Kami Sutton, 26, who you met last week, has been waiting for a heart transplant for five years. But surgeons at Seattle Children’s and University of Washington Medical Center (UWMC) are now preparing to perform a difficult surgery that could greatly improve her quality of life and may even eliminate her need for a transplant. It’s possible for the first time ever, thanks to a new, realistic heart model created with 3-D printing. Read full post »
Children who need a heart transplant face a frightening waiting game before a donor heart becomes available. They must live with a failing heart for months, or even years, as clinicians strive to keep them healthy enough for transplant. Nationally, these patients face the highest waiting list mortality in solid-organ transplantation medicine, with 17% of children dying while waiting for a heart transplant.
Thankfully, Seattle Children’s has one of the best waitlist mortality rates among pediatric heart transplant centers, as reported to the United Network of Organ Sharing. The hospital also treats some of the region’s most complex, advanced heart disease and heart transplant cases and has one of the highest 3-year patient survival rates in the country.
“We are proud to be ranked among the best pediatric heart transplant centers in the country,” said Dr. Yuk Law, medical director of the Cardiac Transplant/Heart Failure Service at Seattle Children’s. “We have created a team of skilled experts who have dedicated their careers to treating heart failure and transplant cases.” Read full post »
Like many Seattle natives, 22-year-old Kevin Mick is a passionate Seahawks fan. Despite now living in Alma, Ark., Mick said the Hawks will always be his team, not just for their athletic talents, but for their actions off the field as well.
“The fact that Russell Wilson takes the time to visit patients every week at Seattle Children’s is amazing,” Mick said. “I know first-hand how much these special visits mean to a sick child.”
Growing up at Seattle Children’s
Mick was a patient at Seattle Children’s for the first 12 years of his life after being born a conjoined twin.
In June of 1992, Mick’s parents, Rex and Debra, were living in Kirkland and found out Debra was pregnant. At a seven-week ultrasound, the parents learned they were having twins after doctors heard two heartbeats. Two months later, they learned their two sons were conjoined at their abdomens. Read full post »
In honor of the New Year, we’re taking a look back at some of our most popular and memorable blog posts from 2014. Below is a list of our top 10 posts. Here’s to another great year of health news to come. Happy New Year!
Two doctors at Seattle Children’s went the extra mile to save Tatiana, one of the sickest babies they’ve ever seen. They got FDA approval to use a long-forgotten drug and are now inspired to help make this drug available to save more lives.
AJ Hwangbo was a happy-go-lucky 6-year-old without a worry in the world until mid-November when he developed a life-threatening heart condition. While specialists at Seattle Children’s Hospital helped AJ heal physically, the young boy struggled to bounce back emotionally. But, AJ’s joyful spirit returned after hospital staff arranged for him to meet his hero – local artist Macklemore. Read full post »
Remember baby Nolan Wyatt who was training for the runDisney Diaper Dash? We shared his heart-warming story in October, and the last time we spoke with the Wyatt family they were training for the race, which is part of the Avengers Super Heroes Half Marathon Weekend at Disneyland Resort. While Nolan may not have finished first, he’s now the star in a runDisney video. Their message: “There’s always hope.” Read full post »
No kid wants to have surgery. It’s not a fun experience – but Dr. Kimberly Riehle, an attending surgeon at Seattle Children’s Hospital, does her best to help reassure patients and families that everything will be okay by creating custom bandages shaped like hearts, trains and even fish.
A personalized touch
“I think the designs make the kids feel special,” said Riehle. “When we see kids, typically something unexpected has happened to them. They are seemingly healthy and then something happens that causes them to need surgery. These situations can be really stressful for parents and families. Personalizing the dressings is just one way I can help to make the experience better for them.”
Each year, Seattle Children’s surgical teams – from craniofacial to orthopedics – perform about 13,000 surgeries, double the number of any other institution in the region. But for Riehle it’s about more than the sheer number of surgeries she performs; it’s about caring for each individual patient.
The personalized bandages are one way Riehle can help children who need surgery – and their families – cope with the experience. Read full post »
When speaking about breast and colorectal cancers, typically you wouldn’t think of children. These cancers are considered adult conditions and rarely occur in individuals under the age of 21. But according to two new studies from the National Cancer Data Base (NCDB), although these diseases are rare in kids, they do still occur.
“The thought that kids even face these diseases is surprising,” said Dr. Morgan Richards, research fellow in the division of general surgery at Seattle Children’s Hospital. “But that’s why it’s important to study such diseases.”
According to investigators at Seattle Children’s Hospital and Maine Medical Center, who presented this week at the 2014 Clinical Congress of the American College of Surgeons, the studies highlight the need for an increased awareness among pediatric clinicians that these cancers do occur in children and a stronger collaboration between adult clinicians and pediatric care providers to increase survival rates. Read full post »
Sometimes, everyday moments can have the most profound impact on an individual’s life. For Dr. Jeffrey Avansino, a surgeon at Seattle Children’s Hospital, that moment came many years ago as a new attending physician. An appointment with an 8-year-old girl changed his path as a doctor and inspired him to become a national leader in reconstructive pelvic medicine.
“There needed to be a better way”
“I walked into the exam room not really knowing what to expect,” said Avansino. “The little girl I was seeing that day had fecal incontinence and had previously undergone surgery to repair an anorectal malformation.”
For most of the appointment she hid behind her mother, not wanting to talk. She was socially withdrawn, and her mother explained that she was having trouble concentrating at school. Avansino learned from their discussion that she had been going to school in diapers. She wasn’t able to control her bowels and would have accidents throughout the school day.
“I was shocked,” said Avansino. “I knew I needed to do something to help, but also I couldn’t manage patients like her on an individual level.” Read full post »
Shortly after Julie Wyatt delivered baby Nolan Wyatt on December 15, 2013 in Olympia, she received some startling news. Nolan was diagnosed with a congenital diaphragmatic hernia (CDH) – a hole in his diaphragm – a potentially life-threatening condition. It was something they didn’t see coming. Typically, CDH can be diagnosed before birth using an ultrasound, but Nolan was a rare exception. Read full post »
On a Saturday in March, 13-year-old Trey Lauren was playing with his friends at a birthday party when he fell and cut his knee on a nail. It was a typical injury for a kid his age, but what resulted was anything but typical.
Trey was taken to a local emergency room that night, and by Sunday morning his wound had been closed with six stitches. But when Monday morning came, he was too sick with a fever to go to school, and his knee had begun to swell. Trey’s parents, Mark and Randi Lauren, decided to take him to urgent care, where his stitches were removed and he was started on antibiotics. However, later that night, Trey’s fever persisted, and the swelling in his knee had only gotten worse.
One trip to the emergency room later, Trey received an additional dose of broad spectrum antibiotics, and the decision was made to transfer him to Seattle Children’s Hospital. Read full post »