In recognition of Spina Bifida Awareness Month, Whitney Stohr penned an open letter encouraging inclusion. She asks people to join her in celebrating our unique differences and to see her son for the extraordinary child he is.
Whitney and her husband, Jason, found out their son Malachi would be born with spina bifida when she was 19 weeks pregnant. Whitney said the moment they walked through the doors of the hospital they knew they were in the best place possible to give Malachi the best care possible. Whitney and Jason call Seattle Children’s a second home. The Stohr family moved from Yakima to Lynnwood to be closer to the expert care Malachi needs at a moment’s notice, offering them much-needed peace of mind at a time when there’s so much uncertainty.
In total, their family spent more than 380 days at Seattle Children’s, helping Malachi overcome tremendous hurdles. Today, in the midst of a pandemic, Malachi’s healthcare needs remain complex and require seamless coordination amongst his many providers at Seattle Children’s, the only nationally ranked standalone pediatric hospital in the Pacific Northwest.
Malachi’s incredible, ongoing medical journey is only part of their story. Whitney says she hopes people see the bright future Malachi has ahead of him.Read full post »
Christine O’Connell knows the walls of Seattle Children’s all too well.
In 2017, the O’Connell’s 3-year-old daughter Jane was diagnosed with stage IV Wilms, a pediatric kidney cancer. The cancer had spread to both of her lungs, lymph nodes and a vertebra in her spine. The months of chemotherapy, radiation and surgeries that changed their lives forever are still vivid memories.
“Radiation and chemotherapy was our only hope to save Jane’s life, but it is so damaging to young, developing bodies. She will suffer the effects of treatment for the rest of her life,” O’Connell said.
Then she learned that Seattle Children’s was pioneering a better way.
When Victoria Reece found out she was pregnant, she and her husband were elated. During their 20-week ultrasound, they found out they were having a boy and left the appointment over the moon with excitement, envisioning a bright future as a family of three with their baby boy in tow.
Odessa Brown Children’s Clinic (OBCC) is more than a medical home for families. OBCC is often affectionately called a second home by the patients and families it serves, and the clinical staff are referred to as an extension of their family. OBCC is a clinic, but it’s also something much larger: it is hope.
The team at OBCC represents the communities they serve and advocates for the well-being of patients and families both inside the walls of the clinic and beyond.
Today, Boeing has committed to investing $2.5 million to help fund vital programs at OBCC and a new, second OBCC to better serve under-resourced, ethnically diverse communities. Read full post »
June 8, 2020 | Philanthropy, ResearchComments Off on Engineered T Cells for Type 1 Diabetes Move Closer to Clinic
Dr. Jane Buckner of the Benaroya Research Institute at Virginia Mason and Dr. David Rawlings of Seattle Children’s Research Institute are leading gene editing research to develop new therapies for autoimmune conditions like type 1 diabetes.
Now, new research and a fresh infusion of funding bring this dream closer to reality, and nearer to opening a first-in-human clinical trial of an experimental therapy at Seattle Children’s in collaboration with research partner Benaroya Research Institute at Virginia Mason (BRI).
“What started as a dream is now within reach,” Rawlings said. “My hope is that our research will lead to a new treatment that turns off the destructive immune response leading to development of type 1 diabetes in children.” Read full post »
The Teasley sisters visit Dr. Kathy Sie, who helped them become the successful young women they are today. From left to right: Erika, Alicia, Dr. Sie and Janna.
When Ken and Kathi Teasley learned their two oldest daughters were deaf, they feared it would hold them back. Instead, Seattle Children’s providers taught the girls to live without limits and use their experience as people who are deaf and hard of hearing to help others.
Now in their 20s, all three of the Teasley sisters volunteer or work at Seattle Children’s. Read full post »
Shanghai Children’s Medical Center donates masks to Seattle Children’s.
When Seattle Children’s posted on social media asking followers to consider donating any unopened masks in light of a global manufacturing shortage and the impact of the novel coronavirus 2019 (COVID-19), the community responded in a big way.
In one week, community members near and far rallied to donate more than 17,000 masks and these numbers are expected to increase with more donations in the coming weeks.
“We were overwhelmed by the rapid and extensive response by our community,” said Aileen Kelly, executive director of Seattle Children’s Guild Association. “In times like these, it is heartwarming to see people come together to serve the greater good. We are very appreciative of this generosity and it’s not lost on us how a simple thing like a mask can make a significant impact locally, nationally and globally.”
February 6, 2020 | Mental Health, PhilanthropyComments Off on Seattle Children’s New Autism Center Will Help Advance Care for Families in the Region Thanks to Generous Gift
This past December, Nataly Cuzcueta was brought to tears by a word from her 4-year-old daughter, Kira.
With her little arms outstretched, Kira looked up to her mother and said “up.” It may seem like a simple request, but for Cuzcueta, it was a major milestone and cause for celebration. Immediately and happily, she obeyed. She lifted her daughter into her arms and excitedly twirled around the room, a smile beaming across her face.
“Today has been a day I’ll never forget,” she said.
Miles away at Seattle Children’s Autism Center, Dr. Mendy Minjarez, director of the Applied Behavior Analysis Early Intervention Program and interim executive director of Seattle Children’s Autism Center at Seattle Children’s, celebrated as well. Cuzcueta had captured the moment on her camera and had sent a note of gratitude to Minjarez and her care team.
“It was monumental for our whole team,” Minjarez said. “I remember getting the email and running down the hall excitedly to tell our team. It’s been a long time coming.”
Today, Cuzcueta says the team at Seattle Children’s Autism Center is like a second family. Her twin daughters have come a long way since they first started receiving treatment more than 2 years ago. Read full post »
From the first time Daisy Martinez heard the thumping of her baby’s heartbeat, she was in love. She always wanted to be a mother and hoped for a baby girl. She even had a name picked out: Aliyanna.
When doctors confirmed Martinez was having a baby girl, she was elated. Unfortunately, her joy was short-lived. During an ultrasound 25 weeks into her pregnancy, the ultrasound technician noticed something amiss. A large lump was growing on Aliyanna’s spine. Read full post »
The joyful sound of caroling could be heard echoing through the halls of Seattle Children’s and Odessa Brown Children’s Clinic (OBCC) this week thanks to two very special visitors, Ciara alongside her and Russell’s new music artist DeAndre. They handed out toys and gift cards to patients and families at the hospital and delighted families with classic holiday songs.
“I’m so grateful we got to come and sing for you all today,” Ciara said. “We believe in you and we’re rooting for you,” she added.
In the inpatient playroom at the hospital, patients and families were overjoyed. They sang along, with some children singing at the top of their lungs with huge smiles on their faces, and others dancing happily to the cheerful tunes. Read full post »
Seattle Children's complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.