Taylor Haines performs a contemporary dance called “Power of Vulnerability” with another dancer, Vasco Vj Vea.
When 19-year-old Taylor Haines performs, she tells a beautiful story with her body through dance. She leaps, turns and flips across the stage without missing a beat. It’s not until you look a little closer that you’ll notice there’s more to her story than meets the eye. Taylor was born with birth defect called fibular hemimelia, and she has a prosthetic leg.
“Fibular hemimelia is a congenital birth defect that causes complete or partial absence of the fibular bone, the smaller and thinner bone in the lower leg,” said Dr. Vincent Mosca, chief of foot and limb deformities at Seattle Children’s. “It occurs in about one in 40,000 children. These children also have a shortened and bent tibia, the larger and thicker bone in the lower leg, and in many cases, absence of toes on the affected limb. The thigh bone is also slightly shorter than the other side. All the other body parts are normal.” Read full post »
In honor of National Dog Day, On the Pulse is recognizing a special four-legged volunteer who has provided comfort to patients at Seattle Children’s every week for more than 11 years.
If Abe had the ability to talk, he would likely share powerful stories about the thousands of kids he has met throughout his 11-year career as a registered therapy dog.
The road to becoming a therapy dog isn’t easy for most loyal companions, but for Abe, it was his calling.
“I always said he was born to be a therapy dog,” said Judith Bonifaci, Abe’s owner and trusty handler. “From the moment I met him, I could tell he was an old soul who had a special purpose in life.”
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Through Seattle Children’s Pediatric Pain Rehabilitation Program (PReP), physical therapist Sharon Yurs challenges Wesslee Holt to a game of hoops, with some extra balance work added in.
Last spring, Wesslee Holt rolled his ankle at his middle school in Shelton, Washington. The 12-year-old is a dedicated member of his cheer team and was eager to return to the squad quickly. He followed his doctor’s instructions to immobilize the foot and wear a boot — but his pain only increased over time.
Wesslee started using a scooter to keep weight off his foot and rested it as much as possible. Nothing seemed to work. His skin became splotchy and red, and was so sensitive to touch that he couldn’t put a sock or shoe on. He felt depressed and anxious, pulled out of cheer team completely and even left school.
His mother, Steph Fyfe, knew it was time for a different approach. “People wanted to put Wesslee on supplemental security income and call him disabled, but I knew there had to be a way for him to get better,” she said.
She was referred to Seattle Children’s Pain Medicine Clinic and learned Wesslee was suffering from complex regional pain syndrome (CRPS), which sometimes accompanies a routine injury and causes the nerves to send extreme pain messages to the brain. The good news is that Seattle Children’s was able to offer Wesslee a unique treatment option: the Pediatric Pain Rehabilitation Program (PReP).
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My name is Makenna Schwab and I’m 14 years old. Over the course of my life, I have been treated at Seattle Children’s Hospital where an amazing team of doctors have performed over 15 life-changing and life-saving surgeries for me.
I was born with a rare connective tissue disorder called Larsen syndrome, which causes dislocations in my joints, instability in my spine and trouble with my breathing. I’ve had to face a lot of challenges, but rather than let my disability hinder me from what I love to do, I decided to embrace it and try to use my experience to create something positive.
When I was 8 years old, I asked my mom if I could sell cookies and lemonade and donate all of the proceeds to Seattle Children’s as a way to give back. Since then, I’ve worked on a variety of projects — from bake sales and toy drives to making packs of food for inpatient families. The money I’ve raised has helped to provide uncompensated care to families at Seattle Children’s. It has also allowed me to provide red wagons for patients in the hospital and purchase new medical equipment to help treat kids like me.
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Longtime Seattle Children’s patient Makenna Schwab excitedly waits to cut the the ribbon off the low dose radiation X-ray machine she raised $25,000 for.
Patients at Seattle Children’s are benefiting from yet another fundraising project from 14-year-old Makenna Schwab, whose fearless determination in raising thousands of dollars has allowed the hospital to purchase a special X-ray machine to help treat other kids like her.
To celebrate Makenna’s latest fundraising project, which collected $25,000 for the purchase of a 3D low dose radiation X-ray machine called the EOS, Seattle Children’s threw her a heartfelt thank you party. At her celebration, there was no shortage of smiles, laughter and hugs — all for one special teen whose enthusiasm to give is boundless.
“This was more than I ever expected,” said Makenna. “It was so great seeing everyone who has supported me over the years in one room. It made me feel really special.”
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Kenley Teller, 6, snowboards with two prosthetic legs.
Watch 6-year-old Kenley Teller snowboard down a slope and you’ll notice two things right away: a big smile on her face and her fiery red hair billowing in the wind beneath her helmet. What is not apparent are her two prosthetic legs.
“She’s free when she snowboards,” said Kenley’s mother, Mary Teller. “I don’t want to say she feels normal, because how do you define normal anyway? She may need to do things a little different than other people, but she can still do them. I’m constantly in awe of her.” Read full post »
Tara Peerenboom is one of 35 licensed athletic trainers in the Seattle Children’s Athletic Trainers Program.
They are a constant presence on the sidelines of sporting events, but they don’t adorn a jersey or get a trophy at the end of a season. We see them as they spring into action when an athlete suffers an injury. They run onto the field or court and quickly care for an athlete writhing in pain, but their time in the limelight is short lived, at least from what we see from the stands.
What you don’t see are the hours athletic trainers spend before, during and after games preparing, rehabilitating or counseling athletes and coaches. And so, in recognition of Athletic Training Month, On the Pulse shadowed Tara Peerenboom, an athletic trainer at Seattle Children’s, to get a behind the scenes look at her role both on and off the field.
“People see us on the sidelines and think of us as the individuals who give water to athletes,” said Peerenboom. “They don’t see the time we spend in the athletic training room before, after and during a game or practice. We’re not just medical providers. Our athletes trust us, and we’re there for them during difficult times. Taping and getting ready for games is a small part of our work.” Read full post »
Maggie Burke, 9, aspires to be an Olympic gymnast.
When 9-year-old Maggie Burke broke her elbow after an unusual landing while vaulting at gymnastics practice, she was concerned her dream may be in jeopardy.
She’s a competitive gymnast with a dream to compete in the 2024 Olympics, and so when she found out her injury would require surgery and a cast, she was feeling anxious. She never needed surgery before and her emergency trip to Seattle Children’s was the Burke family’s first trip to the hospital.
“During surgery prep, the staff found out about Maggie’s passion for gymnastics and her dream,” said Maggie’s mother, Odilia Burke. “We felt greatly supported by kind, caring and knowledgeable people that would soon have our daughter in their hands of expertise. What we weren’t expecting was the surprise we received when Maggie came out of recovery.”
In the operating room, while doctors expertly cared for Maggie’s elbow and set her arm in a cast, a surgical technologist went to work designing something special just for Maggie. It was a small gesture, but just what the doctor ordered. Read full post »
Young pitchers can avoid throwing injuries by following some simple guidelines.
According to The American Journal of Sports Medicine, more than 15 million people will be playing baseball and softball this spring and summer, nearly 5.7 million of which are children in eighth grade or lower. Dr. Michael Saper, an orthopedic surgeon and sports medicine specialist at Seattle Children’s, has some useful information about how young players can avoid arm injuries.
Before joining Seattle Children’s, Saper trained under Dr. James Andrews, a renowned orthopedic surgeon who has treated many professional athletes, including hall of fame pitchers Nolan Ryan and John Smoltz. It was in working with Andrews that Saper developed his passion and expertise for the treatment and prevention of throwing elbow and shoulder issues.
Saper noticed injuries that were common in high-level athletes occurring in younger athletes and realized that education about how to stay healthy is just as important as treating the patient after a serious arm injury occurs.
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Priscilla, 7, has always been encouraged to try new things. Although she was diagnosed with cerebral palsy at 1 years old, she hasn’t let it slow her down. She lives by the motto: The sky is the limit.
Throughout 7-year-old Priscilla Campos’ life, she’s been empowered by her parents to try new things. Her mother, Shannon Cruz, says their family lives by a simple motto: The sky is the limit.
It’s a lesson Priscilla has taken to heart. She’s always believed she could do anything, and she’s proven she can.
“She reaches for the sky,” said Ruben Campos, Priscilla’s father. “There are no limitations. I always tell her she can do anything, and then she does. She’s incredible.” Read full post »