In celebration of Black History Month, On the Pulse spoke with Dr. Yolanda Evans, an adolescent medicine specialist at Seattle Children’s, about simple yet powerful ways we can encourage and teach kids to become activists in their community what this month means to her.
Engage your kids in conversation
It starts with role modeling and engaging in conversation.
“As a family, I encourage having conversations with your kids around differences and embracing differences,” Evans said. “Instead of ignoring or not talking about issues about inequalities and injustices, allow for dialogue and speak in terms appropriate to their age level.”
Evans suggests using books as conversation starters.
“Antiracist Baby is a great book,” Evans said. “There are also other kids’ books that highlight African American contributors which are educational and foster positive role models.”
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Seattle Children’s is dedicated to becoming an anti-racist and equitable health organization.
To realize this vision, we’ve adopted a long-term comprehensive plan with our Anti-Racism Organizational Change and Accelerated Equity, Diversity and Inclusion Plan. This plan was designed with the guidance and support from our patients, workforce, community and trusted expert leaders on anti-racism work, equity, inclusion and diversity over the last year.
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When it comes to rashes, Seattle Children’s dermatologist Dr. Markus Boos is like a detective. When he meets with patients and families who are concerned about a rash, Boos first listens to their story, looks at their skin for clues and then works with them to determine the cause.
Dr. Markus Boos, Seattle Children’s dermatologist, is grateful to be entrusted by parents to care for their children, and to have the opportunity to do something that he loves every day.
“When I meet with families, there are two important things I always want to emphasize in order to help allay any anxiety they may have,” Boos said. “The first is that we see rashes all the time – literally every day. Their child often has a condition that many other children do as well. Secondly, I reaffirm that I’m glad they came to see me, no matter how mild or severe their skin condition is. I’m a parent and I get it. It’s distressing when something is wrong with your child, and I’m here to help.”
Most of the rashes Boos sees are manageable with topical medications or observation and there is usually no cause for concern, but there are some cases when parents should seek treatment more urgently.
“What should make you worry about a rash is when there are symptoms that involves systems outside the skin, like high fever, vomiting or lethargy,” Boos said. “Those things definitely make me more concerned. For the most part, the majority of common skin rashes won’t have those.” Read full post »
Both the Washington State Department of Health and Seattle Children’s infectious disease expert, Dr. Matthew Kronman, are spreading the word near and far — this year, it’s more important than ever to get vaccinated against the flu. The flu vaccine can keep you and your family from getting and spreading the flu to others during the COVID-19 pandemic. We may not have a vaccine for COVID-19 yet, but we do have one for flu.
“The flu vaccine is urgent – every year. Getting the flu vaccine is the single best way to avoid flu illness, flu hospitalization, and even death due to flu for children,” Kronman said. “Yet this year we have an additional reason to strongly encourage parents to get the flu vaccine for their children: COVID-19. The course of the pandemic is unpredictable, and we want to remove any other strains on the healthcare system that we can. In this case, getting the flu vaccine does exactly that.” Read full post »
We are writing to acknowledge the tragic acts of violence and racism happening across our country.
The senseless killings of Ahmaud Arbery in Georgia, Breonna Taylor in Kentucky, and George Floyd in Minnesota leave us sickened and heartbroken. While we share our grief with these families and their communities, we must also acknowledge with sorrow our region’s own history of racially motivated violence, discrimination, and marginalization.
These recent events are set against the backdrop and acute pain of the COVID-19 pandemic, which has disproportionately impacted communities of color in the United States. Added to the burden of this crisis are the magnifying health and economic disparities, which are due to systemic racism and social injustices that have existed for far too long across generations.
These are the moments we cannot be silent—and Seattle Children’s will speak out, oppose racism, and advance our commitment to equity, diversity and inclusion. We are all affected negatively when one part of our community is burdened by racism and violence, and we are all part of the solution.
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The teachers at Seattle Children’s are experts at supporting kids and their families when children and teens are suddenly out of school. Scott Hampton, manager of K-12 Education Services, shares advice to support families in the community as they adjust to a new way of life while schools are closed.
Our world is facing an extraordinary challenge right now. As the COVID-19 pandemic continues to spread, it has disrupted and influenced all aspects of life. For families with school-aged children, a primary concern in these disruptions has been the closure of schools across our region and around the world. Read full post »
At Seattle Children’s Research Institute, scientists are genetically-engineering zebrafish to harbor human DNA mutations known to contribute congenital conditions in children.
More than five years ago, when Dr. Lisa Maves, a scientist at Seattle Children’s Research Institute, first started using CRISPR to make genetic alterations in zebrafish, she saw the potential for the minnow-sized fish to help doctors understand how genetic mutations contribute to a child’s condition.
“Essentially, we set out to make a patient’s fish,” Maves said. “The zebrafish has a genome that is remarkably similar to humans. As new gene editing technology was just becoming available, I wondered whether we could use this technology to create a fish that mimicked the complex genetic conditions we see in children.”
Maves hypothesized that genetically engineering the fish in this manner would help uncover how different genes affect development and cause disease. Read full post »
Rapid exome sequencing (rES), a blood test that can quickly detect genetic abnormalities, is helping obtain timely genetic diagnoses for critically ill children at Seattle Children’s.
A newborn boy was admitted to Seattle Children’s Neonatal Intensive Care Unit (NICU) earlier this year with arthrogryposis — a condition where an infant cannot move, their joints becoming frozen in place. When geneticist Dr. Jimmy Bennett met the infant, he was on a respirator and could only move his eyes.
“We didn’t know the cause of the arthrogryposis and could not tell the parents much about their son’s prognosis — whether he would ever come off the ventilator or if he would be intellectually disabled,” Bennett said. “With so little information, it was difficult to decide how to proceed.”
This family had a previous pregnancy that was similarly affected. Bennett believed the cause might be genetic and recommended rapid exome sequencing (rES) — a blood test that can quickly detect genetic abnormalities.
Less than a week later, the test identified a specific condition that led providers to administer an appropriate therapy. Before long, the child was moving.
“Never in a million years would we have tried this therapy without the genetic test results,” Bennett said. “Two weeks later, the patient was off the ventilator and moving all four limbs. It was like a miracle.” Read full post »
At 4 months old, Raegen was diagnosed with congenital nephrotic syndrome.
Early on in Raegen Allard’s life, her mother, Francisca Allard, noticed something wasn’t quite right with her beautiful daughter. Raegen would seem upset after she ate and her stomach was enlarged. She also had a bruise around her belly button, which worried Allard further. At 4 months old, Allard took her daughter to the emergency room closest to their home in Snohomish. They told Allard she needed to be taken immediately to Seattle Children’s Emergency Department. When they arrived they received unexpected news: they weren’t going home. Raegan was admitted to Seattle Children’s Neonatal Intensive Care Unit (NICU).
Raegen was diagnosed with congenital nephrotic syndrome, a kidney condition that begins in infancy and typically leads to irreversible kidney failure (end-stage renal disease) by early childhood.
“I didn’t know what to do,” said Allard. “It was like I was watching life unfold in front of me and I had no control. All I could do was hold her hand. It was a whirlwind.” Read full post »
As friends and families gather together to observe winter holidays, many follow traditions as part of their celebrations. There are typical traditions, like lighting a menorah each night of Hanukkah, decorating a tree for Christmas, or making resolutions for the New Year. Some families have more unusual traditions, like having a dress-up theme for Christmas Eve or throwing a BBQ for winter solstice, the shortest day of the year. Some traditions instill faith, but whether faith-based or not, practicing tradition is a way to teach values, build relationships, foster a sense of belonging and create positive memories. These are all things that make a strong positive impact on the life of children.
On The Pulse asked Seattle Children’s Dr. Mollie Grow, pediatrician, and Dr. Tony Woodward, medical director of emergency medicine, to share their top winter holiday traditions. Read full post »