Before his first breath, Colton Iverson had already received the gift of a lifetime. Just days old, he became the youngest patient to go on a drug recently approved by the U.S. Food and Drug Administration (FDA) for the treatment of a life-threatening genetic condition called very long-chain acyl-CoA dehydrogenase, or VLCAD, deficiency. For his […]
No matter the circumstances outside the walls of the hospital, Seattle Children’s is steadfast in helping every child live the most fulfilling life possible. Although COVID-19 has halted many things in life, health is not one. Compassion and expert care are two infallible aspects that make Seattle Children’s a place families can count on when […]
On May 7, 2018, Whitney Stohr slumped to the ground in the corner of her son’s room in Seattle Children’s Pediatric Intensive Care Unit. Her son Malachi, who was born with a severe form of spina bifida, had undergone a tracheostomy days before. When he woke up after the procedure, his pain was so intense […]
In recognition of Spina Bifida Awareness Month, Whitney Stohr penned an open letter encouraging inclusion. She asks people to join her in celebrating our unique differences and to see her son for the extraordinary child he is. Whitney and her husband, Jason, found out their son Malachi would be born with spina bifida when she […]
In the fall of 2013, Maggie and Andy Oberhofer watched their tiny, 8-month old daughter, Greta, fight for her life in the Pediatric Intensive Care Unit (PICU) at Doernbecher Children’s Hospital in Portland, Oregon. Greta had just been through a bone marrow transplant to treat her highly aggressive leukemia. Shortly after, she took a turn […]
When Victoria Reece found out she was pregnant, she and her husband were elated. During their 20-week ultrasound, they found out they were having a boy and left the appointment over the moon with excitement, envisioning a bright future as a family of three with their baby boy in tow. The next day, they received […]
Just weeks after the state of Washington went under shelter-in-place guidelines, Jenalysse Renaud gave birth to two beautiful babies on April 17, 2020. Renaud and Donovan Allen, the twins’ musician father, named them Melody and Lyric. Melody, a whole two minutes older than her little brother, faces a few challenges. Her left eye is smaller […]
Grace Carney was 16 years old when she first began falling. Before long, she was falling every day. It got so bad that she had to rely on other people — family members at home and aides at school — to help her walk. For Grace, this was the latest in a lifetime of medical […]
The patients at Seattle Children’s inspire. Through their tremendous stories, we have the opportunity to learn about what it means to be brave—what it means to persevere. Monumental accomplishments demand to be celebrated. Over the years, Seattle Children’s has had the honor of sharing the incredible stories of our Patient Ambassadors. Several of those that […]
I have worked at Seattle Children’s for 16 years and have been the Chief of Critical Care Medicine since 2013. My son Peter just turned 17. He recently “celebrated” his birthday at a therapeutic boarding school where he is in residential treatment for anxiety and depression. Although he was in and out of outpatient therapy […]