On the Pulse

A Family Finds Answers in Seattle Children’s CRMO Program

Thanks to the Chronic Recurrent Multifocal Osteomyelitis (CRMO) Program at Seattle Children’s, a family found answers and treatment for their son’s pain. Now that the symptoms associated with the disease are under control, Seth Maharry is able to focus on doing things he loves most— like playing guitar.

From an early age, Seth Maharry has been an active kid. He started playing soccer at age 4, joined Little League at 5 and by the time he was 9, Seth earned a spot on a club team in Portland, Oregon where he played soccer year-round. During one of those tournaments, Seth started to complain about the pain in his hip.

“We figured he’d just been playing soccer all weekend,” said his mom Nora. “We saw the physical therapist and they said everything was fine, but it continued to get worse and worse.”

Seth’s parents decided to take Seth to the doctor but were told it was just growing pains, though it was clear to Nora that this was something far more serious.

“That was our battle for a year and a half,” Nora explained. “My heart just ached because I knew what we were being told was not right.”

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Odessa Brown Children’s Clinic Leader Awarded 2022 Physician of the Year by AAIP

Shaquita L Bell, MD of Seattle Children’s Odessa Brown Children’s Clinic

Dr. Shaquita Bell, Senior Medical Director of Seattle Children’s Odessa Brown Children’s Clinic (OBCC), has been awarded 2022 Physician of the Year by the Association of American Indian Physicians (AAIP) for her longstanding commitment to the individual and collective health of Indigenous and multi-racial children and impact within her community.

The distinguished award was presented to Dr. Bell ahead of the AAIP’s Annual Meeting and National Health Conference which brings together healthcare professionals, policy makers and community tribal members to discuss the pressing health concerns of American Indian/Alaska Natives across the nation.

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PedAL Initiative ‘Dares’ to Transform Treatment and Care for Kids with Blood Cancer

PedAL leadership left to right: E. Anders Kolb, Gwen Nichols, Samuel L. Volchenboum, Laura Di Laurenzio, Soheil Meshinchi, Todd Cooper

The PedAL (Pediatric Acute Leukemia) Master Trial is part of the Leukemia & Lymphoma Society’s Dare to Dream Project with one of Seattle Children’s doctors leading the clinical trials for pediatric acute leukemia.

 

For children battling through a diagnosis of relapsed leukemia, moving away from standard chemotherapy and onto newer, safer treatments is something many families are hopeful for.

Seattle Children’s is actively working to identify, validate and innovate how children with pediatric acute leukemia, including acute myeloid leukemia and other high-risk leukemias, are treated through a collaborative master screening clinical trial led by The Leukemia & Lymphoma Society (LLS) called Pediatric Acute Leukemia (PedAL).

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Summer Heat Wave: Four Things Parents Should Always Keep in Mind

With a heat wave expected to impact Washington this week, many families across the state have health questions and concerns in mind.

Dr. Tony Woodward, medical director of emergency medicine at Seattle Children’s, provides the following advice for parents and caregivers about how to beat the heat as well as keep their kids safe this summer.

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No Stone Unturned: Seattle Children’s High-Risk Leukemia Experts Specialize in the Toughest Cases

Josh, Harper and Meagan in June 2022

Two years ago, Meagan stood in a hospital room at Seattle Children’s cradling her 1-year-old daughter, Harper, against her chest. Her fiancé, Josh, huddled close to them and kissed the thinning hair on top of their baby’s head.

A feeding tube was routed through Harper’s nose and her eyes were brimming with tears. Exhausted, she snuggled into her mom’s arms as a photographer took their picture.

Meagan and Josh feared those would be the last photos taken of their baby girl.

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5 Ways Parents and Caretakers Can Keep Children and Teens Safe in the Water

As warmer temperatures continue to increasingly draw crowds to the water, it’s important to keep safety in mind, especially when children and teens are involved.

Dr. Linda Quan, a pediatric emergency medicine physician at Seattle Children’s spoke with KUOW where she shared her five most valuable pieces of water safety advice for parents and caretakers.

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Creating Opportunities in Health Information Technology for the Next Generation of Pediatric Leaders

Melvin Smith (second from the left) works around the clock to develop IT’s workforce of the future. By day, he leads the hospital desktop team, and by night, he teaches Health IT classes at Seattle Colleges

When Information Technology (IT) supervisor Melvin Smith first joined Seattle Children’s as an administrative fellow in 2018, he never imagined where he’d be today. 

“I have always worked in environments where I was either the youngest or the only individual from my community group,” Smith explained.  

He also knows what it’s like to be ‘othered’ and understands the power of a great mentor. 

“I built the foundation of my career around not liking disparities,” he explained. “From my experiences with internships, fellowships and getting my first job, I always took the approach that I want to be the person I wish I had.” 

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Pediatric Infectious Disease Doctors Answer Parent’s Most Common Questions about Vaccines Under 5

Children between the age of 6 months and 4 years old are now eligible to receive the COVID-19 vaccine. For families who have long awaited the opportunity to vaccinate this age group, it’s a sigh of relief.

“It provides another layer of protection that we have been seeking for a long time now,” parent Michael Bamshad told KOMO news while attending Seattle Children’s vaccine clinic with his 4-year-old daughter Marlowe. “Everyone else has had the opportunity to get vaccinated and now it’s time for kids under five.”

For other parents with babies and toddlers, many are wondering what side effects to look out for with smaller children who cannot yet verbalize how they feel post-shot.

To help answer the most common vaccine questions, Dr. Surabhi (Sara) Vora, an Associate Professor of Pediatric Infectious Diseases and an Infectious Disease Physician at Seattle Children’s and Dr. Janet Englund, a Professor of Pediatrics and Infectious Disease Specialist at Seattle Children’s shared some expert insight.

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Ellie Found Her Calling and Is Racing Toward Her Dream

Ellie Musgrave, who dreams of becoming a professional race car driver one day, had emergency surgery at Seattle Children’s to remove a brain tumor at a young age.

Ellie Musgrave found her calling when she was 4 years old. Her father took her to the racetrack and a dream sparked. She surprised her dad by saying, “I want to do that.”

Much like the electrical charge that brings a car to life, the draw to racing happened in an instant and throttled her into motion. It was in the sound of engines, the whooshing of the cars as they sped by on the track.

That’s when she knew she wanted to be a race car driver.

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Leader in Pediatric Oncology Receives National Honor from American Cancer Society

Dr. Abby R. Rosenberg, director of the Palliative Care and Resilience lab at the Seattle Children’s Research Institute

Dr. Abby R. Rosenberg, director of the Palliative Care and Resilience (PCAR) lab at the Seattle Children’s Research Institute (SCRI); an associate professor of pediatric hematology/oncology at the University of Washington (UW); director of pediatrics at the UW Cambia Palliative Care Center of Excellence; and director of survivorship and outcomes research in pediatric oncology at the UW, has been awarded the 2021 Trish Greene Quality of Life Award by the American Cancer Society (ACS).

The prestigious award was presented to Dr. Rosenberg in an intimate ceremony in Seattle Children’s new Forest B building and honors those who have dedicated their career to research that improves the quality of life for cancer patients and their families.

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