for this holiday season, it’s the absence of pain.
For her mom, Erin, it’s the Pain Rehabilitation Program at Seattle Children’s – and the physical and occupational therapists, psychologists, nurses and physicians who helped her daughter move past the pain that derailed her life earlier this year.
Chloe’s downward pain spiral started with a cat bite in January. By February, she had body aches that her pediatrician blamed on growing pains. A week later it morphed into a searing, all-over pain.
That’s when Erin scooped Chloe off the floor and rushed her to a local emergency room.
Author:Meghan PembrokeComments Off on Legal pot: How to talk to teens about Washington’s new marijuana law
Marijuana becomes legal in Washington state on Thursday, and a commercial marijuana market is on the horizon. Dr. Leslie Walker, chief of adolescent medicine at Seattle Children’s Hospital and president elect for the Society for Adolescent Health and Medicine, says that now’s the time for parents to talk with their children – especially teens – about the consequences of marijuana use.
Author:Mary GuidenComments Off on Does Soy Hamper Kids’ Immunity?
Kawasaki disease is a condition that can affect many parts of a child’s body, including the mucous membranes (lining of the mouth and breathing passages), skin, eyes, and lymph nodes, which are part of the immune system. The disease is the leading cause of acquired heart disease in children in the U.S, and it can affect the coronary arteries, which supply blood to the heart. This can lead, in rare cases, to heart attack and death.
What causes Kawasaki disease?
There are lots of theories about what causes Kawasaki disease. Researchers have thought that it might be linked to genetics or even the wind, of all things. Patients tend to be diagnosed with the condition more frequently from winter through spring, which suggests a possible environmental trigger. Some investigators have even theorized that carpet mites could be carrying a pathogen that causes the disease. “People had their carpets cleaned and, soon after, their children were diagnosed with Kawasaki disease,” said Michael Portman, MD, of Seattle Children’s Research Institute.
Seattle Children's complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.