Through Seattle Children’s Pediatric Pain Rehabilitation Program (PReP), physical therapist Sharon Yurs challenges Wesslee Holt to a game of hoops, with some extra balance work added in.
Last spring, Wesslee Holt rolled his ankle at his middle school in Shelton, Washington. The 12-year-old is a dedicated member of his cheer team and was eager to return to the squad quickly. He followed his doctor’s instructions to immobilize the foot and wear a boot — but his pain only increased over time.
Wesslee started using a scooter to keep weight off his foot and rested it as much as possible. Nothing seemed to work. His skin became splotchy and red, and was so sensitive to touch that he couldn’t put a sock or shoe on. He felt depressed and anxious, pulled out of cheer team completely and even left school.
His mother, Steph Fyfe, knew it was time for a different approach. “People wanted to put Wesslee on supplemental security income and call him disabled, but I knew there had to be a way for him to get better,” she said.
She was referred to Seattle Children’s Pain Medicine Clinic and learned Wesslee was suffering from complex regional pain syndrome (CRPS), which sometimes accompanies a routine injury and causes the nerves to send extreme pain messages to the brain. The good news is that Seattle Children’s was able to offer Wesslee a unique treatment option: the Pediatric Pain Rehabilitation Program (PReP).
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Recent conversations with friends and colleagues have been abuzz with discussions about “13 Reasons Why,” a new Netflix series about a teen who died by suicide that has sparked debate across the country. While they all have reservations about some of the graphic content and appropriateness for teen viewers, they also feel the issue of teen suicide is an important one to discuss.
I completely agree.
Suicide is one of the top three leading causes of death for youth under age 24. As healthcare providers, parents, friends, and loved ones, it’s vital we understand what we can do to support those who may be considering ending their life. Read full post »
Kristin Jarvis Adams (back right) found different forms of support when her son Andrew (bottom right) was diagnosed with autism, and then years later when he battled a rare immune disorder. Also pictured are her husband, Jon, and daughter, Hannah.
The proverb that suggests it takes a village to raise a child can be easily adapted for parents facing the various challenges that come with having a child with special needs and circumstances. Parents sometimes need the support of a village. Author Kristin Jarvis Adams shared her experiences with On the Pulse in finding her village when her son, Andrew, was diagnosed with autism and years later, when he was treated and overcame a rare immune disorder at Seattle Children’s and Seattle Cancer Care Alliance. Adams, who is a member of the Autism Center Guild at Seattle Children’s, tells her family’s story in her book The Chicken Who Saved Us: The Remarkable Story of Andrew and Frightful.
For 10 years my husband and I had been making trips to and from Seattle Children’s with our autistic son, Andrew, who suffered from an unheard of progressive inflammatory disease. Andrew had been in the hospital for months, his body riddled with gaping ulcers, his organs compromised by chronic inflammation. Now we were in the middle of chemotherapy and radiation treatments that were preparing him for an experimental bone marrow transplant. It was our last hope.
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The Partnership Access Line (PAL) has helped reduce antipsychotic prescriptions for Washington children enrolled in Medicaid by 49% since 2006.
Antipsychotic prescriptions for children enrolled in Washington state’s Medicaid program decreased by nearly half following the implementation of an innovative psychiatric consultation program affiliated with Seattle Children’s, according to a study published in the March 2017 issue of Health Services Research.
The 49% reduction in prescriptions from July 2006 to 2013 is a reversal from the steady statewide growth in the use of antipsychotics to treat children prior to the introduction of the Partnership Access Line (PAL). The number of children on Medicaid treated with antipsychotics in Washington decreased by 940 despite an increase of 186,855 enrollees in the joint Federal/state program during the study. According to the study, this counters a national trend of increased antipsychotic use with children from 2002 to 2015.
Other key findings in the study include:
- High-dose antipsychotic use fell by 57.8% in children 6 to 12 years old; and by 52.1% in teens
- 1,458 providers received a direct patient consult through PAL
- 759 providers attended at least one of PAL’s 31 general psychopharmacology education conferences
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Morgan Wood has been coming to Seattle Children’s since he was born — and as an adult, he continues to benefit from recreational and social skills classes at the Alyssa Burnett Adult Life Center.
He is known among both friends and providers for sharing his life mantras, which he developed to work through challenges related to living with Autism Spectrum Disorder.
Below, Morgan shares six of his mantras and other interesting insights from his life experience.
My name is Morgan Wood and I’m 26 years old. I was born very premature, weighing 729 grams, which is less than two pounds. Because of my weight and a bad infection I had at birth, they tell me I’m sort of a miracle. Read full post »
Eva, 14, has been suffering from OCD since she was a little girl.
Since Eva Tomassini was 4 years old, she remembers her life being controlled by rules. Not from her parents, or school, but rules she created in her head, like having to arrange things in a certain way or run away in order to prevent terrible things from happening. As Eva grew older, her compulsions and obsessions got worse. She thought if she didn’t follow the rules, someone close to her would be harmed or die.
Eva has Obsessive-Compulsive Disorder (OCD), a disorder that literally ruled her life throughout her childhood.
“It was like she was controlled by an evil puppet master,” said Earlyn Tomassini, Eva’s mother. “She had spontaneous rules she had to follow or she’d run away at night because her OCD would tell her something bad would happen to somebody if she didn’t. It was really difficult for her and for our family.” Read full post »
Researchers have identified a cost-effective way to treat depression in teens with a collaborative care approach.
Depression is one of the most common mental health issues a teenager can face. According to the National Institute of Mental Health, an estimated 2.8 million adolescents ages 12 to 17 in the U.S. had at least one major depressive episode in 2014, or 11.4% of adolescents that age.
Depression can create a huge cost burden on patients and institutions, and for teenagers that includes issues like missed school and the costs of healthcare for families. A new study in JAMA Pediatrics, led by Seattle Children’s Research Institute and Group Health Cooperative, identifies a cost-effective treatment that yields promising results for depressed teens.
“We used a collaborative care approach to treat teen depression, which included having a depression care manager who worked with the patient, family and doctors to develop a plan and support the teen in implementing that plan,” said Dr. Laura Richardson, an adolescent medicine physician and researcher at Seattle Children’s and professor of pediatrics at the University of Washington. “We were pleased to find that this collaborative approach was significantly more effective in treating depression than standard care with only a small increase in costs.” Read full post »
Dr. Eileen Klein, attending physician and co-director of Emergency Medicine Research, will speak about the challenges families and children with autism face in navigating the emergency department.
Children with autism spectrum disorder (ASD) are becoming a larger proportion of Seattle Children’s patients, challenging providers to develop new tactics to meet their unique needs.
This year’s Pediatric Bioethics Conference, “Autism Re-examined: Ethical Challenges in Care, Support, Research and Inclusion,” will focus on the challenges and special requirements of treating these patients.
Dr. Eileen Klein, attending physician and co-director of Emergency Medicine Research at Seattle Children’s Hospital, is a featured speaker at this year’s conference. She gave On the Pulse a sneak preview of her presentation plans, what she’s most looking forward to and what she hopes to learn. Read full post »
I love this picture of me and Chad on a dinner cruise in Cabo San Lucas, Mexico.
Laura Crooks, director of Rehabilitation Medicine, shares how losing her son, Chad, sent Laura and her husband on a mission to eliminate the stigma around mental illness.
My son had mental illness.
It seems so strange to write those words. Instead, I want to write that he was creative and loving and gentle. I want people to know him as a big brother and a son who lived in a large and loving family. I want him to be famous for his dream of inventing bold new means of space travel. But today, the part of Chad’s life I am compelled to share is that he had mental illness.
Chad was diagnosed with schizophrenia in April 2015. One evening, not long after telling his father and me that he had been hearing voices, he became suicidal.
I remember that night like it was yesterday. I remember taking him in the car, his dad holding him in a blanket at 21 years old, just so he wouldn’t jump out of the car as we made the trip up Interstate 5 to the University of Washington Emergency Department.
I remember coaching Chad on what to say once we got there: to tell them he wouldn’t make it through the night if they let him go. I remember how hard it was as a mom to tell my son to say these things. But I also know the truth about limited resources for mental health, and that this was the only way for him to truly get help and to keep him safe.
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A group of seventh-grade girls formed the Island Friends Junior Guild.
In March 2015, a group of seventh-grade girls from Mercer Island came up with the idea of starting a guild to support Seattle Children’s, the Island Friends Junior Guild. They banded together and picked a cause they rarely hear their peers talk about, but believe could use a little more support: mental health.
In honor of Mental Health Awareness Month, members of the Island Friends Junior Guild are sharing their story to help inspire others to end the stigma around mental health and raise awareness for Seattle Children’s Psychiatry and Behavioral Medicine Unit (PBMU).
“The PBMU doesn’t get much attention,” said Tara Manhas, an Island Friends Junior Guild member. “Mental health isn’t really seen as a positive thing. There’s a negative stigma around it. We want to change that.”
Seattle Children’s Hospital Guild Association is the largest all-volunteer fundraising network for any hospital in the nation. In total, there are 450 different guilds that raise money for the hospital, and out of all 450 guilds, one exclusively supports the PBMU. Read full post »