From left: Christina, Lance and Justin Hughes.
As a child, Christina Hughes had trouble paying attention in school. She was criticized for her outbursts in the classroom and constantly forgot her homework. Doctors diagnosed her with Attention Deficit Disorder (ADD), but her symptoms were never relieved by therapy. Her academics and social life suffered.
“It was always hard for me to make friends, and the ones I did make weren’t the best influence,” Hughes says.
Thirty years later, Hughes is raising two sons with similar behavioral challenges. Justin, 9, is especially impulsive and emotional. Two years ago, he had a fit and began punching himself in the face. He has been bullied and suspended from school for fighting.
Justin was diagnosed with Attention Deficit Hyperactivity Disorder (ADHD) in 2012. Read full post »
Courtesy of Paul Joseph Brown/GAPPS
Globally, 15 million babies are born preterm each year, and more than 1 million of those do not survive their first month of life. Here in Washington, more than one in every 10 babies will be born preterm – before 37 weeks gestation – increasing the chance of birth complications, developmental disabilities, and lifelong health issues like cerebral palsy, asthma, and vision and hearing problems.
Today the Global Alliance to Prevent Prematurity and Stillbirth (GAPPS), an initiative of Seattle Children’s, has announced that it’s granting a total of $2.8 million to two international pregnancy research sites as part of its Preventing Preterm Birth initiative (PPB). The international sites, located in Zambia and Bangladesh, will mirror similar sites GAPPS has developed in the U.S., and will enroll women early in pregnancy and collect information and biological specimens during their pregnancies and deliveries.
The data and specimens collected for the research will be used to identify the causes of preterm birth as well as novel strategies for prevention. For more information, please refer to the press release.
Seattle Children’s clinicians do everything they can to accurately diagnose concussions and recommend the most appropriate treatment. But those tasks are difficult without definitive diagnostic tools to determine when concussions have occurred or objective evidence to prove which treatments are best.
To provide better care, physicians need better research. That is why Seattle Children’s Research Institute has created the Youth Concussion Research Program.
The new program, made possible by a generous $5 million gift from The Satterberg Foundation, is designed to develop new concussion diagnostic tools; measure sports impacts using real-time sensors; and begin clinical trials to determine which concussion treatments are most effective.
“There are so many people who want to know how to prevent concussions and long-term effects,” said Frederick Rivara, MD, MPH, who will lead the Youth Concussion Research Program. “I hope we will soon be able to answer a lot of their questions.” Read full post »
Dr. David Suskind
Late last year, David Suskind, MD, shared the good news with The Seattle Times that he saw positive results in the first FDA-approved studies of fecal transplants in children with inflammatory bowel disease (IBD) and, more specifically, in those with Crohn’s disease.
Our blog post on the research, published last June, has generated interest from families as far away as Japan.
Fecal transplants — a hot topic? Actually, it is. The research has been widely covered by the media and is even more important to the patients with IBD and families who clamor for new treatments and information that can make daily living easier and more “normal.” On the Pulse sat down with Suskind to follow up on his research, and to find out what’s next.
Read full post »
Five months ago, 20-year-old Milton Wright III was given a death sentence. Today, he is expected to live a long, healthy life. This is the incredible story of how two determined researchers and the parents of a young boy came together to save him.
On Sept. 18, 2013, 20-year-old Milton Wright III walked into Seattle Children’s Hospital and received some devastating news.
Leukemia. Again. The third time in his young life, to be precise.
Wright wasn’t surprised by the diagnosis. He had been worried his cancer was back and went to the hospital alone to avoid worrying his mom and three younger siblings. Still, the news was paralyzing.
“I really felt like I was coming up in the world,” he said. “I thought I was done with cancer.”
Then the news got worse. Wright’s leukemia had become resistant to chemotherapy. A bone marrow transplant could cure his cancer, but he would have to be in remission first, and that couldn’t happen without chemotherapy. His chances of survival were dismal. Read full post »