Patient Care

All Articles in the Category ‘Patient Care’

Seattle Children’s Cancer Patient Presents “Haunting: A Head” – A Halloween Video

10-year-old Jenna Gibson, a Maple Valley, Wash. resident, has been a patient at Seattle Children’s since she was initially diagnosed with acute myeloid leukemia earlier this year.

While staying at the hospital’s cancer care inpatient unit recently, she had the idea to create for her friends and family a video entitled: “Haunting: A Head” – all in the spirit of Halloween fun.

In the video, Jenna, hidden beneath a magical hospital robe that makes everything but her head invisible, can be seen on a spooky hijinks across the floor.

“I wanted to show some of the things that were frustrating but kind of funny about being in the hospital,” said Jenna. “And I wanted to use only my head because it seemed mysterious.”

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New Procedure Improves Life for Children with Hydrocephalus

Kristin Crow got a big surprise when her little bundle of joy arrived prematurely while she was visiting family in Texas in November 2011. She gave birth to her son, Skyler Crow, who was born at 28 weeks, weighing just two pounds, seven ounces.

When in utero, Skyler had been diagnosed with ventriculomegaly, or enlarged ventricles in the brain, and he developed hydrocephalus soon after he was born while in the neonatal intensive care unit (NICU) in Texas.

Hydrocephalus is one of the most common congenital conditions in children, affecting 1 in 500 to 1,000 births. It is a condition where cerebrospinal fluid (CSF) doesn’t reabsorb properly in the brain, causing a harmful build-up. This can cause problems with the development and function of a child’s brain, and without treatment, hydrocephalus can be deadly.

The traditional treatment for hydrocephalus is surgery to implant a shunt, or a small tube, that drains spinal fluid from the brain ventricles down to the abdomen where it is absorbed. Doctors told Kristin and her husband that a shunt was their only treatment option.

“I was terrified as shunts come with a lot of risks,” said Kristin. “There’s a high rate of infections, complications and we would be in the NICU for a very long time, possibly more than five months.”

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Do You Really Need a Flu Shot Every Year?

The answer is yes. The Centers for Disease Control and Prevention (CDC) recommends that everyone who is at least six months of age should get a flu vaccine this season. 

Vaccine vials

The influenza virus constantly mutates, changing its shape and structure each and every year to survive. Therefore, in order to effectively be protected against the virus, the composition of the vaccine also changes each year. The newly formulated vaccine then adds to the immunity built up from receiving the shot in previous years.

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Children With Disabilities Should Go for the Gold in Life

If we needed additional evidence, Brad Snyder’s story makes it perfectly clear that just because you’re a child with a disability, you don’t have to settle for second place.

An American swimmer on the United States Paralympic team, Snyder graduated from the Naval Academy and went to Afghanistan to serve his country. In September 2011, a roadside bomb exploded in his face and cost him his eyesight. But he still managed to find the finish line first, winning two gold medals in the summer of 2012 at the London Paralympic Games. And, among fully blind swimmers, Snyder is currently the best in the world for the 100-meter and 400-meter freestyle events. His story can be found at NBCNews.com. Read full post »

Antibiotic Exposure Associated with Development of Inflammatory Bowel Disease

Hold off on using antibiotics unless truly needed, says Seattle Children’s researcher

Antibiotics

Children who receive antibiotics may be more likely to develop inflammatory bowel disease, according to a new study led by Matthew Kronman, MD, of Seattle Children’s Hospital.  The study, “Antibiotic exposure and IBD development among children: A population-based cohort study,” was published September 24 in Pediatrics.

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Cerebral Palsy Procedure Helps 4-Year-Old Take His First Steps

From the time Logan Ellingsworth was born in June 2007, it was clear he was a fighter. Born prematurely with a variety of health issues from exposure to methamphetamines while in utero, Logan had a difficult journey ahead.

Brenda and Randy Ellingsworth, Logan’s grandmother and grandfather who adopted him after he was born, remember the first time they saw him in the intensive care unit at the hospital.

“Out of all the babies in the room, I was surprised to see that one was actually raising his head up as if to see who was coming in,” said Brenda. “I asked the nurse, ‘Who’s this little curious one?’ She said, ‘That is your precious little grandson and he is going to be a fighter.’  I started to cry because at that moment, we knew he was going to have major obstacles to overcome.”

The First Step: Facing Cerebral Palsy

Among the host of medical issues Logan faced, he was diagnosed with cerebral palsy, a disorder of the brain that affects muscle tone and the ability to coordinate body movements. It is caused by an injury to the brain, which can occur when a child is born prematurely.

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Cystic Fibrosis Researcher Christens Petroleum Barge that Bears her Name

Physicians and researchers can get any number of awards over the course of a career.  Landing a Nobel Prize is the tops, of course.  But Bonnie Ramsey, MD, received a different sort of honor this week.  She christened a petroleum barge in Portland that bears her name.  Dr. Ramsey is quite excited about the honor, even if it doesn’t seem very medically mainstream.   

Barge christening by Dr. Bonnie Ramsey“It’s a unique award,” she said.  “It’s not the sort of thing most people get, to have something that huge be named after you,” she said, with a smile.  Barges can measure more than 400 feet long, bigger than a football field.  A barge of this size carries more than 3.5 million gallons in fuel, too.

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How a Bear With a Sweet Tooth Helps One Teen Heal

This is what 17-year-old Seth Barronian remembers about his last regular day:

He and a friend were long-boarding (riding long-version skateboards) near Tacoma, Wash., a good distance from his home in Normandy Park. Because he loved to feel the wind in his hair, he ditched the helmet his parents insisted he wear. He was cruising downhill at about 20 miles per hour when his board hit a twig or rock and stopped cold. Read full post »

Cancer Patient Raps “Look At Me Now” in Music Video

They say that humor can be great medicine and this rings true for 18-year-old Abigale Hamlin, a leukemia patient being treated in Seattle Children’s Hospital’s Adolescent and Young Adult Oncology Program. Abigale says that a good dose of laughter in her situation helps her to see and think of things in a different light.

Last year, when she first heard Chris Brown’s song featuring Lil Wayne and Busta Rhymes, “Look At Me Now,” her witty and creative nature took hold and her inner rapper emerged as she flowed to the beats with her own lyrics that described what she was going through, “Look at me now, look at me now, I’m losin’ hair-air, or I’m gettin’ che-mo.”

“I’m the kind of person who sings a song and puts my own words to it because I think it is funny,” says Abigale. “Then I thought, how funny would it be if I took the lyrics and made this song cool and funny in my own way!” Read full post »

Deploying an Automobile Manufacturing Process to Serve Patients Better

On the face of it, lean manufacturing, which is used by Toyota and other major global companies, doesn’t seem to fit very well into the world of medicine.

But, on closer examination, surgeons are beginning to see that lean has a good deal in common with the scientific method used in research – it’s just a matter of terminology, although it’s important to point out that this isn’t like randomized controlled trials; instead, it’s about testing hypotheses.

Indeed, the overall goal of lean is to define and refine a process, and then make the end product better for the customer; in medicine, that’s the patient. Read full post »