Authors: Tammy Mitchel
Mikey at high school graduation
April marks the 1-year anniversary of the grand opening of Seattle Children’s Alyssa Burnett Adult Life Center. The Alyssa Burnett Adult Life Center hosts year-round classes for adults with autism spectrum disorder (ASD) or other developmental disabilities. And though it’s only been a year, the Alyssa Burnett Center has already seen great success. Tammy Mitchel, program manager, recounts below her hopes and fears from day one and shares some of her favorite milestones from the past year.
Nearly one year ago, as I was driving to the grand opening of the Alyssa Burnett Adult Life Center, my head swirled with thoughts, hopes, dreams and – admittedly – fears for this journey to open a center for adults with autism. Would it be possible to thoughtfully offer classes to adults with autism and serve a wide spectrum of ability levels? Could we teach adults who had never been in a kitchen how to cook for themselves? Would we be equipped to handle even the most challenging behaviors? And most importantly, could we create a community where all of this could happen under one roof?
I’m so happy to say one year later that yes, we could. And we did. Read full post »
Authors: Sam Rosen
Sage Taylor was born with a severe malformation in the right hemisphere of her brain – a condition that caused her to have hundreds of tiny “micro” seizures every day. Here, mom Sam Rosen reflects on their leap of faith with a neurosurgeon at Seattle Children’s and how Sage’s life took a dramatic turn for the better.
Sage Taylor, now 9 years old, came to Seattle Children’s soon after she was born because she was having hundreds of tiny seizures each day.
In October 2005 my husband Don Taylor and I were blessed with a second daughter. All prenatal tests were normal and my delivery was easy. She was perfect, though more restless than our older daughter and not as good of a sleeper.
Three weeks after Sage came into the world, I was taking a post-partum class for new moms. The nurse instructor took me aside and encouraged me to take Sage to Seattle Children’s as soon as possible for an EEG – a test that measures and records the brain’s electrical activity. She explained she thought Sage had a very slight jerkiness of movement in her arms and legs that might not be normal.
And so began our journey with the incredible doctors and nurses at Seattle Children’s. Read full post »
Authors: Rose Ibarra (Egge) and Shelly Ellison
Dr. Sihoun Hahn led a collaborative research study which helped a 10-year-old girl walk for the first time in her life.
A collaborative research study led by Dr. Sihoun Hahn, director of the Biochemical Genetics program at Seattle Children’s and an investigator within Seattle Children Research Institute’s Center for Developmental Therapeutics, has changed the lives of children around the world and helped a 10-year-old girl walk for the first time.
Research answers a parent’s prayer
Bokyung Kim, a 10-year-old living in Korea, spent most of her life confined to a wheelchair. Doctors suspected that she suffered from muscular dystrophy, but were unable to diagnose her condition. Bokyung’s parents prayed that their daughter would walk one day. So when they had the opportunity to enroll Bokyung in a collaborative research study between Seattle Children’s Research Institute, University of Washington School of Medicine and Seoul National University College of Medicine in Korea, her parents were eager to participate.
“This family never lost hope for their child,” Hahn said. “And neither did we.” Read full post »
Authors: Kathryn Mueller
Kasey Kahne today took some time away from the race track to visit patients at Seattle Children’s Hospital. The NASCAR Sprint Cup Series driver, and Enumclaw, Wash., native made a surprise visit to the hospital after announcing that he’ll be teaming up with Seattle Seahawks quarterback Russell Wilson to help put an end to childhood cancer by choosing Strong Against Cancer as this year’s beneficiary of their fundraising event, The DRIVE.
With toys in hand, he brought much needed smiles and brightened the day for patients and families. The hospital was revving with excitement as Kahne met with kids and teens in a race of their own – a race to feel better and get back to life outside the hospital walls. Read full post »
Authors: Kathryn Mueller and Rose Ibarra (Egge)
Marvel superhero Chris Evans (Captain America) and friend Chris Pratt (Star-Lord) today made good on a friendly bet that started between the two on Twitter in January after the National Football League playoffs.
The hospital was abuzz as Evans and Pratt brought joy to patients and families at Seattle Children’s. Much like their superhero alter egos, they saved the day in the eyes of the children and teens at the hospital. Read full post »
Authors: Kami Sutton
In honor of Congenital Heart Defect (CHD) Awareness Week, 26-year-old Kami Sutton wanted to share her journey that began at Seattle Children’s the day she was born.
26-year-old Kami Sutton
Seattle Children’s is my home. From the previously trademark blue bubble letters, the giraffes (which were recently replaced in the remodel), trains and Mickey Mouse – it is home. It is full of the people who I have trusted with my life since before I can even remember.
I was transferred to Seattle Children’s from a local hospital on Sept. 21, 1988, at only four hours old after being delivered via emergency C-section. I was blue and unable to breathe on my own. My parents were told I most likely would not survive the 30 minute trip down I-5 to the hospital. Read full post »
Authors: Rose Ibarra (Egge) and Kathryn Mueller
Julie Kobayashi, 12, traveled from Hawaii to Seattle Children’s for her heart transplant.
Children who need a heart transplant face a frightening waiting game before a donor heart becomes available. They must live with a failing heart for months, or even years, as clinicians strive to keep them healthy enough for transplant. Nationally, these patients face the highest waiting list mortality in solid-organ transplantation medicine, with 17% of children dying while waiting for a heart transplant.
Thankfully, Seattle Children’s has one of the best waitlist mortality rates among pediatric heart transplant centers, as reported to the United Network of Organ Sharing. The hospital also treats some of the region’s most complex, advanced heart disease and heart transplant cases and has one of the highest 3-year patient survival rates in the country.
“We are proud to be ranked among the best pediatric heart transplant centers in the country,” said Dr. Yuk Law, medical director of the Cardiac Transplant/Heart Failure Service at Seattle Children’s. “We have created a team of skilled experts who have dedicated their careers to treating heart failure and transplant cases.” Read full post »
Authors: Kathryn Mueller
Dudzik and Paddy visit with Joey at Seattle Children’s.
At Seattle Children’s Hospital healing comes in all forms. From music therapy to acupuncture, Seattle Children’s offers many services to comfort children while they are inpatient at the hospital. One of those forms even includes a wagging tail, wet snout and big brown eyes.
Christi Dudzik and Paddy, her 5-year-old yellow Labrador, are one of 12 dog teams at Seattle Children’s that provide comfort to patients and families through its animal-assisted activities program. Dudzik, who has been training pet therapy dogs for more than 20 years, says there’s no better place to be than with Paddy walking through the halls of Seattle Children’s. Read full post »
Authors: Rose Ibarra (Egge)
Like many Seattle natives, 22-year-old Kevin Mick is a passionate Seahawks fan. Despite now living in Alma, Ark., Mick said the Hawks will always be his team, not just for their athletic talents, but for their actions off the field as well.
“The fact that Russell Wilson takes the time to visit patients every week at Seattle Children’s is amazing,” Mick said. “I know first-hand how much these special visits mean to a sick child.”
Growing up at Seattle Children’s
Kevin Mick grew up in Seattle as a dedicated Seahawks fan. Today, he says “Thank you” to Russell Wilson for supporting patients at Seattle Children’s.
Mick was a patient at Seattle Children’s for the first 12 years of his life after being born a conjoined twin.
In June of 1992, Mick’s parents, Rex and Debra, were living in Kirkland and found out Debra was pregnant. At a seven-week ultrasound, the parents learned they were having twins after doctors heard two heartbeats. Two months later, they learned their two sons were conjoined at their abdomens. Read full post »
Authors: Rose Ibarra (Egge) and Kathryn Mueller
Patients, families and staff gathered together at the hospital main campus today to raise the 12th Man flag and cheer on the Seattle Seahawks.
Seattle Children’s has received incredible support from the Seattle Seahawks. Not only does quarterback Russell Wilson make weekly visits to our patients and families, but many other Seahawk players, the Sea Gals and even the Seahawks’ mascot Blitz have spread joy throughout the hospital!
To celebrate the Seahawks’ return to the Super Bowl, Seattle Children’s patients, families and hospital staff showed their Seahawks pride today by coming together in their brightest and bluest attire and raising the 12th Man Flag outside the hospital’s main campus.
“We got to meet Russell and many of the other Seahawks over Christmas,” said Katie O’Day. Her 7-year-old daughter Kennedy is currently receiving cancer treatment at Seattle Children’s and helped raise the 12th Man flag today. “One player even hung out and played video games with her for a half hour! It’s was so amazing that they took the time to brighten up her day. It made coming in for chemotherapy much easier!” Read full post »
