Each year, Seattle Children’s Craniofacial Center treats hundreds of children with craniosynostosis, a condition most families have never heard of, yet can affect approximately 1 in every 2,500 babies in the United States. That was the case for Kali Dempsey’s family, of Camano Island, WA, in early 2017. “We were sent to Seattle Children’s when […]
Every year, Seattle Children’s Craniofacial Center treats hundreds of children with craniofacial conditions and rare syndromes. Cleft lip and cleft palate are among the most common kinds of birth defects in the United States, and affects more than 1 in 1000 newborns around the world. The lip and palate (roof of mouth) form in early […]
Located just under two hours from London in South East England is the coastal city of Brighton, home to a 7-year-old child who is truly living up to his name. Loui Legend Heath Herriott was born with Treacher Collins syndrome, a rare genetic condition that affects the development of bones and tissues in the face, […]
When Victoria Reece found out she was pregnant, she and her husband were elated. During their 20-week ultrasound, they found out they were having a boy and left the appointment over the moon with excitement, envisioning a bright future as a family of three with their baby boy in tow. The next day, they received […]
Just weeks after the state of Washington went under shelter-in-place guidelines, Jenalysse Renaud gave birth to two beautiful babies on April 17, 2020. Renaud and Donovan Allen, the twins’ musician father, named them Melody and Lyric. Melody, a whole two minutes older than her little brother, faces a few challenges. Her left eye is smaller […]
From day one, 21-year-old Sean Gallagher has been able to command a room. He jokes that it’s because he has a flair for the dramatic; it could also be because of his bright and infectious personality. Sean was born with a facial difference, and his medical journey has been long and complex. MaryJo Gallagher and […]
Often in life we have a vision of what we want or imagine our lives to be like, but along that journey, life presents obstacles and opportunities for us. It shapes us and makes us who we are. My own journey started with its own twists and turns. I was born in Medellin, Colombia and […]
For most of the past year, 9-year-old Tristan Beck has been on a long, challenging journey toward nose reconstruction after a traumatic accident left him with a missing nose. December 20, 2017 was a normal day of winter break for the Beck family. Tristan and his older sister were visiting their mother’s office to drop […]
A study conducted by an international research team, which included investigators from Seattle Children’s Research Institute, implicates variants in four genes as a primary cause of non-syndromic cleft lip and palate in humans. The genes, associated for the first time with cleft lip and palate, encode proteins that work together in a network, providing important […]
Samantha Alexander first met Dr. Emily Gallagher, a craniofacial pediatrician in Seattle Children’s Craniofacial Center, when Alexander brought her 5-month-old son, Kai, to the clinic. Kai’s primary care doctor thought plates in his skull had fused together too quickly. He was evaluated for a metopic ridge, creating a point on his forehead. While she feared he may […]
