In celebration of Hispanic Heritage Month, Seattle Children’s Hola Inclusion Network, a group focused on improving connections and services with the Hispanic/Latinx community, invited workforce members, patient families and community members to share their perspectives and stories through art. We have the privilege of sharing the artists’ work.
Every year from Sept. 15 to Oct. 15, people around the country observe National Hispanic Heritage Month — a celebration of the histories, cultures and incredible contributions of Hispanic and Latinx peoples from Spain, Mexico, the Caribbean, Central America and South America.
This year, Seattle Children’s Hola Inclusion Network invited workforce members, patient families and community members to recognize and celebrate the month in a new way: a first-ever Hispanic Heritage Month art show. The Hola Inclusion Network provides advocacy for and builds community among Seattle Children’s Latinx/Hispanic workforce and allies. The network aims to create better connections within internal and external communities and improve services for Hispanic/Latinx patients and families.
Penny was diagnosed with neuroblastoma, a solid-tumor cancer with a survival rate of about 50%, three months after her baby brother, William, was born with a life-threatening heart condition. Today, William is thriving at home and Penny is in remission.
Penny’s final immunotherapy treatment was on Sept. 2 after a year of treatments that included surgery, chemotherapy, a bone marrow transplant, radiation, and immunotherapy which stimulates the immune system to fight diseases.
Samantha, Penny’s mom, was overwhelmed with emotions when she squirted the final immunotherapy drug dose into her daughter’s mouth. “It felt like I was finally allowed to feel the weight of everything we’ve been through.”
“Before COVID-19 restrictions, patients facing surgery were given the opportunity to tour the hospital with their families ahead of time to help ease the nerves and to become comfortable with the process. Since that option became unavailable, Dr. Henry Ou took it upon himself to create a virtual tour that a kid can walk through on Minecraft! In their world! It is very impressive, and you can tell he has spent a lot of time and effort perfecting it for the kiddos.” — Mariette Broncheau, partner employee — Research
As a self-described “kid at heart,” Dr. Henry Ou said he’s got a good sense for how patients may be feeling, including what they’re interested in and which situations may be scary for them. When the pandemic struck and hospital visitation had to be limited, Ou used his kid-like perspective to accomplish a task very different than his usual surgical case — creating a Minecraft version of the hospital.
Minecraft is a video game that allows players to virtually explore a 3D world with different terrain and environments to accomplish various tasks or missions — a virtual LEGO world of sorts. Over the past 18 months, Dr. Ou has taken thousands of videos and photographs around the hospital and spent hundreds of hours during his personal time designing a Minecraft version of the hospital building.
Seattle Children’s Education Department provides free services for students who will be in the hospital for at least one week. The teachers are certified by the state of Washington in both general and special education. They’re experts at supporting kids and their families when children and teens are suddenly out of school and as they transition back into school after an extended absence. Scott Hampton, manager of K-12 Education Services and father of three, sat down with On the Pulse to share advice to support families in the community as they settle back into in-person learning in this new school year. Read full post »
The phone call came at 2 a.m. It was a neonatologist calling about Kimberly Aldinger and Scott Houghtaling’s son, Grayson. Kimberly had given birth to premature twins a month earlier and both babies were in the neonatal intensive care unit (NICU) at Swedish Hospital. The new parents had returned home to get a much-needed night of sleep when the doctor left a message on their voicemail.
“I’m really worried about Grayson,” the doctor said. “He’s having a massive seizure. You need to come down here.”
Scott immediately feared the worst. “I thought, the only reason they’d call in the middle of the night was if they were preparing for the worst outcome — Grayson not surviving.”
Thankfully, the medical team was able to stop Grayson’s seizure that night, but it was just the beginning of Kimberly and Scott’s journey to understand the severity of their son’s brain damage and how it would shape all their lives.
Whether you’re in the “I need school to start now!” camp or the “Summer just started” camp, the fact is that the new school year is approaching quickly. Every year, back-to-school time is met with emotions ranging from excitement to nervousness or fear, but this year that’s even more true for students and families. Dr. Kendra Read, director of the Mood and Anxiety Program at Seattle Children’s, offers ways to reduce back-to-school worries as you support your child’s return to in-person learning.
“Uncertainty is often hard to tolerate and times of transition in the midst of uncertainty are that much harder,” Read said.
Here is some advice from Read to help navigate these trying times: Read full post »
Two weeks before their 3-month-old son was scheduled for his second open-heart surgery, Kyle and Samantha Hatch were told their daughter likely had neuroblastoma.
“We were utterly broken,” Samantha said. “But we had to pull it together for our children.”
After Penny’s tumor was discovered on her MRI, she needed a biopsy to definitively diagnose what providers suspected was cancer.
On August 11, 2020, Penny walked into Seattle Children’s hospital for the procedure. It was the last time Samantha and Kyle saw their daughter walk.
After a tumor sample was collected, Penny was discharged. But at home, Samantha said her daughter started screaming in agony. “She couldn’t stand and was in unbearable pain. I thought, ‘This isn’t normal. We’re going back in.’”
Penny was quickly readmitted to Seattle Children’s for pain management. Watching Kyle hold her in the hospital, Samantha noticed Penny was kicking her left leg while her right leg hung limp.
“It was terrifying,” Samantha said. “She couldn’t move it.”
The biopsy caused Penny’s tumor to swell and press against the nerves in her spinal cord, paralyzing her right leg. To make matters worse, the biopsy confirmed Penny did, in fact, have high-risk neuroblastoma. Read full post »
A Son With a Heart Condition, a Daughter With Cancer: A Year in the Life of the Hatch Family Part One
Who are your heroes? Are they exceptionally talented? Do they have superhuman abilities? Are they destined for greatness?
Or, are they ordinary people who face tremendous challenges and persevere out of love?
Kyle and Samantha Hatch undoubtedly fall in the latter category. In the past year, one of their twin sons was born with a life-threatening heart defect. Three months later, their 18-month-old daughter was diagnosed with neuroblastoma. And all of this happened during a global pandemic.
“We often talk about literary heroes, people who face adversity even when they’re unprepared,” Kyle Hatch said. “That’s what makes them brave, and that’s why our kids are some of the bravest people we know.” Read full post »
The Largest Medulloblastoma Trial Makes Monumental Strides Forward for Cancer Research, Increases Survival in Children by 19 Percent
Sammy Loch began experiencing debilitating headaches in 2009. She was a sophomore in high school at the time. When she went to see her primary care provider, they diagnosed her with migraines and prescribed medication to help dull the pain. When her migraines persisted, her doctor recommended Loch get an MRI to rule out anything more insidious.
Days before the MRI, Loch got dressed in a beautiful purple gown, her curly hair bounding in tight curls just at her shoulders. She had been looking forward to the homecoming dance for weeks. She was all smiles, but the throbbing pain in her head was still there. She powered through the dance, determined to have fun. She was completely unaware her world would soon be turned upside down as she danced in the high school gym surrounded by her friends.
On Tuesday, Oct 27, 2009, Loch went in for an MRI.
“The technician was so bubbly and nice,” Loch said. “She told me about the elaborate costume she was working on because Halloween was only a few days away. I remember everything about her demeanor changed when she came back in the room after my scan. My heart sank. I knew something was seriously wrong.”
That night around 8 p.m., her family got a call. Her mother answered, repeating aloud what the voice on the other end of the line was saying. “There’s a mass. You need to go to Seattle Children’s as soon as possible.”
Everything seemed to stop as those words hung heavy in the air.
“It’s cancer,” Loch said. “I just knew it.”